08.23.2019

Aug. 23, 2019 fibromyalgia and Lyme news

1. TheMighty.com: What you need to know about medical PTSD if you're chronically ill I'm not sure if I would label it as PTSD, but there definitely needs to be a term for what happens when the medical community invalidates a patient over and over again. This is a HUGE issue for so many of us - myself included! I tend to walk into most of my medical appointments armed with meticulous notes, printed research studies and a prepared speech, ready to do battle if necessary. It's sad that I feel that way... 2. Centers for Disease Control & Prevention: Updated CDC recommendation for … [Read more...]

08.21.2019

New fibromyalgia & Lyme research studies (August 2019)

You guys liked my first new research summary so much that I've decided to keep doing them every few months! To refresh your memory or for those who are new, the following is a listing of new fibromyalgia- and Lyme-related research studies recently added to ClinicalTrials.gov. Like before, you'll notice a heavy emphasis on lifestyle-related research for fibromyalgia including studies incorporating dance, music therapy and exercise (as always). And also like before, you'll notice there are very few research studies listed for Lyme disease. I guess Lyme is so benign that it doesn't … [Read more...]

08.16.2019

Aug. 16, 2019 fibromyalgia and Lyme news

1. LymeDisease.org: IDSA extends comment period and allows downloads After many complaints, the IDSA has made it easier to read and comment on the proposed IDSA guidelines for Lyme treatment. The deadline to submit feedback has been extended to Sept. 9. 2. HealthRising.org: Rewiring the brain to get out of pain [using] the Moskowitz approach Blogger Cort Johnson explores how one doctor is using neuroplasticity to help reduce or eliminate chronic pain in his patients. 3. Oxford Academic: James H. Oliver, Jr. | Ticks, Lyme disease and a Golden Gloves champion Another … [Read more...]

08.09.2019

Aug. 9, 2019 fibromyalgia & Lyme news

1. Alternative Pain Treatment Directory: Censorship of health information by Google, Facebook, Amazon, government and more My colleague Cindy Perlin gives a nice overview of the recent online censorship of alternative health topics. Some of my cannabis and CBD content fell victim to Google's algorithm change a few months ago, effectively killing about one-quarter of my website traffic. So, yes, this is real ... it's not just some conspiracy theory! You can read more about Google's crackdown on natural health websites here. 2. Fibromyalgia News Today: Fibromyalgia may be … [Read more...]

08.02.2019

August 2, 2019 fibromyalgia & Lyme news

1. Lyme Disease Association: FDA clears new Lyme test The U.S. Food and Drug Administration (FDA) has approved four new tests for diagnosing Lyme disease. A link to the FDA's press release is included at the end of the article. 2. Pain News Network: ‘Opioid of the future’ postponed From the article: "In an SEC filing, Nektar Therapeutics said it received a letter from the FDA on July 23 saying the agency was postponing all advisory committee meetings for opioid analgesics, including one scheduled for August 21 to discuss Nektar’s new drug application for NKTR-181. The FDA was … [Read more...]

07.26.2019

July 26, 2019 fibromyalgia and Lyme news

1. LymeDisease.org: CDC agrees to add disclaimer to Lyme disease case definition There's another small victory for the Lyme disease community this week. 2. Pain News Network: Common meds can cause cognition problems in seniors From the article: "An estimated 1 in 4 older adults take anticholinergic drugs - a wide-ranging class of medications used to treat allergies, insomnia, leaky bladders, diarrhea, dizziness, motion sickness, asthma, Parkinson’s disease, chronic obstructive pulmonary disease and various psychiatric disorders. Older adults are highly susceptible to negative … [Read more...]

07.19.2019

July 19, 2019 fibromyalgia and Lyme news

1. RollCall.com: House orders Pentagon to say if it weaponized ticks and released them Huge news for the Lyme community!!!!! This may not go anywhere, but at least for a little while there's hope... 2. BetterHealthGuy.com: Frequency specific microcurrent with Dr. Carolyn McMakin, MA, DC (YouTube interview, 80 minutes) Dr. McMakin discusses using frequency specific microcurrent as a treatment for fibromyalgia, irritable bowel syndrome, Ehlers-Danlos syndrome, mass cell activation and other conditions. 3. LymeDisease.org: Is disulfiram a breakthrough drug for Lyme and … [Read more...]

07.12.2019

July 12, 2019 fibromyalgia and Lyme news

1. Fibromyalgia News Today: Glial cells overly activated in brains of fibromyalgia patients to promote inflammation, study suggests Yet another research study is showing brain inflammation and the involvement of the immune system in those with fibromyalgia. So, the question is, if we go farther upstream, what's triggering the immune system? For some of us (but definitely not all of us), the answer is chronic Lyme. 2. The New Daily: Do vitamin drips really work? The evidence says no so save your money and eat real food! The tone of this article is really negative, but vitamin … [Read more...]

07.05.2019

July 5, 2019 fibromyalgia and Lyme news

1. Pain News Network: Is Indonesia banning kratom exports? From the article: “If this ban is allowed to go into effect, it will effectively end consumer access to kratom in the United States, and the FDA won’t have to do anything more to declare victory in the war on kratom." 2. TheMighty.com: 16 things people with fibromyalgia mean when they say 'I can't hang out' This a good awareness piece to circulate to friends and family. 3. Prohealth.com: 10 supplements for Lyme disease every patient has in their protocol From the article: "Recently, I asked for recommendations … [Read more...]

06.28.2019

June 28, 2019 fibromyalgia and Lyme news

1. LymeDisease.org: Draft of new IDSA Lyme guidelines available for public comment The Infectious Diseases Society of America (IDSA) is accepting public comment on its proposed Lyme disease treatment guidelines until Aug. 10. This is the first treatment update in about 10 years. Dr. Jay Davidson posted a quick overview of the guidelines on YouTube. I didn't think it was possible, but these proposed guidelines are even worse than the current ones. For example, IDSA is recommending A SINGLE DOSE of doxycycline for certain tick bites. If this is approved, it will lead to the suffering of … [Read more...]

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