11.08.2019

Nov. 8, 2019 fibromyalgia & Lyme news

1. Global Lyme Alliance: Global Lyme Alliance launches its first observational study on Lyme disease treatment protocol From the article: "[The alliance's] first study will focus on the treatment regimen developed by Joseph Jemsek, M.D., the founder of the Jemsek Specialty Clinic of Washington D.C. Dr. Jemsek was chosen for his willingness to put his 'Jemsek Protocol®' to the test following a thorough evaluation by GLA of several patients who experienced positive results from working with the physician." 2. Healio: Fibromyalgia linked to worse cognitive function, 'fibrofog' From … [Read more...]

11.05.2019

35 Lyme & fibromyalgia treatments that didn’t work for me (but might work for you)

Over the years, I've reviewed quite a few Lyme- and fibromyalgia-related products here on Fed Up with Fatigue. Generally, my reviews are either positive or neutral. Because of that, I'm sure some of you have wondered if I'm the placebo queen and maybe even thought, "Does anything NOT help her?" Well, the reality is LOTS of treatments don't work for me! I just don't usually share those because of limited time and energy. I'd rather focus on what works than what doesn't. But today I'm doing something a little different. I've decided to add some balance by sharing a … [Read more...]

11.01.2019

Nov. 1, 2019 #fibromyalgia & #Lyme news

1. GlobeNewsWire.com: Aptinyx announces results of phase 2 fibromyalgia study of NYX-2925 have been selected for late-breaking presentation at the American College of Rheumatology annual meeting From the press release:  "'The results from this study are very encouraging based on our previous demonstration of the relevance of these neural markers in patients with fibromyalgia,' said Steven Harte, Ph.D., associate research scientist and director of sensory science at the Chronic Pain and Fatigue Research Center. 'We were able to objectively measure that NYX-2925 is affecting the apparent … [Read more...]

10.25.2019

Oct. 25, 2019 fibromyalgia & Lyme news

1. Fibromyalgia News Today: 2 proteins identified that may play role in underlying mechanisms of fibromyalgia and neuropathic pain, study finds From the article: "Results of the study ... suggest that these proteins could take part in underlying pain mechanisms involved in these disorders. However, additional studies are still warranted to better understand their role." 2. LymeDisease.org: Donate samples to Lyme Disease Biobank to aid research From the article: "Tissues donated to the [Lyme Disease Biobank] will be made available to approved researchers. This will provide the … [Read more...]

10.23.2019

How I lost weight with fibromyalgia & Lyme disease

I debated whether or not to write this article because there is so much stigma and shame that can come with being a chronic pain patient who is overweight. Many of us are criticized by insensitive doctors and loved ones who have remarked, "You'd feel so much better if you just lost a little weight..." Well, you and I both know that's not true for everyone. I do know some people whose fibromyalgia and Lyme symptoms improved after losing weight. I happen to be one of those people. But I want to be clear here: I do not believe diet and exercise alone can cure fibromyalgia or Lyme. I see … [Read more...]

10.18.2019

Oct. 18, 2019 fibromyalgia & Lyme news

1. ScienceDaily.com: New test diagnoses Lyme disease within 15 minutes From the article: "...our test could easily be used directly in a doctor’s office, obviating having to send the samples out to a laboratory that needs at least a couple of hours, if not days, to get test results.” 2. The Globe and Mail: Studies show sound baths can improve not only mood but also physical symptoms such as chronic pain From the article: "Bartel has also studied fibromyalgia patients, who suffer from widespread musculoskeletal pain, as well as memory issues, fatigue and mood problems. When … [Read more...]

10.17.2019

Fibromyalgia researchers, it’s time to stop watching the flowers grow!

This article was originally published on Pain News Network and is being republished here with permission from the editor. As a fibromyalgia warrior and blogger, I read a lot of articles about new research findings. I continue to be amazed by how much time and money are wasted by researching the obvious or studying the same treatments over and over again. After all, how many times do we need to prove meditation can reduce fibromyalgia pain? Didn’t we figure that out years ago? I really thought I’d seen it all until an article entitled “The Power of Flowers May Ease Fibromyalgia … [Read more...]

10.11.2019

Oct. 11, 2019 #fibromyalgia & #Lyme news

1. UPI.com: Psychedelic drug therapy enters new era with Johns Hopkins center From the article: "Johns Hopkins University researchers plan to use psychedelic drugs to attack some of society's toughest problems at a new research center, including smoking, depression, alcoholism, Alzheimer's disease, anorexia, Lyme disease and even addiction to opioids. Private donations of $17 million have been pledged for the new Center for Psychedelic & Consciousness Research, which opened this month in Baltimore." 2. KWWL.com: University of Iowa researchers receive $13 million in grants to … [Read more...]

10.08.2019

My current treatment protocol for #Lyme & #fibromyalgia (2019)

My last post in which I shared my complete treatment protocol was in December 2017, so I am WAYYYYYYYYY overdue for an update. So much has changed since then - both good and bad! At the time of my last update, I had just started working with my current Lyme/fibromyalgia doctor. I've made wonderful progress under his care. He is by far the best doctor I've ever seen. Yes, he's THAT good! I wish I could clone him and send him to every one of you who need a great doctor! At this point, I would say I'm about 2/3 of the way recovered from Lyme and fibromyalgia. Unfortunately, I've had some … [Read more...]

10.04.2019

Oct. 4, 2019 #fibromyalgia and #Lyme news

1. Health Rising: New anti-CGRP migraine drugs disappear both migraine and fibromyalgia for Liz From the article: "This year, after switching neurologists, though, her new doctor suggested one of the new CGRP inhibiting [migraine] drugs – Ajovy. ... In the 39 days since starting Ajovy, she’s had but a single slight migraine and, get this, no fibro flares since then." 2. Global Lyme Alliance: Global Lyme Alliance reveals several drugs and drug combinations that show success in treating Lyme disease This is a really nice overview of GLA-funded research for Lyme treatment. I'm so … [Read more...]

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