04.17.2019

5 more of my favorite things for fibromyalgia and Lyme relief (2019 edition)

This article was originally published on National Pain Report and is being reprinted here with permission from the editor. It may contain affiliate links. 

In 2016, I shared a few of my favorite things for relieving fibromyalgia symptoms. That article is still one of the most popular ones on FedUpwithFatigue.com. A lot has happened since then, so I think it’s time to publish an updated list.

Below are some of my current favorites for managing and healing from fibromyalgia and chronic Lyme. I’d love to read about what’s helping you in the comments section!

Disclaimer: This article is for informational purposes only. It is not a substitute for working with a qualified medical professional. Readers are encouraged to conduct their own research and discuss their findings with their medical providers.

#1 – Whole foods diet

What I eat makes a HUGE difference in how I feel physically and mentally. I don’t follow any particular diet, but if I was pressed I would say it’s closest to the paleo diet. I avoid gluten, dairy, soy, genetically-modified corn, processed sugar, most processed foods, most fast food, soda, artificial sweeteners and food additives like MSG.

(Read more: Why you can’t medicate your way out of poor diet & lifestyle choices)

(Read more: Pesticide linked to cancer is in nearly every U.S. food)

(Read more: How going gluten free may help with fibromyalgia)

If you follow a standard American diet, you’re probably wondering, “What the heck do you eat?” My diet is comprised of mostly whole foods: meat, seafood, vegetables and fruit. I do still eat some starchy foods like white potatoes and rice, which would be a big no-no for someone who is strict paleo.

I eat clean probably 90 percent of the time. I do still allow myself a cheat meal here and there – usually when I eat out at a restaurant – but that treat comes with increased digestive issues, pain, fatigue and brain fog for a few days (although after years of eating this way, I’ve noticed I don’t react as strongly to off-plan foods as I once did). It’s not that eating clean makes me feel so much better; it’s that I feel worse when I don’t eat this way!

(For those interested in trying an elimination diet, I would check out the Whole 30 diet.)

#2 – Otoba bark and cat’s claw (aka banderol and samento)

Shortly after writing my 2016 favorites article, I was diagnosed with chronic Lyme disease and several co-infections. My doctors at the time indicated my fibromyalgia symptoms are likely caused by these infections, and my condition should improve as they are treated.

(Read more: My current treatment protocol for chronic Lyme and fibromyalgia)

I’ve taken many herbs and supplements over the years, but otoba bark and cat’s claw (aka banderol and samento from the Cowden protocol for Lyme disease) are two that have made a big difference in my symptoms. These tinctures do a fantastic job of killing and suppressing the infections in my body. Since starting them in late 2017, I have much less chronic pain and fewer overactive bladder symptoms. I know it’s the otoba bark and cat’s claw that’s helping with these symptoms because I’ve stopped using them a couple of times, and my symptoms rage back to life.

My fibro readers are probably thinking, “Well, that’s great, but I don’t have Lyme, so how is otoba bark and cat’s claw going to help me?” First, I would say many of my fellow fibro warriors likely DO have undiagnosed chronic Lyme and don’t know it. The testing sucks! It only catches around half of Lyme cases, so if you tested negative in the past, you may still have it!

(Read more: 4 reasons a Lyme test will come back negative even if a person truly has Lyme disease)

(Read more: It may not be “just fibro” – it could be Lyme disease)

(Read more: Are your fibromyalgia symptoms due to Lyme disease?)

There are more and more researchers who theorize fibromyalgia may be caused by a malfunctioning immune system. Lyme and other co-infections are known to suppress the immune system, so if you think undiagnosed infections could be a piece of the puzzle for you, it might be worth your time to research otoba bark and cat’s claw and see if they might be beneficial for your situation.

#3 – ConcenTrace Trace Mineral Drops

I included both oral magnesium and topical magnesium in my 2016 favorites article. I still use each of these almost daily because magnesium has so many benefits. Last year, my current Lyme doctor suggested adding ConcenTrace Mineral Drops to my regime because I suspect I gave myself a nutrient deficiency from lack of appetite and the overuse of cholestyramine as a binder.

Magnesium is the main ingredient in ConcenTrace, but it also includes more than 70 other trace minerals. Due to industrialized farming, it’s hard to get these important minerals from food alone so using a liquid supplement like ConcenTrace is an easy way to improve overall nutrition.

I wish I had added ConcenTrace Mineral Drops to my protocol sooner because this stuff has so many benefits! I’ve noticed so far less soreness/achiness throughout my body, less leg/foot pain, less dizziness and lightheadedness upon standing, fewer foot cramps and my hair isn’t falling out in clumps anymore!

Like otoba bark and cat’s claw, if I stop taking ConcenTrace, I can feel a difference within a few days.

5 more of my favorite things for fibromyalgia & chronic Lyme relief | Fed Up with Fatigue

#4 – Coffee enemas

I wrote an entire article about the wonderfulness of coffee enemas last year, so I won’t go into all of the details here, but coffee enemas have been an absolute game changer for me symptom wise. They’ve been great for lowering pain and inflammation, boosting energy and increasing my ability to focus.

While I realize coffee enemas aren’t for everyone, they can be helpful for those who are open to trying unconventional therapies.

(Listen: Everything you never wanted to know about coffee enemas)

#5 – Medical marijuana

I saved medical marijuana for last because I know not everyone has access to it. I included hemp CBD oil in my 2016 favorites list. Hemp CBD is an alternative for those who live in states where medical marijuana is not available.

(Read more: What you need to know about using CBD oil for fibromyalgia)

(Read more: How to choose hemp CBD oil)

In fall 2016, I was approved for the medical marijuana program in my state. I’m probably a little different from most medical marijuana users in that I primarily use it for sleep and bedtime pain relief. I initially experimented with using CBD-rich strains for daytime pain relief, but I was never able to find a product that relieved pain without making me feel loopy.

I use two forms of cannabis at bedtime. First, I vape cannabis to help me relax so I can fall asleep. My favorite strain is MK Ultra. The vaping wears off in about an hour, so I also take either Rick Simpson Oil or cooking hash orally to help me stay asleep.

I sometimes read about cannabis users who say it completely took their pain away. That hasn’t been my experience, but it does muffle the pain so I don’t perceive it as much. For me, the real benefit has been in how it’s deepened and prolonged my sleep. When I started using cannabis, I woke up every hour or two, and then struggled to fall back to sleep. Now I average one wakeup a night. I’ll take that improvement any day!

(Read more: Best cannabis strains for fibromyalgia)

(Read more: Best cannabis strains for sleep and insomnia)

So now it’s your turn: What reduces your symptoms of fibromyalgia and/or chronic Lyme? Share in the comments! 

Comments

  1. star stern says

    https://www.treatlyme.com/BioDisrupt-p/rn-biod.htm
    have you ever tried this new supplement ?

  2. Donna, how much of the Cat’s Claw and Otoba bark do you take? I never know how much is enough– or too much. Same problem with CBD oil.

    • Donna Gregory/FedUpwithFatigue.com says

      I use about 2/3 of a dropper twice a day on an empty stomach, but I worked up to that over time. I started w/ 5 drops twice a day and worked up from there.

  3. Kathy K says

    Thanks so much for the update – are you still using the supplements from Vital Plan also?

  4. Thanks for sharing what works for you!

    I recently began vaping CBD before sleeping too, as I find it really helps me to relax, switch off and unwind. This type usage seems to be on the rise judging by other articles and forums.

  5. I desperately need to get off Kyrica but I have severe fibro and nerve damage pain so I’m going to have to take a pain med alongside the Lyrica while I’m titrations off. Opioids make my pain much worse as does all the M M I have tried bc it conflicts with a Lyrica, at least for me it does. Can anyone share with me if you’ve had to titrate off Lyrica and what made the withdrawals symptoms better?

  6. While I take a few supplements, my favorite 3 are Naltrexone (4.5mg), CoQ10 and Magnesium lotion. CoQ10 helps with energy, the other 2 with pain.

    • Donna Gregory/FedUpwithFatigue.com says

      I’m so glad to hear someone else is benefitting from LDN. It helps so many people!!!!

  7. Danny Yoho says

    What’s the name of the new blood test for fibromyalgia accidentally deleted your last email …Thank you, Danny

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  1. […] you’ve been reading this blog for a while, then you know I’m always up for trying new products that might improve my fibromyalgia symptoms. I know there’s no cure for fibro, but I do […]

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