05.25.2018

May 25, 2018 fibromyalgia, chronic fatigue and Lyme news

1. New York Times: FDA approves first drug designed to prevent migraines (Posting since migraines are a common comorbity of fibromyalgia.) From the article: "The drug, Aimovig, made by Amgen and Novartis, is a monthly injection with a device similar to an insulin pen. The list price will be $6,900 a year, and Amgen said the drug will be available to patients within a week." 2. Pain News Network: Four alternative therapies that help lower pain levels Columnist Barby Ingle explores the effectiveness of the Quell pain relief device, radiofrequency ablations, reflexology and sonopuncture, … [Read more...]

05.18.2018

May 18, 2018 fibromyalgia, chronic fatigue and Lyme news

1. Change.org: $57.1 million Lyme disease lawsuit filed against CDC I'm thrilled to see this announcement! Please consider signing the accompanying petition. (Are you aware the standard testing used by most medical facilities misses around half of all Lyme cases? If you have fibromyalgia or ME/CFS and have tested negative for Lyme in the past, please read this! Since my diagnosis with chronic Lyme in 2016, I've had a number of fibro friends who have paid out of pocket for better testing and found out they have chronic Lyme. People with chronic Lyme are frequently misdiagnosed as having … [Read more...]

05.04.2018

May 4, 2018 fibromyalgia, chronic fatigue and Lyme news

A quick note... I am having surgery this Monday on a herniated disc in my lower back. Depending on how I'm feeling, I may or may not post new content next week. If you feel called to do so, please send prayers and healing thoughts for a successful surgery and quick recovery. 1. PR Newswire: New hope for patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) From the article: "The study's results identified that KPAX002 was most effective in subjects with more severe ME/CFS symptoms and those with both fatigue and pain...." 2. National Capital Lyme Disease … [Read more...]

04.27.2018

Friday 5: April 27, 2018 fibromyalgia, chronic fatigue and Lyme news

1. Daily Mail: Top medical journals accused of skewing research by raking in millions of dollars in 'bribes' from drugs firms This is downright shocking! It's interesting that this didn't make big headlines in the U.S. - probably because the pharmaceutical industry spends so much on advertising with the major media companies. 2. I Told You I was Sick: The sure-fire way to get ANY doctor to listen and take you seriously! Blogger Jaime Heidel shares a simple strategy for getting your doctor to take action. 3. Fibromyalgia News Today: Biomarkers in saliva of fibromyalgia patients may … [Read more...]

04.13.2018

Friday 5: April 13, 2018 fibromyalgia, chronic fatigue and Lyme news

1. New York Times: Many people taking antidepressants discover they cannot quit NYT did a great piece on the challenges of dealing with withdrawal symptoms when quitting Cymbalta and other antidepressants. 2. ME Association: Chronic fatigue syndrome possibly explained by lower levels of key thyroid hormones From the article: "Published in Frontiers in Endocrinology, the study indicates that CFS, a condition with unknown causes, can be explained by lower thyroid hormones - but may be distinct from thyroidal disease. This finding can be seen as a first step to finding treatment for a … [Read more...]

04.06.2018

Friday 5: April 6, 2018 fibromyalgia, chronic fatigue and Lyme news

1. Griffith University: Drug hoped to treat CFS causes impaired immune function, Griffith study says From the article: "....the study by Griffith’s National Centre for Neuroimmunology and Emerging Diseases (NCNED) concluded that the use of rituximab in CFS patients could incur problems with their immune cells and is not beneficial as a potential treatment." 2. MedicalXpress.com: Researchers uncover [Lyme disease] protein used to outsmart the human immune system From the article: "A University of Maryland (UMD) researcher has uncovered a mechanism by which the bacteria that causes Lyme … [Read more...]

03.30.2018

Friday 5: March 30, 2018 fibromyalgia, chronic fatigue and Lyme news

1. Prohealth: 101 ways to tackle energy-limiting chronic illness From the article: "There are many, many ways we can help ourselves when we have illnesses like ME/CFS Fibromyalgia and Lyme disease. Many of them are small simple steps that may not have a huge impact in themselves, but put together they can make a big difference to well-being." 2. Medscape: Much can be done to ease 'chronic fatigue syndrome' symptoms During a two-day meeting in Salt Lake City, specialists met to discuss best practices for treating ME/CFS. This article details some of their recommendations. 3. Pain … [Read more...]

03.23.2018

March 23, 2018 fibromyalgia, chronic fatigue and Lyme news

1. PNAS.org: Cytokine signature associated with disease severity in chronic fatigue syndrome patients From the article: "Although only two cytokines were found to be different (TGF-β higher and resistin lower) in ME/CFS patients compared with controls, 17 cytokines correlated with ME/CFS severity. Thirteen of these cytokines are pro-inflammatory and may contribute to many of the symptoms these patients experience for several years." 2. Global Lyme Alliance: Are mold and mycotoxins compromising your recovery?  This article was written for those with chronic Lyme disease but is relevant … [Read more...]

03.16.2018

March 16, 2018 fibromyalgia, chronic fatigue and Lyme news

1. Medscape: Mast cell activation may underlie 'chronic fatigue syndrome' From the article: "New York City ME/CFS specialist Susan M. Levine, MD, also said she sees MCAS frequently. 'I suspect 50% to 60% of ME/CFS patients have it. It's a very new concept.'" (Mast cell activation also has been implicated in Lyme disease and fibromyalgia.) 2. Newsweek: No strong evidence marijuana relieves chronic nerve pain, study finds In last week's news post, I featured an Israeli study that found cannabis was effective for fibromyalgia. This week, there's a study with an opposite finding. (In some … [Read more...]

03.09.2018

Friday 5: March 9, 2018 fibromyalgia, chronic fatigue and Lyme news

1. Norml.org: Cannabis effective at treating symptoms of fibromyalgia From the article: "Cannabis therapy mitigates symptoms of the chronic pain condition fibromyalgia and is associated with a reduction in the use of other prescription drugs, according to clinical data published online ahead of print in the Journal of Clinical Rheumatology." 2. Practical Pain Management: Is there evidence to prescribe cyclobenzaprine for long-term pain management? A summary of the research on the effectiveness of cyclobenzaprine (brand name: Flexeril) for pain relief.  3. SolveCFS.org: Ramsay … [Read more...]

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