From the article: “Our team has made significant operational progress to ensure the commencement of our landmark Phase 2b fibromyalgia clinical trial, referred to as FORTRESS (Fibromyalgia Outcome Research Trial Evaluating Synergistic Suppression of HSV-1), with top line results projected in mid-2022,” stated Greg Duncan, chairman and chief executive officer. “We are pleased to see the research community’s growing excitement about IMC-1 as a potential treatment for fibromyalgia, as evidenced by the rapid sign up of more than 40 clinical trial sites…”
LymeDisease.org: Beaches can no longer be considered safe havens from ticks
From the article: “Bay Area Lyme Foundation today announced results of a study demonstrating that adult Western black-legged ticks (Ixodes pacificus) carrying Borrelia burgdorferi, the bacterium that causes Lyme disease, were found in beach areas at equal rates to the woodland habitats in parts of northwestern California.”
MDLinx.com: Allopurinol for fibromyalgia pain in adults
From the article: “…this study did not yield support for the benefit of the use of oral allopurinol as an adjuvant strategy during 30 days in women displaying fibromyalgia. However, new prospective studies are still valid to further examine allopurinol and more selective purine derivatives in the management of pain syndromes considering previous promising results.”
WMC Action News: Bee therapy used to help patients with Lyme disease
From the article: “Researchers with the Lyme disease research group at the University of New Haven studied the effects of bee venom and found it could be effective against the bacteria that causes Lyme. However, the scientists caution that more research is needed to determine a safe and effective way to administer the bee venom, and melittin, the main protein in the venom. Health experts say people who are allergic to bees, or who are living with adrenal failure should not try this.”
PorphyrianNews.com: My ‘fibromyalgia’ turned out to be a rare disease
Articles like this are so important because way too many people accept the diagnosis of fibromyalgia and relegate themselves to a lifetime of symptom management, but it’s critical to understand fibromyalgia is NOT recognized as a disease in and of itself. It is classified as a syndrome, meaning it’s a collection of symptoms of unknown origin.
That means if you can identify the cause of your symptoms, you can potentially treat that and get better or at least improve your overall day-to-day functioning. In this case, the underlying cause of the writer’s fibromyalgia symptoms was acute hepatic porphyria.
And an extra…
ME/CFS Self-Help Guru: No.1 pacing tip | How to unlearn the completion compulsion
From the article: “One thing that will regularly trip us up is the urge to finish something once we’ve started. It’s such a common obstacle to good pacing, I’ve named it the completion compulsion. In a previous healthy life, seeing something through, pushing to get something finished, usually equated to success. Now though it means pushing our cells into a less efficient emergency energy production state than can result in pain and post-exertional malaise.”
This week on FedUpWithFatigue.com…
Earlier this week, the fibromyalgia community celebrated our annual awareness day. In this post, some of FedUpWithFatigue.com’s readers share their personal experience of life with fibro.
Big news! I’ve FINALLY found a new place to live after more than 5 months of looking! I am so grateful for those who have supported me through their donations, prayers and well wishes. I can finally see a light at the end of a long tunnel but there’s a lot of work still to be done.
New Lyme documentary…
The Red Ring, a new Lyme disease documentary, is now available to stream online.
New fibromyalgia podcast…
My friend and colleague Dan Neuffer just started a new podcast focused on fibromyalgia, ME/CFS, postural orthostatic tachycardia syndrome and multiple chemical sensitivity. I’m super excited about Dan’s new project. I know it’s going to be a great resource for the chronic illness community.
New Lyme study…
Flightpath Biosciences, Inc. is recruiting participants to study the gut bacteria of people with post-treatment Lyme disease.
Fibromyalgia awareness gear…
(This section contains affiliate links. If you make a purchase using my link, I will make a small commission, but it does not affect the price you pay for your items.)
Since Fibromyalgia Awareness Day was Wednesday, I created an Amazon page with some of my favorite fibromyalgia-related tees, COVID-19 masks, jewelry, phone cases and more!