This week’s fibromyalgia and ME/CFS news (week of September 7, 2015)


Top stories …

Japan’s Ministry of Health, Labor and Welfare says drug-maker Pfizer failed to report hundreds of serious adverse reactions caused by Lyrica and other drugs.

Griffith University (Australia) researchers find that critical cell receptors are damaged in ME/CFS patients.

A 40mg generic version of Cymbalta is now available to patients in the United States.

Thousands of patients left scrambling: Fear of prosecution prompts Montana (U.S.) doctor to stop prescribing opiates to fibromyalgia and other chronic pain patients.

This heartbreaking tattoo reminds us that we aren’t always telling the truth when we say “I’m fine.”

Research news …

New Portugese study suggests protein and vitamin E may reduce fibromyalgia symptoms.

I’ve spent a small fortune on doctors’ visits, laboratory tests, supplements and other fibro-related purchases since being diagnosed. It turns out I’m not the only one: Health Rising’s Cort Johnson reports on “The High Cost of Fibromyalgia” for patients and the healthcare system.

A new device that looks like a “space age tiara” has been found to prevent and relieve migraines.

Books …

Best-selling Irish author’s new book features female character with ME/CFS.

Here’s a link to a free book: “Real Fibromyalgia Rx: Targeting the Pituitary as the Root Cause for Those Suffering from Fibromyalgia, Chronic Fatigue Syndrome, Interstitial Cystitis” by Danny Purser. I haven’t read this, so I can’t vouch for how good it is … just passing it along in case it might be helpful to someone.

Helpful links …

CFIDS and Fibromyalgia Self-Help shares 14 strategies for handling brain fog.

Ok, don’t shoot me … I know exercise is literally a sore subject for many with fibromyalgia (and ME/CFS), but I thought some might find this article on “8 Yoga Poses for Fibromyalgia” interesting. For the most part, the teacher picked really gentle poses. I promise downward dog did not make the list! 

Odds & Ends …

Lyrica and other branded drugs cost the National Health Service (U.K.) 8 percent more last year.

The Chicago Tribune explores, “Do Drug Ads Help Patients or Lead to Expensive Treatments?

Dr. Lynn Webster, past president of the American Academy of Pain Medicine and author of “The Painful Truth,” says the U.S. healthcare system “shamelessly abandons” chronic pain patients during this interview from the Pain News Network.

Personal stories …

Three fibro warriors show their creative side on Prohealth.com.

Nurse Kathy Gamble talks about how the guaifenesin protocol and a self-help course, among other things, have helped her live better with fibromyalgia.

Off topic …

My brother hates anything green, so I will definitely be adding some of these lettuce-free salads to my Pinterest recipe board for his visits. The Minty Watermelon Salad would be perfect for end of summer (we’re still having some hot days here in the U.S.), and there’s also a Curried Sweet Potato Salad for the fall!

Watch as a blue whale interrupts this reporter’s live news broadcast. Talk about perfect timing!

Restaurants throw away millions of used crayons every year. Now a California dad is helping to change that.

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