This week’s fibromyalgia and ME/CFS news (week of Nov. 2, 2015)

This week's fibromyalgia and ME/CFS news (week of Nov. 2, 2015)

What a week for the ME/CFS community! The poo hit the fan last week when two U.K.-based media outlets, the Daily Mail and The Telegraph, published findings from an Oxford University study claiming “positive thinking and exercise” can help ME/CFS patients recover. The response was rabid as you’ll read below.

Top news …

Here are links to the original stories that caused the uproar: “ME can be beaten by taking more exercise and positive thinking, landmark study claims” from the Daily Mail and The Telegraph’s version, “Chronic fatigue syndrome sufferers ‘can overcome symptoms of ME with positive thinking and exercise.‘” The National Health Service issued a response to the study’s findings. And here’s a follow-up story from The Guardian: “Chronic fatigue patients criticise study that says exercise can help.

Health Rising’s Cort Johnson has pulled together a nice summary of some of the questionable practices used during the controversial ME/CFS PACE trial. And, the PACE investigators responded to criticism of their trial.

While all of this was happening, the National Institutes of Health (U.S.) announced plans to bolster its ME/CFS research efforts. The Atlantic gives a few more details on the NIH’s new initiative. And so does the Washington Post.

This is scary: Ottawa (Canada) parent finds Lyrica tablets among his child’s trick-or-treat candy.

The National Health Service (U.K.) opens “tired all the time” clinic in Newcastle to treat patients with chronic fatigue and carry out research.

U.S. Food & Drug Administration approves a new long-acting opioid pain patch.

National Pain Report asks: Is the Walgreens/Rite Aid merger bad news for pain patients?

Fibromyalgia makes High Times’ list of “10 little-known uses for CBD.” I shared my own experience with using CBD oil for pain management a few months ago.

A love story: California man asks town council to reconsider its ban on growing marijuana within town limits, so he can continue to grow it for his wife who has fibromyalgia.

Research news …

Here’s a case study of a 70-year-old woman who successfully used pregabalin (Lyrica) rectally to treat neuropathic pain. Hmmm…

High-definition transcranial direct current stimulation (HD-tDCS) has been found to provide pain relief in individuals with fibromyalgia,” reports Neurology Advisor. And National Pain Report publishes an easy-to-understand Q&A on what tDCS is and how it might be useful.

Pain News Network reports on the link between vitamin D deficiency and fibromyalgia.

Florida (U.S.) study says there’s “substantial” evidence that ME/CFS is an infectious disease.

Women with fibromyalgia are more sedentary than their healthier peers, finds Spanish study. (Another example of a study with an obvious conclusion.)

Chronic fatigue linked to abnormal brain connectivity at rest

Health Rising’s Cort Johnson explores the question, “If physical injury does not trigger fibromyalgia, what does?

About.com’s Adrienne Dellwo tells us what the research says about using capsaicin to treat fibromyalgia and ME/CFS.

Interviews …

White House Chronicle’s Llewellyn King sits down with Mary Dimmock, ME/CFS advocate (YouTube, 29 minutes) to “give voice to the stories of those afflicted, outline the ways in which medicine as a business works against medicine as a matter of health, and discuss the possibilities of building enough awareness and consensus to score a rare victory in the colossally important fight against ME.”

Dr. Suzanne Vernon gives a lecture (YouTube, 58 minutes) on the topic “What hath night to do with sleep when you have ME/CFS?”

Personal stories …

Pennsylvania woman uses salt therapy to relieve fibromyalgia symptoms.

ME/CFS sufferer says, “You can’t just wish chronic fatigue syndrome away – I’m the terrible proof.

U.K. woman shares a painful truth: “Fibromyalgia strips away your self esteem.

Too young to deal with this:Girl with chronic fatigue syndrome ME at age of 8 battles against both illness and ignorance.

Oxford University student talks about “the harsh reality of living with ME.

Blogger Laurie Miller shares a day in the life of a mom living with fibromyalgia.

ME/CFS sufferer and advocate welcomes National Institutes of Health’s new interest in researching chronic fatigue.

Odds & ends …

Using scheduled rest to prevent [ME/CFS] symptoms.

Struggling to fall asleep? Fellow blogger Donna over at February Stars gives a review of a children’s book that’s supposed to help readers fall asleep in no time! (Has anyone else read this book? Did it help? I’d love to read about your experience in the comments section!)

Delaware (U.S.) medical marijuana patients are unhappy with how the state’s first dispensary is being operated.

A job well done: Independent.ie and The Irish Times pay tribute to the many accomplishments of ME/CFS expert Dr. Austin Darragh who passed away last month.

Off topic …

If you need a good laugh, you’ll want to watch Jimmy Kimmel’s 2015 edition of parents ruining their kids’ Halloween by eating all of their candy. I laughed so hard I cried!

Some Walmarts are now offering a grocery pick up service. Place your order online, and then pick it up later the same day. They’ll even load it for you! (Not an affiliate link. Just sharing because I thought it might be useful.)

I love looking at old photos, especially those featuring celebrities, so boredpanda’s “20+ historic photos that show people had more class in the past” was right up my alley! Clint Eastwood was one handsome man when he was younger!

You know I always have to include a food link! This week, I ran across this free ebook: “Good and Cheap: Eat Well on $4 a Day

Each week, I compile the best fibromyalgia and ME/CFS news into one convenient post for subscribers. If you found this post helpful, please subscribe below. 

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  1. I love these posts, there is so much great content included. I’ve bookmarked this so I can go through more later. Thanks so much for including my blog post, I really appreciate it

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