This week’s fibromyalgia and ME/CFS news (week of August 31, 2015)

latest-fibromyalgia-news-medTop stories …

More bad news for patients who are suing drug-maker Eli Lilly and Co. over Cymbalta’s withdrawal symptoms: “A Virginia federal judge on Friday, [August 28], found that two women suing Eli Lilly and Co. for allegedly misrepresenting the withdrawal risks of its antidepressant drug Cymbalta had failed to present enough jury evidence to support their fraud claims…,” according to Law360. Unfortunately, Law360 requires a paid subscription to read the rest of the article. (Sorry, I wasn’t able to find a comparable story on free media.)

Canadian man arrested after stealing 6-year-old’s birthday card and money. His excuse? He was suffering from Cymbalta’s withdrawal symptoms. (No, I’m not joking.)

I’m looking to interview (via phone or IM) a couple of people who have experienced Cymbalta’s withdrawal symptoms for an upcoming blog post. If you’re interested in sharing your experience, please email me at donna@fedupwithfatigue.com or leave me a comment below.

This post from BeingCharis.com is the most beautiful thing you will read all day: “An Open Letter to Healthy People from a Former Healthy Person.”

DePaul University (U.S.) is looking for ME/CFS sufferers to fill out this research survey.

From Health Rising this week: “Four ME/CFS Recovery Stories.”

Research news …

Multidisciplinary rehabilitation treatment is more effective at reducing fatigue than cognitive behavioral therapy in ME/CFS sufferers, says new Netherlands study.

Rigorous physical and occupational therapy reduces the pain of juvenile fibromyalgia, according to new Children’s Hospital – Philadelphia study.

Use of injectable gold nanorods could evolve into new treatment for fibromyalgia and other chronic pain conditions.

Patients who suffer from migraines and fibromyalgia are at increased risk of suicide, says new Taiwanese study.

Interviews …

A short, 6-minute interview with Australian physician and professor Don Staines, who helped develop the Centre for Neuroimmunology and Emerging Diseases at Griffith University on the Gold Coast. The center is becoming a world leader in the research and treatment of ME/CFS.

NationalPainReport.com features a short, written Q & A interview with fibro sufferer and physician Ginevra Liptan, founder of The Frida Center for Fibromyalgia in Lake Oswego, Oregon. The center is the first private practice in the U.S. dedicated exclusively to fibromyalgia. Liptan is the author of “Figuring Out Fibromyalgia.” Has anyone read her book? I keep seeing it on Amazon.com and am curious about it. If you have, please share your feedback in the comments below.

Personal stories …

A new online community, Suffering the Silence, is encouraging the chronically ill to share their stories and struggles in a visually powerful way.

Young Australian woman authors children’s book to bring awareness to chronic pain and fatigue.

U.K. woman shares her experience with fibromyalgia after being seriously injured in a motorcycle crash.

Recovery …

Author Debbie Baumgarten releases her new book, “Fibromyalgia, Chronic Fatigue and Chronic Illness: Navigating through the Confusion and Deception, Isolating the Truly Effective, Science-Based Treatments to get the Real Solutions to Recover Your Health and Take Back Your Life!” (Wow, that title is a real mouthful!) In it, she shares what has helped her regain her life after being diagnosed with fibromyalgia more than 15 years ago.

Nurse Lynn Lennon shares her fibromyalgia recovery story on Prohealth.com.

From the blogosphere …

Shelley from the Chronic Mom blog writes about “5 ‘Helpful’ Things that Really Don’t Help People with Chronic Illness.”

Fibro blogger Rosemary Lee shares “What Fibromyalgia and Pain Have Taught Me.”

Advocacy …

#MEAction Network gives an update on the possible restoration of funding for ME/CFS research by the U.S. Senate.

Invest in ME is raising funds through the Big Give Christmas Challenge Campaign to send two more medical students to participate in ME/CFS research. More details are here.

In case you missed it…

Last week, I uploaded a new post: “Why You Shouldn’t Flush Your Unwanted Medications (And What to Do with Them Instead).” It covers how to properly dispose of all those bottles of expired and unwanted pills that are collecting in your medicine cabinet and why you shouldn’t just flush them down the loo.


Off topic …

I love looking a beautiful things, so it was easy to fall in love with these “30 Magical Photos of Children Playing Around the World.”

From the mouths of babes: Children share their best advice on love on ElephantJournal.com.

I’m sure some of you heard that beloved self-help author Wayne Dyer passed away last weekend. To celebrate his life’s work, you can now watch “The Shift,” a movie inspired by his life for free during the next week.

Ever wondered why you should splurge on that pricey jar of pink Himalayan salt? Well, “This is What Happens to the Body when You Eat Pink Himalayan Salt.”

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  1. Hello Donna
    Congratulations on your collection of items. I do a similar blog http://www.fmsenews.blogspot.co.uk which has links to items that might be helpful to fibro patients. I include your link when I can and wonder if you would consider including my blog on your webpage? If you provide me with your email address I will include you on my emailing list and you will be notified each time new page is published. Any of your readers will be welcome to be included too. Just email me.
    Kind regards

    • Hi Stella,
      I just added your blog to my feed on bloglovin. That way I will get all of your updates as they happen. Please feel free to subscribe to my site, too. I love to get to know new fibro bloggers. I believe you’re a member of one of the fibro facebook groups that I frequent – probably the LDN one since it looks like you have an interest in that. Wishing you well, Donna

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