First quarter 2019 fibromyalgia & chronic Lyme news + a health update

Fibromyalgia news & research Medical News Today: Groundbreaking blood test detects fibromyalgia Ohio State University researchers have detected "molecular signatures" in the blood of fibromyalgia patients. The finding could lead to a third fibromyalgia blood test. You can read about two other fibromyalgia blood tests here and here. ***** Pain News Network: Men needed for fibromyalgia vaccine study A much-anticipated update on the EpicGenetics study to see if the BCG vaccine, used for more than a century to prevent tuberculosis, can be repurposed to eliminate fibromyalgia … [Read more...]


Where I’ve been since July | Health update

I want to give you guys a quick health update because I've had several of you email or message me to ask about my absence from blogging. In late June, I began to have daily positional headaches. Basically I get a headache anytime I am upright for more than a few minutes. The longer I stay upright, the more intense the headache becomes, so I have been spending a great deal of my time for the past 3+ months lying on the sofa or in the bed. Initially, my spine specialist thought these were tension headaches, caused by tight muscles in my neck and upper back, but when various forms of bodywork … [Read more...]


July 27, 2018 fibromyalgia, chronic fatigue and Lyme news

I need your help! Tomorrow will be one month since I developed neck pain/stiffness that is triggering a headache whenever I sit or stand for more than 30 minutes. I am having multiple headaches every day, which are only relieved when I lie down, and that is starting not to work now. :-( I've had an x-ray and MRI on my neck, and nothing abnormal showed up. My specialist believes the muscles/fascia in my neck are so tight, it is triggering tension headaches. So far, I've been doing the following to try to loosen up the muscles/fascia: massage therapy, myofascial release, chiropractic. dry … [Read more...]


July 20, 2018 fibromyalgia, chronic fatigue and Lyme news

1. Prohealth: The Cortene chronic fatigue syndrome (ME/CFS) drug trial begins I've read this drug may also hold promise as a potential treatment for chronic Lyme disease. 2. Pain News Network: New treatments on horizon for chronic pain From the article: "A new drug application has been submitted to the Food and Drug Administration for an 'opioid of the future' that is less addictive, and research has uncovered a new way to treat neuropathic pain long term with a single injection." 3. Cit2Bit Channel: Realizing remission in Lyme | Toxic is disease (YouTube video, 18 minutes) If … [Read more...]


July 13, 2018 fibromyalgia, chronic fatigue and Lyme news

Where I've been... Some of you may have noticed this is the first time I've posted since June 22. In late June, I confirmed through MRI that the disc in my back that was operated on in May has bulged again. Then, a day or so later, I started having unexplained neck pain, which triggers a headache anytime I am sitting or standing for more than a few minutes. I've spent most of the past two weeks in bed because lying down is the only position in which I can find any semblance of comfort. I'm going through the process of having imaging and seeing specialists now to figure out my next steps … [Read more...]


June 22, 2018 fibromyalgia, chronic fatigue and Lyme news

1. PR Newswire: Luye Pharma bolsters its global analgesics portfolio with China class 1.1 new compound LY03012 There's a potential fibromyalgia drug heading to clinical trials ... in China! 2. Fibromyalgia News Today: Exercise, good sleep and cognitive behavioral therapy best practices for fibromyalgia management, study suggests More of the same! :-( 3. ECU News Services: Stopping Lyme disease in its tracks An East Carolina University researcher is using a $1.69 million grant from the National Institutes of Health to study the movement of the Lyme bacteria in hopes of slowing the … [Read more...]


June 15, 2018 fibromyalgia, chronic fatigue and Lyme news

1. Intuition Physician: Morning light effectively treats fibromyalgia in just a few days From the article: "Just one hour of bright light each morning has been medically shown to decrease pain and sensitivity as well as increase functioning in patients with fibromyalgia." 2. Lyme Disease Association: Longhorned tick now confirmed in New Jersey, Virginia, West Virginia and Arkansas A new tick has migrated from Asia to the U.S.! From the article: "The longhorned tick is self-cloning, and is already known to transmit several human diseases, including spotted fever rickettsiosis, in its … [Read more...]


June 8, 2018 fibromyalgia, chronic fatigue and Lyme news

Quick update... I'm sure some of you have noticed I've been MIA for a couple of weeks. I haven't been posting because I've been dealing with my first major Lyme flare in more than a year. I stopped taking my Lyme supplements for a couple of weeks before and after my back surgery last month, and that allowed the Lyme bacteria to reproduce and rebound with a vengeance. This recent flare has proven to me without a doubt that my Vital Plan supplements were obviously working and helping me a great deal - more than I realized! To end the flare, I went back on prescription antibiotics for a couple … [Read more...]


May 25, 2018 fibromyalgia, chronic fatigue and Lyme news

1. New York Times: FDA approves first drug designed to prevent migraines (Posting since migraines are a common comorbity of fibromyalgia.) From the article: "The drug, Aimovig, made by Amgen and Novartis, is a monthly injection with a device similar to an insulin pen. The list price will be $6,900 a year, and Amgen said the drug will be available to patients within a week." 2. Pain News Network: Four alternative therapies that help lower pain levels Columnist Barby Ingle explores the effectiveness of the Quell pain relief device, radiofrequency ablations, reflexology and sonopuncture, … [Read more...]


5 lessons I’ve learned from going dairy-free with fibromyalgia & chronic Lyme

This article was originally published on NationalPainReport.com and is being reprinted here with permission from the editor.  I've always said I will never starve as long as I have two things in my house: peanut butter and cheese. These have been dietary mainstays since I was a kid because they both have protein, they're easy to grab and eat without any food prep, they're comforting and they just taste good! Unfortunately, my body has grown to hate both of them since I developed fibromyalgia and chronic Lyme. I gave up my beloved Skippy peanut butter last year after I became nauseous … [Read more...]

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