Dec. 20, 2019 fibromyalgia & Lyme news

1. U.S. Congressman Chris Smith: Chris Smith’s TICK Act and End Neglected Diseases Act to become law From the article: “It’s taken 21 years and over a dozen bills I’ve introduced in Congress beginning with the Lyme Disease Initiative Act of 1998 to get here. ... This marks a major victory for hundreds of thousands - especially and including children - who suffer from this horrific disease.” 2. U.S. News & World Report: Domestic abuse can leave legacy of poor health From the article: "...survivors of domestic abuse were twice as likely to have fibromyalgia and [chronic … [Read more...]


My Christmas wish list as someone with Lyme & fibromyalgia

I'm always on the hunt for the next thing that will help myself and my readers to feel better, and the holidays are a good time to ask for those items that may be out of reach during the rest of the year. But this year, Christmas is going to be slim because my bank account is in the red due to ongoing health issues and not being able to work my usual schedule. Since expensive (or for that matter, even inexpensive) gifts are out of the question, I thought it would be fun to come up with a wish list of chronic illness-related items I'd love to try. If Santa was real, this is what I'd ask … [Read more...]


Dec. 13, 2019 fibromyalgia & Lyme news

1. Health Rising: A one-stop shopping guide to the FM drug trials coming your way Blogger Cort Johnson gives a summary of several upcoming fibromyalgia drug trials! 2. Philadelphia Inquirer: Trump administration proposes Social Security rule changes that could cut off thousands of disabled recipients This is an extremely important article to read if you're receiving disability benefits in the U.S.! Public comment is being solicited for the next few days, and I'm assuming people should be contacting their legislators as well. From the article: "The proposed rule change would … [Read more...]


6 reasons why your elimination diet failed

This article was originally published on Prohealth.com. It is being reprinted here with permission from the editor. This article contains an affiliate link. When I became serious about healing from chronic illness, the first thing that made the biggest difference in my fibromyalgia symptoms was going on an elimination diet. I started in 2015 by cutting out gluten, soy, processed foods and most processed sugar. Within 30 days, I experienced a noticeable reduction in my pain. A few years later, I added dairy to my do-not-eat list after I tested positive for a casein sensitivity. Within … [Read more...]


Dec. 6, 2019 fibromyalgia & Lyme news

1. Pain News Network: CDC planning to update opioid guideline in 2021 From the article: "Public pressure has been building on the CDC to clarify the guideline. Although voluntary and only intended for primary care physicians treating chronic pain, the guideline’s recommended limits on opioid prescribing have been widely adopted as policy by federal agencies, states, insurers, pharmacies and many doctors." 2. WBUR.com: Human testing of springtime shot against Lyme disease coming soon From the article: "In the United States, Lyme disease vaccines are only available for dogs. But … [Read more...]


New fibromyalgia & Lyme research studies (December 2019)

It's time for another research update! The latest fibromyalgia and Lyme disease studies entered into the federal government's ClinicalTrials.gov database are summarized below. As usual, you'll notice a great disparity between the number of fibromyalgia studies vs. those for Lyme. Thank God for the supplement companies because otherwise the Lyme community would be completely left out in the cold (as usual). I'm praying Congress will pass the TICK Act so more federal funding will be earmarked for Lyme research. Find out how you can support the TICK Act here! As for fibromyalgia, there … [Read more...]


Nov. 29, 2019 fibromyalgia and Lyme news

1. Yahoo Finance: Tonix Pharmaceuticals announces initiation of the phase 3 RELIEF study of TNX-102 SL for the management of fibromyalgia From the article: "'We are in the process of activating approximately 40 U.S. sites to start enrolling patients, and we expect to dose the first patient by year end 2019,' said Seth Lederman, M.D., president and chief executive officer." 2. PR News Wire: iGeneX introduces cost-effective tests for Lyme disease and tick-borne relapsing fever iGenex now offers a Lyme test around $195. That's a savings over some of their other test panels, which … [Read more...]


FedUpwithFatigue.com’s 2019 gift guide for fibromyalgia & Lyme disease

I had all the best intentions. To get ahead of the holiday rush, I was going to be one of those bloggers who publish their annual gift guide in early November. This was finally going to be the year! Did that happen? Nope. And I don't even have a really good excuse. Everything started well. I began working on this year's gift guide in mid-October, so I had more than enough time to finish it early in the season, but for some reason... I just couldn't get it done!!!!! One thing after another kept delaying me: First, I couldn't think of what I wanted to put on my list this … [Read more...]


Nov. 22, 2019 fibromyalgia and Lyme news

1. GlobeNewsWire.com: Aptinyx initiates two phase 2 studies of NYX-2925 in patients with chronic centralized pain conditions From the article: "NYX-2925 is a novel NMDA receptor modulator that has been granted Fast Track designation by the U.S. Food and Drug Administration. The company expects to report data from ... the fibromyalgia study in the first half of 2021." 2. Bostonia.com: Lyme disease set her back. And pushed her forward. Boston University's alumni magazine profiles Hannah Olson, a graduate who has chronic Lyme and has started a new company called Chronically Capable … [Read more...]


Nov. 15, 2019 fibromyalgia & Lyme news

1. Prohealth.com: Physicians' fibromyalgia protocols I'm pretty sure I've shared this link with you guys at some point over the years, but Prohealth has been recently updating pages on their website so I think it's worth a second share. This page includes fibromyalgia treatment protocols from various physicians around the country. I think it's interesting to see how different doctors approach our illness. 2. NeurologyToday: A positive test for Lyme disease is not associated with neuropsychiatric disorders From the article: "In a longitudinal study, researchers found no … [Read more...]

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