Friday 5: Oct. 28, 2016 fibromyalgia and ME/CFS news

Oct. 28, 2016 fibromyalgia and ME/CFS news | Curated weekly by FedUpwithFatigue.com


National Institutes of Health: NIH plans to fund ME/CFS collaborative research centers

Some great news for the ME/CFS community!


Fibromyalgia News Today: Personality traits may impact severity of fibromyalgia symptoms

Do you think this study is accurate?


Solve ME/CFS Initiative: “Scientists at the National Institute of Allergy and Infectious Diseases identified a potential genetic abnormality linked with many of the symptoms of myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.”

An interesting finding that might have implications for the ME/CFS community.


mindbodygreen: 7 ways to listen to your instincts (when you don’t trust your doctor’s)

Definitely worth the click!


Yahoo Finance: A sublingual cannabis tablet could become available in the U.S.

This would be a great option for those who are uncomfortable with smoking cannabis. 

And an extra…

Pain News Network: Chronic pain patients go underground for relief

Would you risk trying this? As someone who has a genetic predisposition for lung cancer, I would probably steer clear …

Question from a reader …

I periodically have readers who email me to ask about the effectiveness of certain treatments. I usually post these on my Facebook feed, but thought I’d share this one within the Friday 5 to see if I can get a few more responses. I have a reader who wants to know if anyone has tried ketamine infusions for fibromyalgia? She’s getting ready to start them and is curious about other’s experiences. If you’ve tried these, would you share your experience in the comments below? Or, if it’s too personal to share online, feel free to email me at donna[at]fedupwithfatigue.com, and I will send your response to her. Thanks!

This week on FedUpwithFatigue.com…

5 fibromyalgia-related products I won't be repurchasing | Fed Up with Fatigue


  1. Re; personality traits study: reads bad science to me. Subjective, incomplete, skewed from the beginning, and conflating FM and ME/CFS. Not worthwhile and a waste of money. Haven’t read the study, just the article. Dissapointing as always. I think this whole “personality based medicine” rings more true of “blame the patient” in all honesty. Can you imagine if they did this type of study on illnesses taken seriously.

    I wouldn’t mind studies like this being done necessarily if significant progress and treatment had already been found for illnesses. But to start there – to start with the sway that “this illness is related to personality disorders” is unfair.

    It rings to me like it was sponsored by the PACE researchers who are constantly implying we are (my words) unhinged, emotional, aggressive, and selfish. I can see them saying it now: “It’s just part of their illness- you can’t trust these people in self advocacy – they’re unstable, they need help but that includes psychiatric medicine.”

    Happy to hear the legitimate news coming from the coming from the IACFS/ME conferance though (did I spell that right?). And all the other highlights- sublingual marijuana type drugs, I’m interested in hearing where that progresses!

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