Friday 5: Nov. 24, 2017 fibromyalgia, chronic fatigue and Lyme news

Nov. 24, 2017 fibromyalgia, chronic fatigue and Lyme news | Fed Up with Fatigue


Fox 25 Boston: MGH researchers make major discovery about fibromyalgia and IBS

From the article: “Researchers at Mass. General Hospital have made a groundbreaking discovery that could ease symptoms for millions of people suffering from conditions such as chronic fatigue, fibromyalgia and irritable bowel syndrome. Dr. Anne Louise Oaklander says a good proportion of patients diagnosed with those health issues may actually have a disease called small fiber polyneuropathy, SFPN.”


HealthRising.org: Could a diet reduce the pain in fibromyalgia? A FODMAPS study suggests yes

From the article: “The low FODMAPS diet was a partial success. Gastrointestinal symptoms like bloating and constipation declined greatly and fibromyalgia symptoms such as pain, muscle stiffness, and FM severity scores declined by about 25%.”


RawlsMD.com: Epstein-Barr virus a key player in chronic illness

Dr. Bill Rawls discusses the link between Epstein-Barr and chronic illnesses like fibromyalgia, chronic fatigue, Lyme and others. 


PainTreatmentDirectory.com: Three plants that could replace opioids in pain treatment

From the article: “The poppy plant and its pharmaceutical derivatives do not have a monopoly on pain relief, despite marketing efforts to convince us otherwise. Other plants are safer and have equal or better pain relief effects.”


CFS Unravelled: Your BIGGEST recovery resource for ME/CFS & fibromyalgia (YouTube video, 8 minutes)

Dan Neuffer, author of CFS Unravelled and creator of the ANS Rewire program, shares the most important resource you’ll need for recovering from fibromyalgia and/or chronic fatigue. 

And an extra…

Metro.co.uk: Cannabis ad brilliantly mocks top prescription drugs (video, 90 seconds)

If you’ve ever been annoyed by those ridiculous Lyrica commercials, this video is for you! 

Holiday shopping deals…

This section contains an affiliate link.

ActiPatch is offering a BOGO promotion on its 720-hour product through Nov. 28. Add two of these to your cart, and use the code THANKFUL at checkout to get the discount. I’ve been using the ActiPatch for the past week and am finding it helpful for localized pain in my back and hips. There also is a 7-day trial device that’s on sale now for less than $5. 

Through Nov. 27, the Oska Pulse is on sale for $299 (regularly $399) using the code FEDUP5 at checkout. Several of my fellow fibro bloggers have had good results with the Oska Pulse for pain relief and healing. You can read a couple of their reviews here and here. The Oska uses PEMF technology, which reduces inflammation, increases blood flow and stimulates the body’s release of natural endorphins.

Quell is running a sale on its refurbished units for only $179 through Nov. 27. No code is needed at checkout to get the sale price. Most of you probably know I’m a super big fan of the Quell pain relief device. You can read my previous review of Quell here.

For those who already have a Quell device, the company is offering $10 off each pack of electrodes with the code HOL17 at checkout.



  1. Hi, Donna
    I do get a lot of good info from your site. It’s well written and researched.I’ve tried a few of your reviewed products–Soothe Magnesium being one. Another product I like is a cream called Invigorate–not sure if that is one of yours. Both are pricey but effective. But I take issue w/their pricing. It seems to change every time I check the sites. But anyway thank you for your efforts to bring the fibro/lyme/other pain folks some good leads. And, as you say, not everything will work for everybody. Can I vent a bit? I have fibro and arthritis pain-I’m so tired of basically treating myself w/OTC (read $$$$) products! (my state just said CBD oil is illegal!!!!)

    • Donna Gregory/FedUpwithFatigue.com says

      Yes, chronic illness costs a fortune. I’m scared to even consider what I’ve spent on trying to feel better. I’m glad the Soothe Magnesium and Invigorate are helping you!

  2. Vanessa Carr says

    Hi Donna, I recently read a very interesting article you wrote regarding the bcg vaccine giving hope to the fibromyalgia community. The science behind it makes sense. So my husband and i contacted our GP and he was happy for my husband to try it, so he wrote a prescription for it. We happen to live in New Zealand, and the problem is… Is there no BCG vaccine available here. Hasnt been for a couple of years. Im told there is a worldwide shortage. Does the Faustman Lab have any? What would i need to do to get this vaccine for my husband?Do you know of anyone i could speak to that may help? We would be prepared to fly overseas if need be. Kind regards, Vanessa

    • Donna Gregory/FedUpwithFatigue.com says

      Hi Vanessa, I wish I had some answers for you but unfortunately I don’t. My understanding is there’s only a couple of companies that produce that vaccine in the world, and it’s hard to come by. We don’t have access to it in the US either b/c I asked about it myself. The only advice I’d give is to call EpicGenetics and see if they have any ideas on sourcing it internationally.

  3. Leenda says

    I had high hopes for this site, followed it for months, religiously. Alas, another money making machine. Promoting all kind of non effective crappy shit. You honestly should think twice about suggesting shit to your readers. Non of which have worked. Tried and truly disgusted.

    Have a nice life. Shame on you.

    • Donna Gregory/FedUpwithFatigue.com says

      I had high hopes that all of my readers would appreciate knowing about products that might actually help to improve their symptoms. I guess we both disappointed each other, huh? Oh well, such is life.

      Just for the record, it costs me several hundred dollars every month to keep my site running. Affiliate partnerships like the one that I have with Oska helps me to pay for that. My site is hardly a “money-making machine” as you call it. And that “crappy shit” you’re complaining about … maybe you should actually research all three of those devices b/c many people with fibromyalgia are helped by them, myself included. Don’t be so closed minded. Yes, fibro is miserable but there are things to help relieve some of that misery. If you don’t believe that’s possible, then I guess my site wasn’t right for you anyway.

      • Linda Williams says

        I find your site very helpful. I quit another popular ‘spoons’ site because it seemed more about expensive product pimping. I find your recommendations helpful. I still don’t have an exact diagnosis but looks more that CFS, arthritis, and autoimmune issues. Thanks for your site. I look forward to reading it every week.

      • jonikins says

        Dear Donna,
        You are absolutely right – your site wasn’t right for Leenda. Having realized that, she could have just moved on with her “tired and disgusted” (and very offensive) self. Does she really think that she accomplished anything with her nasty note? You help people with every new posting. What did she write that will help anyone? I feel ashamed for her.
        I think your website is absolutely the most informative and cutting-edge site around. And I appreciate the journalistic integrity that you employ when writing your articles. You present all of your information in a very unbiased way. And I can tell that you really care about all of us – your fellow sufferers.
        You absolutely do not deserve such gross remarks. But then I’m sure you have “considered the source” and disregarded her uninformed and very poorly worded remarks.
        I for one continue to look forward to more of what you’ve been presenting to us and definitely plan to try at least one if not two of these new devices. And I’m grateful for the heads-up on the sale prices.
        Wonderful!! – and Thank You

        • Donna Gregory/FedUpwithFatigue.com says

          Thank you so much for your kind words! I really appreciate it, Joan!

      • Valerie Campbell says

        You are a Godsend in my eyes! The fact that you recommended the D.ribose & crusade to bring some light& awareness to others afflicted with this illness is enough for me! Some people were miserable before the Fibromyalgia diagnose & will always look to cut someone else down regardless of good intentions.After serious side effects from a chemotherapy drug 15 years ago, I spent all of my money trying many holistic modalities& believed that with all my knowlege I could help others. I too, need to earn a living& SO WHAT if you make a few lousy bucks off of recommendations. The fact that you are serving others is enough! I don’t think you’re sitting back with a emerald tiara& working the system. Usually it’s quite the opposite. So thrive on & God bless you! Thank you Angelface..

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