05.04.2018

May 4, 2018 fibromyalgia, chronic fatigue and Lyme news

May 4, 2018 fibromyalgia, chronic fatigue & Lyme news | Fed Up with Fatigue

A quick note…

I am having surgery this Monday on a herniated disc in my lower back. Depending on how I’m feeling, I may or may not post new content next week. If you feel called to do so, please send prayers and healing thoughts for a successful surgery and quick recovery.

1.

PR Newswire: New hope for patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)

From the article: “The study’s results identified that KPAX002 was most effective in subjects with more severe ME/CFS symptoms and those with both fatigue and pain….”

2.

National Capital Lyme Disease Association: Tick testing

Ticks are out in force now! Here’s a listing of places where you can send ticks to have them tested for Lyme and other infections. In NatCapLyme’s sidebar, you can also click over to learn how to prevent tick bites, protect your pets, safely remove a tick and more!

3.

Medscape: Low-dose naltrexone explored as option for chronic pain

From the article: “Lucinda Bateman, MD, who directs the Bateman-Horne Center and chaired the ME/CFS summit, said she uses LDN frequently in her patients with fibromyalgia and those with ME/CFS for whom pain is a top complaint. ‘I’m totally convinced that in patients with pain amplification/hyperalgesia as their primary problem, it’s great. It’s as good as all the [approved fibromyalgia drugs], but cheaper.'”

4.

Health Rising: Toxic brains, frozen spines and the Perrin point

From the article: “[Dr. Ray Perrin] was the first medical professional I know of to propose that a unique physical structural problem is present in ME/CFS/FM. Perrin believes that the practice of reading the body is something of a lost art in the medical field.”

5.

Pain News Network: Should you record your medical appointments?

What do you think of this idea? I’d love to read your opinions in the comments section. I saw a new physician last month and had to sign a document saying I would NOT record our appointments. It was the first time I’d been asked to sign anything like that.

And an extra…

Myers Detox: Guide to sources and symptoms of toxic metals

Heavy metal toxicity can cause fibromyalgia symptoms and make it harder to recover from chronic Lyme disease. Hair tissue mineral analysis (HTMA) can be helpful for gauging the heavy metal levels in your body. I recommend Kristin over at Sassy Holistics for HTMA testing/evaluation. If you’re particularly concerned about mercury exposure, integrative doctors generally recommend a heavy metals urine challenge test for detecting mercury. Blood testing is ineffective unless you’ve had acute heavy metal exposure.

Almost free book…

Dr. Bill Rawls is giving away copies of his latest book, “Unlocking Lyme.” Just pay $4.95 for shipping.

Free webinar…

Dr. Anthony L. Komaroff, Simcox-Clifford-Higby professor of medicine at Harvard Medical School and senior physician at Brigham and Women’s Hospital, will discuss the latest ME/CFS research on Thursday, May 24, at 1 p.m. EDT. Register here.

My favorite Amazon products…

This section contains an affiliate link. 

Earlier this week, I updated my list of favorite Amazon products.

This week on FedUpwithFatigue.com…

Young mom shares her best tips for managing fibromyalgia in new book

Young mom shares her best tips for managing fibromyalgia in new book | Fed Up with Fatigue

Comments

  1. Sally A Peckham says:

    Hi Donna,
    Praying for a successful surgery. Thank you so much for all the information that is so vital to those living with chronic health issues. 🙂

  2. Patricia Jones says:

    Thank you Donna. Great informative newlsletter. Praying for a successful surgery & quick recovery.

  3. Hi Donna,
    I hope your doctor, surgeon and/or anesthesiologist are aware that people Fibromyalgia are often sensitive to anesthesia and muscle relaxants that may be used during surgery. And that post-surgical pain is usually accentuated in fibromyalgia patients due to enhanced pain processing.
    I sincerely hope your surgery and recovery go well and I will pray for you.
    Also, thank you so much for all of the wonderful and very helpful information you have shared with me and many others who have Fibromyalgia.

    Brad

    • Donna Gregory/FedUpwithFatigue.com says:

      Thank you, Brad! I will be sure to mention that to the anesthesiologist. I know they are going to give me an opioid for after-surgery pain.

  4. Bernadine says:

    Donna,
    You are in my thoughts and prayers for a successful surgery and quick recovery. Thank you for all that you do in providing us great information in your blog.

  5. Karen Oaks says:

    Dear Donna, Thank you for another interesting & useful newsletter. I hope your surgery is for nothing really serious and that all goes well, including your healing time. Blessings & Prayers!

  6. I fell down two years ago, on a concrete floor.
    since then, I have been diagnosed with fibromyalgia. I’ve had many tests to rule out Lyme disease, lupus, etc… my sleeping has been ruined.
    I have also cut out of my diet, such things: sugar, gluten, dairy,. to no avail. I’m still hurting.
    any more suggestions, info, help is much appreciated…lisa

  7. JuLee says:

    Donna
    Praying for you and your medical team. Praying for Healing. Praying for Peace of mind, Wisdom to know and do the right, Strength for endurance,
    I also want to Thank you for your Blog I enjoy it and you provide tons of information.

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