05.03.2019

May 3, 2019 fibromyalgia and Lyme news

1.

Stanford Medicine: First diagnostic test for chronic fatigue syndrome identified

(Note: I don’t generally post many articles about ME/CFS these days, but this is important news to share since many of you are also diagnosed with ME/CFS.)

From the article: “With strong preliminary evidence of a diagnostic tool for ME/CFS, Davis and his colleagues are moving forward to test it in more patients. They are also planning to use the nanoelectronic assay to screen for drugs that can help stabilize the blood samples from ME/CFS patients.

2.

Sciencemag.org: Long-underfunded Lyme disease research gets an injection of money – and ideas

From the article: “The $6 million from the National Institute of Allergy and Infectious Diseases (NIAID) is slated to fund up to 15 projects. The funding ‘will get new technology out of the shadows,’ spurring development of nascent approaches and collaborations, says Maria Gomes-Solecki, a veterinarian at the University of Tennessee Health Science Center in Memphis who has designed an oral vaccine for mice and other rodents against B. burgdorferi.”

3.

Dove Medical Press: Obstructive sleep apnea co-morbidity in patients with fibromyalgia (YouTube video, 3 minutes)

A new Loyola University Medical Center study recommends obstructive sleep apnea screening for fibromyalgia patients after researchers find a link between the two conditions. Read more here.

4.

LymeDisease.org: Amended complaint in Lyme lawsuit; battle lines are drawn

From the article: “Represented by three well-known Houston law firms, the patients assert that insurance companies paid key doctors associated with the Infectious Diseases Society of America to develop and enforce care guidelines that sharply limited treatment and drove doctors who treated outside the guidelines out of business.”

5.

National Public Radio: Words matter when talking about pain with your doctor

This article from last year discusses the problems with the current pain scale used by most physicians and includes tips for better communication with your doctor about chronic pain.

May 3, 2019 fibromyalgia & chronic Lyme news | Fed Up with Fatigue

And an extra …

Lemons ‘N Lyme: Stretching routine for chronic illness (YouTube video, 6 minutes)

Victoria from Lemons ‘N Lyme shares a short, gentle stretching routine for those with Lyme, fibromyalgia and similar conditions.

Free stuff!

My coach, friend and fellow chronic illness blogger Julie Holliday from ME/CFS Self-Help Guru is offering up a couple of freebies this month in recognition of the annual ME/CFS and fibromyalgia celebrations.

During May, you can participate for free (normally around $23/month) in Julie’s weekly online chronic illness support group, which meets Tuesdays at 11 a.m. EDT/4 p.m. UK time. Julie is also offering a free month of access to her bi-monthly online meditation group, which meets on the second and fourth Monday of each month at 1 p.m. EDT/6 p.m. UK.

I’ve been participating in Julie’s programs for several months now. Her gentle, encouraging approach to thriving with chronic illness was a lifesaver for me when I went through a recent health crisis. I just love her and her work!

If you’d like to try out either of these groups, please email Julie at info@mecfsselfhelpguru.com, and tell her Donna sent you! You won’t regret it!

This week on FedUpwithFatigue.com…

How to roll away your fibromyalgia pain

Using foam rolling for #fibromyalgia pain | Fed Up with Fatigue

Comments

  1. AND in the same week in Australia,another diagnostic test for ME/CFS!

    https://www.ncbi.nlm.nih.gov/pubmed/31014226?fbclid=IwAR3dMI25uGQ35TdHkd7u8FEnBMse4hikBjD-rM2LSb-p8Mts2fiv-C-Zhzs

    Feels like we’re finally getting some traction!!!!

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