May 25, 2018 fibromyalgia, chronic fatigue and Lyme news

May 25, 2018 fibromyalgia, chronic fatigue & Lyme news | Fed Up with Fatigue


New York Times: FDA approves first drug designed to prevent migraines

(Posting since migraines are a common comorbity of fibromyalgia.) From the article: “The drug, Aimovig, made by Amgen and Novartis, is a monthly injection with a device similar to an insulin pen. The list price will be $6,900 a year, and Amgen said the drug will be available to patients within a week.”


Pain News Network: Four alternative therapies that help lower pain levels

Columnist Barby Ingle explores the effectiveness of the Quell pain relief device, radiofrequency ablations, reflexology and sonopuncture, also known as sound therapy. Have you tried any of these? Please share your results in the comments section!

(You can read my Quell review here.)


Global Lyme Alliance: New point-of-care test quickly detects Lyme neuroborreliosis

From the article: “A new research-based point-of-care test has been developed in Finland for detecting the Lyme neuroborreliosis spread by ticks. The test makes rapid initiation of antibiotic treatment possible for patients with borreliosis, which reduces the post-treatment symptoms related to the disease. At the same time, unnecessary antibiotic treatments can be avoided.”


Disabled Diva: My pain management plan

Cynthia Covert from the Disabled Diva shares her treatment plan for reducing fibromyalgia pain naturally.


Nabil Moghaddam: Top 10 natural supplements for gut health (YouTube video, 15 minutes)

This is one of the best summaries I’ve seen covering products for healing the gut. Well done!

And an extra…

Clean Food Crush: 30 ways to eliminate inflammation through clean eating and lifestyle

Lots of great tips here on how to reduce chronic inflammation in the body, which leads to increased pain, fatigue and other life-sucking symptoms!

Free magnesium spray!

Soothe Magnesium is offering a free bottle of their top-rated magnesium spray – just pay shipping! I’ve found magnesium to be one of the most helpful supplements for fibromyalgia. You can read about the many benefits of magnesium and why it’s good for fibromyalgia in this article from Dr. Ginevra Liptan. Soothe Magnesium’s offer is an easy way to try topical magnesium at a low cost. Get your free bottle here, or click on the image below.

This week on FedUpwithFatigue.com…

5 lessons I’ve learned from going dairy-free with fibromyalgia and chronic Lyme

5 lessons I've learned from going dairy-free with fibromyalgia and chronic Lyme | Fed Up with Fatigue


  1. I was diagnosed with DRUG INDUCED LUPUS after taking Aimovig. My doctor believes Aimovig caused it.
    If you are having Lupus symptoms (fatigue, hair loss, increased headaches, joint/muscle aches, fevers) ask your doctor to do an ANA blood test and a HISTONE IGG AB blood test. The Histone blood test is specific for drug induced Lupus.
    Aimovig is not know to cause drug induced Lupus, but it has not been on the market long. My doctor said it will take time for a pattern to emerge. If you discover you have Drug Induced Lupus, please report it and share these blood tests with others as I believe most doctors will not think to look it.
    If you do find you have Drug Induced Lupus, the good news is that it’s reversible … once you stop the drug, the Lupus will eventually go away.
    I hope this is helps anyone having “weird” symptoms weeks/months after taking Aimovig.

  2. Robyne Huber says

    My massage therapist whom I orig. fd on Groupon does very deep muscle massage & then I added 30 min of reflexology. The 3X she’sdone it on me. It’s been amazingingly ‘healing’ & greatly reduced pain all over my body. I had terrible pain in my feet thinking of Podiatrist. But when I left I had NO pain where “my callus” IS. ( it was lessened circulation in my feet, was totally more flexible; muscles & nerves relaxed; Fibro, Arthritis& Lyme’s Pain & sequelae was gone, reduced.
    It lasted about 2 mos (if went more often think results would be cumulative.) She has also indicates when feels certain organs,etc. she’ll tell me there’s problem & has been accurate. I also find self acupressure can be very helpful esp for HAs.

  3. What is the new blood test for lyme’s disease that is 90%+accurate verses the old one which is only 50% accurate. I read it in your few months ago. I have severe pain issues which doctors say is fibro/cfs. I also have osteoarthritis all over, depression, anxiety and also globus which I have battled for years. It is a choking sensation which is constant. I have been to so many doctors and get no relief ever. Severe pain 24/7. I took celebrex for yrs. for arthritis but, it caused lymphocytic colitis. But, this all over pain is so severe I am stuck. I can say there is never a good day. I dread going to bed at night because, I know how bad I am going to feel when I wake up. Thanks for what you are doing and hope your surgery went well.

    • Donna Gregory/FedUpwithFatigue.com says

      It’s the iGenex Lyme testing, http://www.igenex.com. They offer many different kinds of Lyme tests, but the most affordable one is to order test #188 and #189. It’s around $250 and will diagnose Lyme but you do need a doctor to just sign the form for the test. If you don’t have a doctor, there is also DNA Connexions. I haven’t used that test personally but have heard good things about it. I believe their Lyme test panel is around $500 but it includes testing for different strains of Lyme + several common co-infections that are transmitted by ticks so it’s a good value. It’s a urine test that you take at home, no doctor required.

  4. First and foremost THANK YOU for your many contributions to this site! Always informative and professional. The issue I wish to present for possible review and comment is regarding new federal/state laws regarding the dispensing/use of medications prescribed for chronic pain/muscle spasms and related anxiety meds. I was informed, yesterday, by my “Pain management specialist” that effective immediately (next refill request) I will no longer be prescribed my “usual” pain medications. They (the HMO) must comply with the new federal regulations and decrease and eventually change meds due to abuse of such meds by “others”. I am a 70 year old woman who has been on disability benefits since 1996 due to diagnosis of Fibromyalgia/ME, Crohn’s disease, degenerative disc disease, Lupus, etc., etc. NOT once have I ever mis-used/abused my meds and have very carefully followed doctor’s orders. It is absolutely abhorring to me that my care is now being dictated by a group of people who, apparently, have NO understanding of quality of life vs quantity of life.Nor do these individuals appear to have any idea regarding what chronic, intense, insistent, debilitating pain can do to ones desire to live let alone function even at a minimal level. What of all the other people in situations in which the only relief from pain associated with disability/injury/illness, etc. makes living possible is the use and availability of these absolutely necessary medications? To anyone’s knowledge is there a concerted effort to challenge these mandates? Anyone have ANY ideas about, not only what to do, but how to go about letting these “rule” makers know the terrible impact this type of discrimination (for that is what it is….) will have on so many? These individuals can afford to pay for private medical services and medications. Many of “us” do not have that option. Disgusted, discouraged can’t even begin to describe what I am feeling about these issues. I do not intend to live, for whatever time I might have left on this earth, in constant, debilitating, unrelenting pain. I have taken, tried, implemented and integrated most all other “regular” and alternative pain eliminating/minimizing practices throughout these many years. Is there nothing to be done? Thank you for allowing me to vent on something that impacts us all at one time or another during our life. ANY ideas? Again, thanks for reading my rantings and blessings sent to all.

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