05.24.2019

May 24, 2019 fibromyalgia and chronic Lyme news

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1.

Medium: My ME is in remission!

Huge news this week! Jennifer Brea, the creator of the popular chronic fatigue documentary Unrest, is in remission following several spinal surgeries. I’m just thrilled for her! Her story is an example of why I am constantly saying do not just accept your diagnosis and treat symptoms. We should always look for the underlying cause of our illness! If we can figure it out and treat that, recovery may be possible! Jennifer is proof of that!

2.

U.S. News & World Report: Antiviral or antiretroviral drugs for fibromyalgia?

From the article: “Often, fibromyalgia occurs after some sort of triggering event, and in a small cohort of people, it’s believed that this triggering event could be related to contraction of a viral disease, such as Epstein-Barr, the virus that causes mononucleosis. The theory goes that if you can knock out that triggering virus, the symptoms of fibromyalgia will go away, but it’s anything but settled science.”

3.

LymeDisease.org: Is Lyme a bioweapons experiment gone bad?

This is a review of Kris Newby’s new book, “Bitten.” I just recently finished the Audible version, and I highly recommend that all Lymies read this book! Newby did a fantastic job investigating the long-circulated rumors that today’s highly virulent Lyme disease may be a bioweapon that somehow got released into the public. No, I’m not joking! The book is packed with evidence that is definitely pointing in that direction. Her investigation also gives new clues for how we might better treat Lyme.

4.

Yin & Yang Living: Long-term effects of childhood trauma (YouTube video, 16 minutes)

There are a growing number of studies linking chronic illnesses like fibromyalgia to childhood trauma. Often I see people with fibromyalgia become upset over these findings because they feel it implies fibromyalgia is all in their heads, but that’s not what the studies are really saying. This video gives a short overview of how childhood trauma may prime our bodies for developing chronic pain later in life. (And yes, I do realize not everyone with fibromyalgia had a bad childhood but many of us do fall into that category, myself included.)

5.

Healthday: Lyme disease now a threat in city parks

The headline is a little misleading because it implies ticks carrying Lyme disease are new to city parks. In truth, Lyme-infected ticks do not recognize municipal boundaries and have been feeding in urban and suburban parks for decades. However, this article is a sobering reminder that Lyme is everywhere, not just in the woods.

And an extra…

ThinkVitality: Daily qigong routine (YouTube video, 10 minutes)

Several research studies support the use of qigong as an effective gentle exercise for fibromyalgia and similar illnesses. Dr. Bill Rawls, a Lyme specialist who also has Lyme, is a big fan of qigong and tai chi, too. This short 10-minute routine is an easy way to get started! Be sure to check out his other routines, too! All free!

This week on FedUpwithFatigue.com…

Supercharge Your Power to Heal Yourself online course review

Supercharge your power to heal | Fed Up with Fatigue
Resonant Botanicals Memorial Day sale

This weekend, all Resonant Botanicals products are buy 3, get 1 free using the code MEMORIALDAY. You can check out my previous review of Resonant’s Painless (previously called Invigorate) lotion here. I still use this almost every day for general pain relief!

Free online summit!

The DIY Detox Summit is coming up on June 3-7. Register here for free.

May 24, 2019 fibromyalgia & chronic Lyme news | Fed Up with Fatigue

Comments

  1. Maureen M. says

    Hi Donna, How wonderful it is to read Jennifer Brea’s update! It’s incredible and I couldn’t be happier for her and Jeff too! Both stories are great examples of how doctors need to listen to their patients and work as a team with us. We know our bodies best. Both of their journeys are remarkable and so very interesting!
    Last year when you recommended watching UNREST, I watched and was blown away at Jennifer’s story. I cried and prayed for her. And… I found common ground within some of it. For many years I was diagnosed with FM but then I went on to believe it was truly ME. I spent years trying to get doctors to listen to me. Long story short, and after ferociously standing up to my doctors for a proper diagnosis, in July 2018 I was diagnosed with Sysytemic Lupus. I now know that I have had this disease for many years, untreated. Much damage has now been done and I am fighting to get into remission with treatment, if possible.
    I have learned so much from you.
    I am so thrilled to hear that Jennifer and Jeff are doing so much better. They are true warriors!
    And their stories had better get into medical journals! God bless them and their families for all that they endure.
    Be well, dear Donna, and as always… I Thank you for all that you do for us! Hugs, Maureen M.

    • Donna Gregory/FedUpwithFatigue.com says

      Maureen, I am so happy you finally landed on the right diagnosis. I hope you’re able to find the right treatments at the right time so you can find remission. Big hugs to you!

  2. Leicia says

    Hi, Donna. I do not know if you are aware of the Quell tens pain management device. I have Hypermobile Ehler’s Danlos disease, and Fibromyalgia. It has given me much needed relief from my chronic pain. When I had tried other tens units before, which simply did not work. Also I read all the scientific studies first. I figured, given I had sixty days to see if it helped, I would try it. I now have the new Quell (2.0, which I like better. ). It is 50% smaller and has 20 % more pain killing power. I am really impressed with it.

    • Donna Gregory/FedUpwithFatigue.com says

      Yes, I use the Quell myself and have done a couple of articles on it. Like you, I love my Quell!

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