05.18.2018

May 18, 2018 fibromyalgia, chronic fatigue and Lyme news

May 18, 2018 fibromyalgia, chronic fatigue & Lyme news | Fed Up with Fatigue

1.

Change.org: $57.1 million Lyme disease lawsuit filed against CDC

I’m thrilled to see this announcement! Please consider signing the accompanying petition.

(Are you aware the standard testing used by most medical facilities misses around half of all Lyme cases? If you have fibromyalgia or ME/CFS and have tested negative for Lyme in the past, please read this! Since my diagnosis with chronic Lyme in 2016, I’ve had a number of fibro friends who have paid out of pocket for better testing and found out they have chronic Lyme. People with chronic Lyme are frequently misdiagnosed as having fibromyalgia and/or ME/CFS.

2.

BBC.com: Chronic fatigue syndrome treatment ‘should be withdrawn’

From the article: “A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK’s leading experts in the illness.”

3.

Pain News Network: Study finds opioid medication effective for chronic pain

From the article: “Nearly two-thirds of the patients (63%) who participated in the 15 studies demonstrated ‘a clinically meaningful response’ to opioids as a treatment for chronic pain. Their physical function only improved marginally, and researchers say there was no positive or negative effect on the patients’ mood. Interestingly, adverse effects were similar in the patients who took opioids and those who were given placebos.”

4.

Fibromyalgia News Today: Venlafaxine reduces fibromyalgia symptoms in women without depressive disorder, study shows

From the article: “Treatment with the antidepressant venlafaxine (brand name Effexor XR) reduces pain, muscle stiffness, and interference in daily life in women with fibromyalgia who don’t have depressive disorder, according to researchers.”

5.

Dr. Laura Koniver: Grounding for chronic disease (YouTube video, 11 minutes)

Dr. Koniver discusses how the simple practice of grounding (also called earthing) can help heal chronic conditions.

Coming up…

(This section contains an affiliate link.) 

Ashok Gupta from the Gupta Programme is hosting a free webinar on Wednesday, May 30, at 1 p.m. EDT, on how to “Deepen Your Sleep to Help Your Recovery” from fibromyalgia, ME/CFS and similar conditions. Register here. (You must have a Facebook account to attend.)

Could your home be contributing to your illness? That’s the topic of the upcoming Toxic Home Transformation Summit, free and online, from June 25-July 1. You can learn more and register here.

Mentions…

I was happy to share my story as part of the Ravyn’s Doll campaign. The campaign is still seeking submissions by other fibro warriors. Learn more about how to participate. 

This week on FedUpwithFatigue.com…

I’ve been MIA for a couple of weeks as I recover from back surgery. Since I didn’t have a new post this week, I’m sharing one of my favorites from the archives.

23 clinically-proven ways to reduce fibromyalgia fatigue

23 clinically-proven ways to reduce fibromyalgia fatigue | Fed Up with Fatigue

Comments

  1. Rebecca says:

    Hi ! Donna , hope you are recovering from your surgery. I have been following you for awhile and enjoy your blog. I am a Pharmacy Tech (since 1994) but quit due to taking care of my special needs daughter. SHE has a rare generic disorder CALLED CDKL5. Seizures non verbal spastic quad cerebral palsy. I was diag a year ago with Fibro, severe degenerative joint arthritis restless leg. Insomnia. Severe pain. Prior to having my daughter I was having severe back and side rib pain. I was having injections in my back until I had a severe life treating reaction to the local anesthesia. This was 25 yrs ago. Then I was injured at work by falling down stairs and was being treated .long story short after I had my daughter in 1995 natural due to allergies. I was put on antidepressant when she started having seizures. I was still having pain and my workers comp ORTHO said that there was more going on than just a sore hip and knee back. He sent me to pain management. I had to come off all NSAIDS due to BP problems and not working. I was on EFfexor for some time. I had to come off due to increase in BP. But looking back as a child I had severe leg pains . I did my research and I knew my diag. My Dr said you did your home work. We have a good patient doctor relationship. I am on morphine robaxin topamax compazine . Then Zoloft temazepam . I still don’t sleep. Lots of stress.. The Topamax works wonders for my migraines and nerve pain. But I still live daily with a PAIN scale of 7 on a good day. I take care of my 23yr old daughter 24/7. And a lot of praying. My faith is keeping me going. Soft hugs and prayers to all.

  2. Robyne Huber says:

    Hi Donna! Sending you healing rapidly thoughts! MDs always tell pts it will be shorter recovery time than it ever is!
    In line with your 1st item re: suit against CDC I’m including a link to open copy of petition by Sen Richard Blumenthal of Ct. to finally provide monies to do research & provide treatment for the 300,000 people annually who suffer with Lyme’s disease!

    http://salsa4.salsalabs.com/dia/track.jsp?v=2&c=AvSwwqXBxMDYDkleT3ytEGprKrKLSIV0&url=http%3A%2F%2Frichardblumenthal.com%2F

    Be well!

  3. Veronica Gilbert says:

    Take good care of yourself! Thanks for all the tips!!

  4. Very well research information Donna. I hope you recover from your Lyme diagnosis soon.

  5. Hope your healing well!!!

    • Donna Gregory/FedUpwithFatigue.com says:

      I’m getting there. It’s taken longer than I thought it would, but so far, I think the surgery was successful. Thank you for your well wishes!

Speak Your Mind

*


This site uses Akismet to reduce spam. Learn how your comment data is processed.

Wordpress content guard plugin by JaspreetChahal.org