03.06.2020

March 6, 2020 fibromyalgia & Lyme news

March 6, 2020 fibromyalgia & Lyme news highlights: How to protect yourself from the coronavirus when you’re chronically ill; researchers discover another biomarker that might be used to diagnose fibromyalgia; myths about the opioid epidemic; new study shows standard two-tier testing detects Lyme in only 29% of patients with hallmark bullseye rash, and more! | Fed Up with Fatigue

1.

RawlsMD: Who’s really at risk of the coronavirus + how to protect yourself (YouTube video, 15 minutes)

In this video, Dr. Bill Rawls gives practical, straightforward advice on minimizing exposure to the coronavirus and the best ways to boost your immune system.

2.

TreatLyme.net: Coronavirus and Lyme

Many of us with chronic Lyme – myself included – have compromised immune systems. Dr. Marty Ross provides a few suggestions on how those with Lyme can prepare for possible exposure to the coronavirus.

For those who prefer video, Dr. Ross discussed coronavirus and Lyme during his most recent webinar (along with lots of other Lyme-related topics). Watch here!

3.

Fibromyalgia News Today: Opioid receptors on immune cells may be fibromyalgia biomarkers, study says

If you have an issue accessing the full article due to Fibromyalgia News Today’s paywall, here’s a link to the actual study.

From the article: “Opioid receptors found on the surface of immune cells may be useful biomarkers to diagnose people with fibromyalgia, a study found.”

4.

Bay Area Lyme Foundation: New study shows less than one-third of Lyme disease test results are accurate for patients with Lyme rash

From the article: “Among the findings, the Centers for Disease Control’s Standard Two-Tier Testing Algorithm (STTTA) for Lyme disease failed to accurately diagnose 71% of blood samples from individuals presenting with a Lyme rash, also known as an erythema migrans, greater than 5 cm in endemic areas.”

Public service announcement: Do you have fibromyalgia? If so, did your doctor test you for Lyme disease and did your test come back negative? Mine did, too! In fact, I’ve had MULTIPLE standard Lyme tests over the years, and they STILL come back negative. Every single one of them. Here’s why standard Lyme testing often comes back negative even if you have Lyme! It turns out the CDC-approved testing used by most doctors’ offices misses 40-50% of Lyme infections. This article explains how to get a GOOD test to find out if Lyme could be causing your fibromyalgia symptoms. Since my Lyme diagnosis in 2016, it’s been my mission to educate people with fibromyalgia, MS, ALS and similar conditions about the problems with standard Lyme testing, so they can get a proper test and diagnosis, and maybe, just maybe, get treated and get their lives back…

And yes, you can still have Lyme and NOT recall a tick bite. Only around 30% of people with Lyme disease remember seeing a tick on themselves. And yes, you can still have Lyme even if you don’t live in the northeast. There are many myths about Lyme and who contracts it. This article covers some of the most common myths.

I’m stepping off my soapbox now...

5.

BeyondFibromyalgia.com: Understanding fibromyalgia pain and suffering

My colleague Bindu Johnson explains the difference between fibromyalgia pain and suffering, and how we unknowingly could be making our symptoms worse.

And an extra…

Pain News Network: 11 myths about the opioid epidemic

The research paper linked in this article would be excellent to print off and take to your healthcare providers – especially if they’ve been giving you pushback regarding treating your pain.

This week on FedUpwithFatigue.com…

2019’s top fibromyalgia news and research

A Year in Review: 2019's top fibromyalgia news & research | Fed Up with Fatigue

Are you sensitive?

The Gupta Programme uses brain retraining, meditation and other activities to help recover from fibromyalgia, ME/CFS and similar conditions.
Ashok Gupta

Ashok Gupta, creator of the Gupta Program and the Meaning of Life Experiment app, is hosting a Facebook Live on the topic of “Chemical, Mold & Food Sensitivities are Real … But There is Hope” on Wednesday, March 11, at 2 p.m. ET. You can register here.

What Works for Me: Guaifenesin

Fibromyalgia getting our lives back success stories on the guaifenesin protocol

This is a 35-minute documentary with doctors and patients who are using the guaifenesin protocol for fibromyalgia. I regularly have readers who reach out and ask about this protocol, and others who are actually on it.

Guaifenesin seems to follow the same pattern of other treatments: It works for some and not for others. Although I will say that when it works, it seems to work very, very well in some people.

I’ve connected with a woman who is doing the protocol and will be covering her story in a future blog post.

Upcoming online summits…

(Disclosure: This section contains affiliate links.)

HealthTalks is hosting a couple of upcoming online summits that I thought might be of interest to you guys. Each day’s presentations are free to watch. However, if you’d rather watch at your leisure, HealthTalks does offer the option of purchasing the talks.

If you’re struggling with sleep (and most of us certainly are), Your Best Sleep Ever Summit starts on March 16. See a list of the presenters and register here. I’ve already signed up for this one because my sleep is better than it used to be, but I’m still struggling.

For those with a sweet tooth that never rests, the Get Off Your Sugar Summit begins on March 23. See a list of the presenters and register here. A lot of people find that their fibromyalgia and/or Lyme symptoms improve when they give up processed sugar, but it can be a huge challenge to give up those cookies! I know because I’ve been there many times!

March 6, 2020 fibromyalgia & Lyme news highlights: How to protect yourself from the coronavirus when you’re chronically ill; researchers discover another biomarker that might be used to diagnose fibromyalgia; myths about the opioid epidemic; new study shows standard two-tier testing detects Lyme in only 29% of patients with hallmark bullseye rash, and more! | Fed Up with Fatigue

Comments

  1. Dear Donna,
    Thank you so much for including the guaifenesin protocol (and the link to my documentary) on your site. I am so glad you have connected with someone who is on the protocol. As you know, I experienced dramatic results on the protocol. I am now entering my 10th year of fibromyalgia consulting, and at least monthly one of my patients thanks me for giving them their lives back. It is really wonderful. Dr. St. Amand has found that when people take guai, their urinary excretion of phosphate increases 6 times, so this protocol might treat one of the underlying metabolic problems people with FM have. Please don’t hesitate to contact me if you have any questions about the protocol.

    • Donna Gregory/FedUpwithFatigue.com says

      Hi Dr. Congdon, I’m so glad to hear from you! I will definitely be in touch re: the protocol b/c I want to learn more and share it w/ my readers.

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