03.23.2018

March 23, 2018 fibromyalgia, chronic fatigue and Lyme news

March 23, 2018 #fibromyalgia, chronic fatigue & #Lyme news | Fed Up with Fatigue

1.

PNAS.org: Cytokine signature associated with disease severity in chronic fatigue syndrome patients

From the article: “Although only two cytokines were found to be different (TGF-β higher and resistin lower) in ME/CFS patients compared with controls, 17 cytokines correlated with ME/CFS severity. Thirteen of these cytokines are pro-inflammatory and may contribute to many of the symptoms these patients experience for several years.”

2.

Global Lyme Alliance: Are mold and mycotoxins compromising your recovery? 

This article was written for those with chronic Lyme disease but is relevant to the fibromyalgia and chronic fatigue communities, too, because many of the symptoms are the same. Even if you lived in a moldy home years ago, it can still affect your health today because the mold spores can colonize and live in the body. 

3.

Pain News Network: Gluten-free diet may relieve neuropathy pain

Neuropathy, which is burning/tingling/pain/numbness usually in the feet/hands, is extremely common in those with fibromyalgia. This study hints that going gluten free can help. I know it definitely improved my pain levels

4.

Pain News Network: Human Rights Watch investigating U.S. pain treatment

From the article: “Human Rights Watch is looking for testimonials from chronic pain patients who have been forced or encouraged to stop their opioid medication by physicians or pharmacists. They’d also like to hear from patients who have been forced or encouraged to seek alternative forms of treatment, but who then found those treatments financially or geographically inaccessible.”

5.

BBC.com: Chronic fatigue trial results “not robust,” new study says

From the article: “Fresh analysis of [the] controversial [PACE] study, which recommended exercise and psychological therapy for people with chronic fatigue syndrome, suggests their impact is more modest than first thought.”

And an extra…

Melissa vs. Fibro: Supplements for fibromyalgia pain

Blogger Melissa Reynolds shares supplements that have helped to reduce her fibro pain. 

New “Yoga for Chronic Pain” book…

(This section contains an affiliate link.)

Kayla Kurin from Aroga Yoga just published a Kindle book entitled, “Yoga for Chronic Pain: Seven Steps to Aid Recovery from Fibromyalgia with Yoga.”

I’m a big fan of Kayla’s work because she is diagnosed with ME/CFS and specializes in creating yoga routines for the chronically ill. You can view some of her free yoga routines and workshops on her YouTube channel.

Stanford is recruiting ME/CFS patients…

The following text is taken from a flyer that I saw on Facebook from the Stanford ME/CFS Initiative:

“Individuals with ME/CFS (male and female, ages 18-60) are invited to participate in our MRI study! We will be scanning participants to identify structural differences in the brains of ME/CFS sufferers compared to controls. This is the follow-up study we referred to in our previous post. That article details the discovery of a potential biomarker for ME/CFS, which may be used as a diagnostic tool in the future.

“Participants must be right-handed and able to travel to Stanford, [California] for the 2 days of study visits (which can be on consecutive days). Participants will receive $150 for their time, but we unfortunately cannot provide reimbursement for travel/accommodation costs.

“The first day of the study visit takes only about an hour and consists of a questionnaire and blood draw. The second day is the MRI scan. If you might be interested, please fill out our online eligibility survey.”

Free ebook…

Ashok Gupta has published a free 40-page ebook about the Gupta Programme, a recovery program for those with fibromyalgia, ME/CFS, multiple chemical sensitivity and similar conditions. You can read my previous review of the Gupta Programme here.

This week on FedUpwithFatigue.com…

It’s time to take a new approach to fibromyalgia

It's time to take a new approach to fibromyalgia (Introduction to the Healing Fibromyalgia series) | Fed Up with Fatigue

Comments

  1. Maureen says:

    Terri, same here. I lived most of my life in the North East and since my illnesses began I was the same way in winter time. I moved to Florida 3 yrs ago and Interestingly enough, now I’m that way in the hot/very humid summers here! Actually I’m worse here! I fear going into this coming summer. The fatigue and pain consume me, shutting down my very being!

    Donna, the MECFS studies and info you’ve provided are soooo interesting! I learn so much from you about my illness. And, I do my best to bring it all to my primary doc’s attention and ask for labs to be done.
    Thank you!

    • Donna Gregory/FedUpwithFatigue.com says:

      You’re welcome, Maureen! Glad to help!

    • Bernadine says:

      Maureen, I live in Florida as well, and dread the return of both the heat and the humidity. I always feel much better when it is cooler.

  2. Jackie says:

    When I was diagnosed with fibromyalgia I was always in extreme pain. My dr. Also recommend I see a sleep dr. To see if I had sleep apnea since I was complaining of not being able to get a good nights sleep. Well she was right and after being set up with a sleep machine to use every night this decreased my pain tremendously! I could not believe the differences in how I felt. I would recommend this for anyone who has a neck that measures at or over 15″ and has large tonsils, etc.

  3. Terri says:

    Winter mos of cold weather are hell for me even if I stay in. awful increase in pain at base of skull and migraines. Upper spine pain. Feeling so weak. These keep me awake so many nights that I develop depression and anxiety. I become a shutin. Are the rest of you experiencing this? What help is there for us?

    • Donna Gregory/FedUpwithFatigue.com says:

      Winter is always the worst season for me, too. I can’t wait for the spring weather to get here.

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