Week of March 21, 2016 fibromyalgia and ME/CFS news

Earlier this week, I stumbled upon PainFreeKitchen’s YouTube channel. On it, fibromyalgia sufferer Rachel talks a lot about how what we eat impacts our symptoms. She says her fibromyalgia pain is gone after cutting gluten, dairy and soy from her diet. She’s recovered to the point where she’s doing bodybuilding and cardio most days of the week.

Yep, I heard the eye rolls out there as you all just read that. I know you’re tired of people saying if you just clean up your diet, then you’ll feel better. I don’t want to hear it either. Food is one of my favorite things in this world. 

But her videos got me to thinking. I’ve already cut gluten and soy from my diet and have seen some reductions in symptoms. I’m seriously thinking about doing a 30-day dairy-free challenge during April to see if it makes a difference. I can’t believe I’m even contemplating giving up cheese…and butter…

So I’m wondering if any of you out there have cut gluten, soy and dairy, and did it make a difference in your pain levels? And if you don’t eat dairy, are there any tasty dairy-free products (especially a substitute for cheese) that you can recommend? Please share in the comments below. I’m looking for some inspiration to take on this challenge… 

This week's fibromyalgia and ME/CFS news (week of March 21, 2016) | Fed Up with Fatigue

Top stories…

Canadian study shows pregabalin (Lyrica) and duloxetine (Cymbalta) work better together than separately.

Having brain fog? Turns out many of the drugs we take for fibromyalgia cause memory loss

And if that weren’t bad enough, researchers from 14 European universities and hospitals have issued a new warning about over-the-counter pain relievers.

Worth the read: “Patients in pain, and a doctor who must limit drugs”  The New York Times shares the story of a small town doctor who is feeling the pressure to limit the amount of opioids prescribed to his chronic pain patients. It’s a heart-breaking situation for the doctor and his patients.

From TheMighty.com: “If you’re contemplating suicide, we have some messages for you”

The Secretary of Health and Human Services and the National Institutes of Health release the final version of the National Pain Strategy, and now the work begins

Research and treatments…

Another theory: Your fibromyalgia and/or ME/CFS could have been caused by brain injury.

University of Cincinnati researchers plan to test migraine headband on fibromyalgia patients to see if it will relieve pain.

Medical News Today: “Meditation: Could it replace opioids for pain relief?”

Pain News Network: “Study may explain how meditation relieves pain”

HealthRising: “End ME/CFS severe patient study turns to the mitochondria”

“Medical marijuana reduces need for opioid pain meds”

“Some say kratom is a solution to opioid addiction. Not if drug warriors ban it first.” This is an interesting article from HuffPost on kratom, which some fibromyalgia sufferers are using to treat pain and fatigue.

Fibromyalgia News Today: “Fibromyalgia not linked to vitamin B12 deficiency, study shows” 

More from Fibromyalgia News Today: “Fibromyalgia predictors can range from headaches to sleeping problems”

Odds & ends…

Find out how much Epsom salts you should be using in your baths to get the most benefit.

Is the federal government softening its stance on marijuana? The new opioid prescribing guidelines recommend against having doctors test patients for marijuana use.

From the blogosphere…

Chronic Mom: “Shit I don’t have time for – the chronic illness edition” (We’ve probably all thought these at some time or another.)

Counting My Spoons: “How chronic illness is like a marriage” 

Blogger Make it Bake it Fake it pens a letter to her doctor after a particularly trying medical appointment.

In case you missed it…

“New center would put fibromyalgia research on the fast track” This is fantastic news for the fibromyalgia and ME/CFS communities!

Dr. Jarred Younger from University of Alabama at Birmingham is raising $4 million to open a center dedicated to speeding up the development of new fibromyalgia treatments.

Off topic …

For those who are celebrating Easter this weekend:

Time.com: “What’s the origin of the Easter bunny?”

BuzzFeed: “31 things you can do with Peeps that will blow your kids’ minds”

HuffPost: Everything you ever wanted to know about Cadbury Creme Eggs

More fibromyalgia news…

If you’re interested in reading more fibromyalgia and ME/CFS news, then you might like these:

Week of March 14, 2016 fibromyalgia and ME/CFS news

Week of March 7, 2016 fibromyalgia and ME/CFS news

Week of Feb. 29, 2016 fibromyalgia and ME/CFS news


  1. Bianca says

    I followed the paleo diet strictly for 6 months and I felt great. Better than ever! Then I got busy at work and fell off the bandwagon. I have now started getting back into it and can already feel the difference.

    I purchased a book by Clare Yates; in there, she explains and educates you on WHY to cut out certain foods. Once you understand the dynamics behind why you should not be consuming something it becomes easier to stick to your chosen path.

    • Donna Gregory/FedUpwithFatigue.com says

      The diet I was on for 9 months is basically a stricter version of paleo. Like you, I feel better when I follow a higher protein/lower carb diet. I try to stick w/ whole foods as much as possible.

  2. Another great roundup of news! I also have to avoid dairy and gluten, otherwise, I get bloated, in pain, and miserable!

    Thanks for sharing at Chronic Friday Linkup! I have pinned this to the #ChronicFridayLinkup board at https://www.pinterest.com/beingfib…/chronic-friday-linkup/

    • Donna Gregory/FedUpwithFatigue.com says

      I’ve noticed far fewer gastrointestinal issues since cutting gluten. I’m sure it would be even better if I cut dairy as well.

  3. Lisa M says

    I can’t cook often enough to do an elimination diet (and honestly I love carbs and cheese too much to even want to try) BUT I have a couple of vegan friends (one of which is like a master cook & baker lol she blows my mind) so I would suggest checking out vegan groups on Facebook for dairy alternative food suggestions and good tasting brands.

  4. Eithne

    I was taking LDN in suspension form and have change to the capsules I wonder is it in my magnate on has anyone else found the suspension more effect ???

  5. Hi Donna, it might make more sense to cut out all of,on allergens for 3-4 weeks and then reintroduce them one at a time, one week each. I did something similar when I followed the program “Clean Gut”. Look for it online or on book format. So that means also excluding eggs, meat, fish, and nuts.

    After reintroducing, some I eliminated due to pain (gluten: migraine excruciating pain, soy: overall aches) and other for IBS symptoms (oats: quick transit).

    I had eliminated all animal products 3 years ago when diagnosed with cancer, so yes alternatives to cheese include olives and avocado lightly dressed with lemon and salt. Oh, and plenty of organic nuts on hand. If you like to spend time in the kitchen, I could send you an e-book on cashew cheese. I keep things simple, so have not tried the latter.

    Also, on my gluten free bread, I spread either almond butter or avocado with red chilli flakes and salt (from the kind.diet book). Once you see the difference it makes, cheese is not a sacrifice. It’s a choice you gladly make.

    • Donna Gregory/FedUpwithFatigue.com says

      I’ve been on an anti-inflammation/elimination diet for gluten and other allergens for six months. I’ve also cut soy b/c of having a reaction when it was reintroduced. I’ve tested nuts and don’t seem to have an issue w/ them. I’ve tested nightshades w/ mixed results – can’t seem to figure out if they are an issue or not, so I just typically avoid them to be safe. Dairy is the last big food group for me to eliminate and then test.

  6. S. Young says

    Good Day to all! I haven’t cut dairy out completely. I only eat cheese once in a blue moon. Otherwise I don’t drink milk, hardly ever see butter and I haven’t seen the results. But, what I did do was go to my natural food store and talked to the herbalist about my condition and she gave me drops called R20. It has everything in the for your Thyroid,adrenal gland,ovary,pancreas,pituitary gland,thymus gland. No it has in two weeks time reduced my pain, lifted the sadness. I am taking an all natural vitamin supplement which gives me the boost of Vit. D and energy. I went off Lyric 2 weeks ago for the 10th time, always had them with Celebrex and no real help except my sleep. But these drops help me sleep and I am sleeping better than ever! I can handle my pain a lot better with sleep and no I’m not out there running marathons but I can at least clean my house and go grocery shopping. I think doctors should start researching back to basic stuff I’m sure if we replaced the Lyrica and Celebrex and Cymbalta with a regime or natural things our bodies are missing we might get back to where our bodies used to be before the surgeries and the medicines that make us feel 10x worse than before. I’m glad I went out looking for myself and stopped the merry go round with drugs. Oh, and yes meditation does help but it takes awhile to be able to clear your mind of all the pain and stuff we collect from our days as mothers,cab drivers,cooks, cleaning ladies, receptionists. But once you can it does help manage the pain…I don’t think anyone should cut anything from their diet, it’s wrong and harmful to our bodies. If we eat in moderation, and I know moderation (gall stones in bile ducts) and try to take walks, rest when our bodies tell us to, good food, no twinkies! (my fav.) I think we’ll start being able to handle the cards that have been dealt to us.Try and have the best day possible, do only what you can and screw the rest!

  7. Roxanne says

    I feel much better without butter in my diet. Whatever is in milk that bathers me must attach to the fat, so skim and fat free or low-fat milk product don’t affect me like whole milk products. Anyone else?

  8. Amelia says

    I’m trying the AIP/paleo elimination diet in May. Right now I’m just cutting soy and some gluten and I do feel better.

  9. Dairy definitely causes me pain. I’d say it affects me more than gluten. I’ll be honest with you, the idea of giving up cheese is worse than it actually is. Plus your tastes change. Cheese tastes weird to me now. You can add nutritional yeast to give things a cheesey flavour but I personally find vegan cheeses to be gross. Coconut milk is my favourite dairy free alternative to milk. Coconut cream is delicious too.

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