06.28.2019

June 28, 2019 fibromyalgia and Lyme news

1.

LymeDisease.org: Draft of new IDSA Lyme guidelines available for public comment

The Infectious Diseases Society of America (IDSA) is accepting public comment on its proposed Lyme disease treatment guidelines until Aug. 10. This is the first treatment update in about 10 years. Dr. Jay Davidson posted a quick overview of the guidelines on YouTube. I didn’t think it was possible, but these proposed guidelines are even worse than the current ones. For example, IDSA is recommending A SINGLE DOSE of doxycycline for certain tick bites. If this is approved, it will lead to the suffering of millions! I urge everyone to take a few minutes to submit feedback on the guidelines.

2.

Reuters: Common nerve pain drug linked to suicidal behavior, overdose

From the article: “Compared to when the same people weren’t taking a gabapentinoid drug, their risk while taking pregabalin or gabapentin was 26% higher for suicidal behavior or suicide, 24% higher for accidental overdose, 22% higher for head or body injuries, and 13% higher for car crashes and traffic offenses.”

3.

RawlsMD.com: Why weedkiller in your cereal is truly scary (includes 11-minute video)

If you’re still eating a standard American diet, you are likely dousing your gut with Roundup weedkiller at every meal. I believe Roundup/glyphosate poisoning is why so many of us respond well to giving up gluten and adopting an organic, whole foods diet. In my opinion, following that sort of diet is one of the first steps to healing conditions like fibromyalgia, chronic fatigue and chronic Lyme.

4.

Global Lyme Alliance: New peer-to-peer mentor program announced to support Lyme disease patients and caregivers

From the article: “Global Lyme Alliance today announced the launch of ‘Lyme Link,’ its new – and the Lyme disease community’s first – peer-to-peer mentor program. Lyme Link is a free resource that matches those affected by Lyme and other tick-borne diseases with volunteers who provide emotional support and hope.”

5.

Fibromyalgia News Today: Baths in mineral-medicinal water can benefit fibromyalgia patients, trial suggests

From the article: “The impact caused by fibromyalgia has been improved in this study by an intervention of 14 half-hour baths with mineral-medicinal water in patients diagnosed with the illness, and the improvement has lasted significantly for [up to] eight months.”

And an extra…

PhillyVoice.com: Common antidepressant drug tied to increased risk of falls in elderly adults

From the article: “[Researchers] found that SNRIs – including the drug duloxetine, known under the name brand of Cymbalta – proved to be the most detrimental to older adults. The team concluded that duloxetine ‘most likely increases the risk of falls over longer treatment.'”

Coming soon!

I’ve finished the writing project I’ve been working on and will be resuming new blog posts next week! Thank you for your patience!

Elsewhere…

I recently wrote an article for Pain News Network on a new FDA proposal to package opioids in blister packs for acute pain patients. Read the article here.

June 28, 2019 fibromyalgia & chronic Lyme news | Fed Up with Fatigue

Comments

  1. Maureen M. says

    HI Donna, Thank you for the post re Lyrica, Gabapentin etc. Now I know I was right years ago! Around 2005 I was put on Lyrica for nerve damage pain following extensive spine surgery. Lyrica had just come out but was still under some studies. My personality changed quickly and drastically. I became angry and then suicidal like. When I called my doctor about it I was told it wasn’t the med and that I should see a psychiatrist! Well, I stopped the med and the side effects went away. I soon developed shingles and the surgeon then put me on Neurontin…high doses of it! I had similar side effects and stopped it. Around that time I was also diagnosed with trauma related RSD in my right leg/foot and left hip/thigh areas. A few years later when in the hands of a pain management doctor and still having a lot of nerve pain he put me on Gralise 300mg (long acting Gabapentin). Many doctors and pharmacists never even heard of it but it was what I could some what tolerate compared to the others. I took one at bedtime for the last 10 yrs. It helped a little but not completely.
    My side effects were bloating,intermittent blurred vision, foggy minded, forgetful and occasional weepiness.
    I was later diagnosed with Fibromyalgia about 8 yrs ago which has now been diagnosed as Systemic Lupus, as of last summer. Many times over those years I felt ‘toxic’ and would stopped the Gralise but within a week the nerve pain was so great and so I went back on it.
    Now I’m being treated with Plaquenil for Lupus and in January I felt very ‘toxic’ again so I stopped the Gralise again, after 10 yrs! and miraculously have been off it since! I’m amazed!
    Well, my nerve pain is so much less and very tolerable! I’ve since learned that Plaquenil can have positive effects on the central nervous system soooo I’m guessing it is helping my nerve damage.
    The Gabapentin side effects all went away quickly and I’m so happy to be rid of them. Perhaps Lupus was even causing the nerve pain? Well, we live and learn but now tell anyone to NOT take Gabapentin if possible. Less drugs, the better off we are.

  2. Jackie vanwormer says

    I’m sick of every time I go to doctor they tell me my pain is from fibromyalgia. I kept telling my doctor I had sciatica and the pain is so bad I went to ER. they to said see ur doctor it’s really just going to take time to heal. well finally I call her up I said I need to see u. this is not fibromyalgia pain this is something else. I told her I needed MRI she faught me on this after telling her I pay for it u dont. so this has been going on since Oct 18, got MRI in June19. and what do u know my back is way worse then we thought. I now need 2 fusions, a herniated disc that makes me walk with a Walker because I cant feel my leg. I cant drive because I dont know the pressing of the gas and break concept. on top of all of this I have never ever been tested for lyme disease and I grew up in upper Michigan and Wisconsin and had plenty of ticks on me growing up. I do recall the red circle bite from a tick which my doctor told me was ringworm and that she gave me cream for. why are we always over looked from other pain so often. I’m 48 and 8 months ago I could have been done and healed from my back already. anyone else having these issues

    • Donna Gregory/FedUpwithFatigue.com says

      Yes, a lot of us have that issue of doctors blaming everything on fibromyalgia. Big kudos to you for listening to your body and continuing to push for necessary medical treatment. I hope you’re able to get the back pain remedied. I have back issues, too, and it’s worse than my fibro/Lyme pain at this point.

  3. Gardengal123 says

    Hi Donna,
    I’m so appreciative of your website and all the information you gather. Your resilience in the face
    of so much physical pain, etc. is inspirational. Have you heard of a company called Mother Earth Labs?
    It is not a multilevel marketing company. A friend I recently met told me about it re: fibromyalgia and another chronically painful and debilitating type of angina caused by Coronary Endothelial Dysfunction.
    His wife, who had Parkinson’s took it with a couple of other products and is doing amazingly well.
    Also a friend of his with advanced prostrate cancer took this product and the cancer is completely gone.

    • Donna Gregory/FedUpwithFatigue.com says

      I haven’t heard of that product before. Thank you for sharing!

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