Friday 5: Jan. 6, 2017 fibromyalgia and ME/CFS news

I think one of the most frustrating things about fibromyalgia is how variable it is. As fibro symptoms go, I’ve felt pretty good the past three months. My pain levels have been fairly low, and with the exception of battling almost daily nausea from the Lyme medications I’m taking, I’ve felt better than I have in a long time. 

And then, WHAM! January arrived, and Old Man Winter finally hit the East Coast. Wow, what the heck happened?!? I feel like I’ve been hit by a snow plow! We’ve had snow and rain a couple of times this week, the temperatures have dropped down into the 30s and 40s, and now I’m in pain, pain, pain! I know I’m not alone because I’ve noticed an increase in posts from my fibro buddies on Facebook who are having the same issue.

It’s so frustrating because short of moving to a tropical island, there’s nothing we can do to control the weather. I’m hoping for an early spring, and that this winter won’t be as painful as the last. Who’s with me?

Now onto this week’s news…

Jan. 6, 2017 fibromyalgia and ME/CFS news | Curated weekly by FedUpwithFatigue.com


HealthRising.org: Losing brain matter – the fibromyalgia way

Cort Johnson examines a recent meta-analysis of research studies showing changes in brain matter among fibromyalgia patients. 


National Pain Report: Low vitamin D can increase fibromyalgia pain and balance problems

More evidence that low vitamin D levels can contribute to fibromyalgia symptoms.


Prohealth: The surprising magic of a not-to-do list

Blogger Sue Ingebretson shares what a not-to-do list is and why it’s helpful to have one. 


National Pain Report: Perks for chronic illness/disability

A list of freebies and discounts for those who are disabled.


The Mighty: Why I’m starting a clothing company for those with chronic pain

I’m sure everyone with fibromyalgia knows the struggle of finding comfortable clothing. 

And an extra…

Organic Life: 6 ways to embrace hygge, the Danish secret to staying happy during winter

Winter can be tough for those of us with fibromyalgia because the cold weather causes our symptoms to flare. The Danish tradition of hygge might make it more bearable. 

Book discussion…

This section contains an affiliate link. 

I’ve created a Facebook group to discuss Dr. Ginevra Liptan’s newest book, “The FibroManual.” We’ll begin with chapters 1-2 on Monday, Jan. 9, and cover a chapter every week or two thereafter. If you’re interested in participating, join the FibroManual Book Discussion group.

This week on FedUpwithFatigue.com…

How our everyday habits and activities might be adding to our symptoms…

Fatigue is a big issue with fibromyalgia and ME/CFS. I’ve recently been evaluating my everyday tasks and looking for ways to streamline them in order to conserve my energy. I’ve found that oftentimes I have just been creating extra work for myself. Are you doing the same? | Fed Up with Fatigue


  1. I also live in Delaware….was diagnosed with fibromyalgia 3 years ago. I’ve recently asked my doctor to test for other diagnosis because I do have all the symtoms of fibromyalgia but many patients speak about flare ups…I feel it every day and it’s taken my life over. My tests all came back the same as they did three years ago. I will also say that no matter what the physicians say weather plays a huge part in my daily life. I’m kinda commenting on three different post you made Donna. You were talking about the first of three possible drug therapys for fibromyalgia. The first actually was a anti viral and had to do with cold sores that come and go hiding with no symtoms. I couldn’t believe what I was reading…..who would ever put Fibromyalgia and cold sores in the same sentence? As young as kindergarten I had cold sores every year at picture time at school right threw to my senior year. It’s a story in my family that always got lots of laughs…my mom kept our 8X10 school pictures in a photo album from each year(8X10’s) always made that cold sore look gigantic. I’m not sure if you comment on every post…I just kinda found this site as I was looking for a device I saw on tv to help with fibromyalgia pain(didn’t find it) but I found you! And if that wasn’t great enough you’re a fellow Delawarean !

    • Donna Gregory/FedUpwithFatigue.com says

      Hey Dawn, where are you in Delaware? I’m in New Castle County. Re: cold sores…Did you read the article I did about Dr. Pridgen’s research? He’s a physician in Alabama who is developing an antiviral/anti-inflammatory combo for fibro. His premise is that the herpes virus is the underlying cause for fibro. They actually scoped the stomaches of a group of fibro patients and found that there were herpes lesions in their stomaches!!! That would also kind of explain why so many of us have so many gastrointestinal issues. Here’s a link so you can read about it: https://fedupwithfatigue.com/imc-1-fibromyalgia/

      • Hi Donna…I live in Felton (south of Dover) I had read that article and couldn’t believe cold sores and Fibromyalgia were mentioned in the same sentence. Thank You for your blog…I’m sure I’ll be here often. After three years I can still say I haven’t learned to manage my fibromyalgia so I can always use some help.

  2. Leslie King says

    Hi Donna, Wanted to share with you that some of your fibro folks might want to check out. I had been having sharp pain around my ankles and the inside of my lower legs for a couple years and went to many health care professionals to see if they knew what this might be. It worsens when one walks and is extremely painful.
    In November I finally after two plus years went to a very experienced Physical Therapist who with in the first 10 minutes of talking to me about my symptoms said you have posterial tibial tendonitis and after getting a second opinion with a well known podiatrist it was confirmed with x-rays that in deed this is what I had been suffering with.
    It is a condition that is not rare and should have been caught by some of the medical professionals that I had talked to about it. But now I am getting the proper treatment which requires a lot of home work with stretching and icing and visits to the PT two times a week for soft tissue therapy.
    Medicare does pay for PT if anyone needs to use it.
    I just don’t want anyone else to suffer needlessly and think it is just fibro pain in the legs when they might this condition.

    • Donna Gregory/FedUpwithFatigue.com says

      Hi Leslie, thank you for sharing your experience. It’s a good example of why we and our physicians shouldn’t just blame everything on fibro. I’ve had a similar situation happen with my feet – misdiagnosed multiple times. It’s frustrating when you realize you dealt w/ pain for so long and didn’t have to if your physicians had just been more diligent.

  3. It looks like “The Surprising Magic of a Not-to-do List” isn’t linked.

  4. Jennifer says

    I love your blog, and look forward to your posts each week. Thank you for keeping us updated on the latest news and research. This is a wonderful resource for not only the newly diagnosed, but those of us who have become seasoned veterans in this journey through life with chronic illness.

    I noticed you did not have a link to the ProHealth article in today’s Friday 5 (1.6.17). I hope it’s OK for me to share it here. If not, please just remove my comment. Have a wonderful day!


    • Donna Gregory/FedUpwithFatigue.com says

      Sorry about that, Jennifer! I just fixed it. I appreciate you letting me know.

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