01.10.2020

Jan. 10, 2020 fibromyalgia & Lyme news

Jan. 10, 2020 #fibromyalgia & #Lyme news highlights: Navega Therapeutics researchers are closing in on how to alter genes to stop pain; thousands could lose Social Security disability benefits if proposed changes are approved; Justin Bieber has chronic Lyme disease; 10 steps to boost your health in 2020 and more! | Fed Up with Fatigue

1.

Daily Mail: Hope for millions as scientists learn how to ‘edit out’ pain

From the article: “Scientists have discovered how to switch off a key ‘pain gene’, dramatically raising hopes of a long-term treatment to relieve the agony of serious illness for millions. The revolutionary technique alters a patient’s DNA, silencing a gene that transmits pain signals up the spine.”

2.

USA Today: Trump’s proposed Social Security disability cuts could end benefits for thousands. What to know

From the article: “The agency has said it expects to conduct 4.4 million more continuing disability reviews over ten years if the rules take effect. The reviews would add $1.6 billion in administrative costs, but save $2.8 billion in benefits when people are cut from the program. Using those figures, national advocates for people with disabilities estimate tens of thousands of people stand to lose disability benefits each year.”

Public comment is being accepted through Jan. 31! Instructions on how to submit feedback are at the end of the article!

3.

Washington Post: Justin Bieber looks like a drug addict, fans said. Then the singer revealed he has Lyme disease.

Yet another celebrity has chronic Lyme! How much longer can the CDC keep denying its existence? Hopefully, Justin Bieber will use his status to raise more awareness and more importantly, additional money, for Lyme!

4.

Real Food Rebel: 10 simple things that will boost your health in 2020

At first glance, a lot of you will look at this list and say, “There’s no way that’s really going to help,” or “I’ve done everything on that list, and I didn’t improve,” but I’d encourage you to recommit yourself in the new year to making healthier decisions because these simple lifestyle changes, in totality, really can make a difference in how you feel. I know from experience!

5.

HealthRising.org: The best, the most, the strangest and the worst of 2019 in ME/CFS and fibromyalgia

My favorite fibromyalgia blogger Cort Johnson gives us a comprehensive overview of 2019’s most important chronic fatigue (ME/CFS) and fibromyalgia research findings. Much of his article is devoted to new discoveries in the ME/CFS community. It appears very little happened in the fibromyalgia community last year, but since ME/CFS and fibro are sister conditions, it’s still worth a skim because conceivably many of these discoveries may apply to those of us with fibromyalgia, too.

And an extra…

Dr. Martin Rutherford: Update on plans heading into 2020 (YouTube video, 14 minutes)

Those of you who are fans of Dr. Martin Rutherford and his work at Power Health Reno will be excited to hear he’s working on a new at-home program that sounds like it might be beneficial for those of us with chronic illnesses like fibro and Lyme. I’ll be sure to announce the program when it goes live!

In my opinion, this fibromyalgia video from Dr. Rutherford and his former colleague Dr. Randall Gates is one of the best online explanations of fibromyalgia I’ve ever seen. It’s definitely worth the watch if you haven’t seen it! Dr. Rutherford has a unique perspective on fibro because he actually has it!

This week on FedUpwithFatigue.com…

FedUpwithFatigue.com’s top posts from 2019

FedUpwithFatigue.com's top posts from 2019 #fibromyalgia #Lyme | Fed Up with Fatigue

What Works for Me: Brandi Clevinger

Periodically, I run across testimonials from various chronic illness warriors who share their successes with certain treatments. I don’t usually include this type of content in these weekly news posts because the testimonials are usually dedicated to solving some sort of specific problem and may not have widespread appeal to my audience here on Fed Up with Fatigue.

However, I think it’s valuable for those of us who live with these conditions to share what’s working and what’s not, so I’ve decided to add a new feature to the weekly news posts tentatively called “What Works for Me.” I likely won’t include this feature every week, but I will when I run across something useful.

For my first week, I’ve decided to feature a short video from Brandi Clevinger of Being Fibro Mom and BrandiClevinger.com about how she is supplementing with hydrochloric acid (also called betaine HCl) to manage acid reflux and other digestive issues.

Here’s the link: How one supplement is making a difference in my gut health (YouTube video, 13 minutes)

Productivity challenge

What I’m getting ready to talk about technically has nothing to do with chronic illness, but I know I’m not the only person with chronic illness who struggles to get stuff done on a daily basis.

Last fall, I participated in the Reduce Your Overwhelm and Get Stuff Done Five-Day Challenge from Natalie Meyer at All in Good Time, and I found it helpful for increasing my day-to-day productivity.

A new (and free) five-day challenge starts this Monday, Jan. 13, so I thought I would share it in case any of you are interested. This challenge is NOT specifically geared toward those living with chronic illness but the activities and principles shared are still useful. Register here.

Comments

  1. Dealing with recurrent breast cancer, have completed 35 day course of radiation therapy about a month ago. Was warned I would be more tired about 2 weeks after the radiation stopped, but I am now over a month out, the exhaustion (and there really isn’t a term to cover it-I am to tired to blink my eyes) is profound. Has anyone dealt with this? HOW long does it take to start to get better? My MD says I’m tired because I’m not exercising. Well I am doing the best I can, but literally to tired to walk to the mail box, I force myself-it only gets worse. Any ideas? Please tell me this WILL get better!

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