Fibromyalgia and ME/CFS news (week of Dec. 21, 2015)

For those of you who follow me on Facebook, I finally got my Christmas tree decorated this morning! I kept thinking that I’d do it one evening while watching TV, and I finally realized that if I didn’t tackle it first thing in the morning, then it was never going to get done!

Now, if I can get through the other to-dos on my very long list before my family arrives for a visit next week. Yep, I’ll be one of those crazy people out in the stores tomorrow doing last-minute Christmas shopping. Oh well. There’s always next year to be ready, right? 

Since we’ll have family in town, I won’t be publishing a fibromyalgia/ME/CFS news post next week, but I will have something else for you mid-week. 

I hope each of you have a wonderful holiday if you celebrate. Love you guys, and hope your holiday is as pain-free and stress-free as possible! 

This week's fibromyalgia and ME/CFS news (week of Dec. 21, 2015) | FedUpwithFatigue.com

Top stories …

Good news for Savella users: A generic is coming!

I bet a lot of our federal legislators had no idea this was included in the latest 1,000+ page budget bill: “Congress quietly ends federal ban on medical marijuana”

Nonprofits, bloggers and healthcare professionals form new ME/CFS advocacy initiative.

National Institutes of Health (U.S.) are considering ampligen and rituximab trials for ME/CFS.

From TheMighty.com: “Five Ways having Fibromyalgia Makes You Awesome”

U.K.-based clinical trial will determine if Cymbalta/duloxetine can effectively treat osteoarthritis.

Managing the holidays …

Tips for making the holidays less stressful when you suffer from chronic pain, courtesy of Pain News Network.

“How to Enjoy the Holidays Despite Chronic Pain” from the Community Pain Center.

Surviving the Holidays when You’re in Pain” from Pain Pathways magazine.

Research and treatments …

Sam-E may be helpful in relieving fibromyalgia pain. (I currently take 800 mg of Sam-E as part of my supplement regime. I’m not sure if it helps with pain, but it’s made a great difference in my mood and energy levels. It’s a keeper!)

“Exercise triggers gut changes in ME/CFS,” reports Health Rising.

More motivation to keep that New Year’s resolution to exercise more: “HPA-Axis Dysregulation Modulated by Exercise in Fibromyalgia Patients”

More healthy people are needed for the SolveCFS BioBank and Patient Registry. Here are details on how to participate.

No sex drive? Study finds it could be because you aren’t getting enough sleep.

In case you missed it …

NationalPainReport.com published my story on “How to Use Medical Marijuana without Getting High.” 

By using CBD-rich cannabis products, you can reap some of the medicinal benefits of marijuana without the high. | FedUpwithFatigue.com

Personal stories …

Vancouver (U.S.) women, 77, uses pool therapy to manage fibromyalgia.

British man with ME/CFS, 66, plans to walk from Rome to Jerusalem.

Liverpool woman with fibromyalgia is raising money to purchase a motorized wheelchair, so she can regain some independence.

U.K. ME/CFS sufferer shares five practical ways to show compassion to someone who is continually ill.

Off topic …

Looking for somethingrelaxing to do during your holiday break? I thought some of you might enjoy these 100+ Free Christmas Coloring Pages for Kids and Adults.

These super cute, holiday-theme dog portraits will bring a little Christmas spirit your way.

Ever used spray snow to decorate your windows? Well, this guy is creating stunning art with it! Wow!

Take a few moments to look up: “Full Moon will Light Up Christmas for the First Time Since 1977”

And it turns out there is some science behind all of those full moon myths: “Five Ways the Moon may Impact Your Health.”

Star Wars fan? Then you might enjoy these fun photos of Princess Leia circa 1983.

Each week, I compile the best fibromyalgia and ME/CFS news into one convenient post for subscribers. If you found this post helpful, please subscribe below. You can also visit our weekly news archives


  1. I have been diagnosed with fibro 14 years ago. I successfully have managed it through diet and nutritional supplements. Unfortunately not many physicians are not well versed in causes and homeopathic management of fibro and immediately prescribe meds. By removing artificial sweeteners, and cutting back or eliminating processed food, and finding a physician that takes a proactive approach to monitoring my blood work to effectively adjust my supplements that include adrenal support, liver support, dhea, magnesium and calcium, I have not required any prescription medication and live virtually pain free every day. People with fibro and cfs have different metabolic requirements than those who don’t have these. If you can, find a doctor who understands this concept and work with him/her to change your lifestyle and treat the underlying imbalances in your body to correct the causes of pain, inflammation and fatigue. Do not expect immediate relief. It took me about a month to notice a difference in the beginning, but to live my life free of the constraints of daily pain without medication is definately worth it!

    • Donna Gregory/FedUpwithFatigue.com says

      Hi Amy,
      Like you, I’m taking a more natural approach to treatment now. I’ve been working with a new doctor who specializes in fibro and works w/ patients remotely. Everything he does is natural. I’m on lots of supplements and have completely overhauled my diet. I’m much better than I was when I started working w/ him in August. Not normal, but better. I think it is possible to feel better and manage fibro effectively. So happy to hear that you’ve found the right combination of supplements and diet, so that you’re feeling better!

    • kathy zeitlin says

      Hi Amy,

      Where in the world did you find this dr.~I would love to be able to meet her/him.

      Kathy z.

      • Donna Gregory/FedUpwithFatigue.com says

        Not sure which doctor you’re referring to, but I work with Dr. Rodger Murphree out of Birmingham, Alabama. Here’s a link to a post where I wrote about the protocol that he has me on: https://fedupwithfatigue.com/personal-journey/i-think-im-getting-better/ I’m quite a bit better than I was when I started my work w/ him a few months ago. He works w/ patients remotely all over the U.S. and has been specializing in treating fibro for around 20 years.

  2. margie sanders says

    love reading all your post-happy holidays!

    • Donna Gregory/FedUpwithFatigue.com says

      Thank you! I’m glad that you enjoy my work! I hope you have a nice holiday too!

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