Fibromyalgia and ME/CFS news (week of Nov. 30, 2015)

There’s a lot going on this week at FedUpwithFatigue.com. In case you missed it, there are still a few days to enter the Ultimate Spoonie Giveaway. I’m partnering with several chronic illness bloggers to offer two huge prize packs and three smaller prizes. The contest ends at midnight on Friday. THIS GIVEAWAY IS NOW CLOSED.

Six chronic illness bloggers. Loads of exciting prizes. Enter to win the Ultimate Spoonie Giveaway!

I’ve also created a new facebook group called “What Works for Fibromyalgia.” Yep, I know there are hundreds of fibromyalgia-related facebook groups, but this one is a little different. We’ll be focusing on best practices for fibromyalgia – what actually works to help relieve symptoms. Is there a particular drug or supplement that’s improved your symptoms? A certain diet? Exercise? Body work? Pacing? Please come share your successes, or just come hang out and learn from others! We’re just getting started, so we’d love to have you as one of our founding members

You're invited to join "What Works for Fibromyalgia," a new facebook group focused on treatments and strategies to reduce fibromyalgia symptoms.

Now onto the news …

This week's fibromyalgia and ME/CFS news (week of Nov. 30, 2015) | FedUpwithFatigue.com

Top stories …

Consumer Reports gives us tips on how to bargain shop for Cymbalta and other prescription drugs. In a related piece, a Boston Herald commentary explains why price controls on drugs aren’t the answer to reducing rising prescription costs.

Health Rising’s Cort Johnson shares the story of Carl-Gerhard Gottfries, a Swedish psychiatrist who used a staphylococcus vaccine to treat himself and other ME/CFS patients. (Very interesting read!)

The Federal Trade Commission (U.S.) reaches a $1.35 million settlement with Tommie Copper, a company that falsely claimed its copper-infused compression clothing alleviated the pain of fibromyalgia and other conditions.

Dr. Nancy Klimas from the Institute for Neuro Immune Medicine at Nova Southeastern University (U.S.) is asking ME/CFS sufferers to submit their DNA results for a genetics database.

New survey finds that medical marijuana is great for fibromyalgia, migraines and irritable bowel syndrome, reports NationalPainReport.com.

Research …

More from Health Rising: Here’s an interesting analysis of the past year’s fibromyalgia research studies.

Feeling visual stress after seeing certain repetitive patterns could be a sign that a person has ME/CFS and could be used as a factor for diagnosis, suggests new English study.

Yet another study concludes that fibro sufferers who exercise have less pain.

“Fibromyalgia patients who have low levels of red blood cell magnesium (RBC Mg) are likely to have an adult growth hormone deficiency, and vice versa,” reports Pain Medicine News.

Personal stories …

Therapy dog helps U.K. fibromyalgia/ME/CFS sufferer with daily tasks. (A nice read for animal lovers!)

Montreal (Canada) woman uses “zentangle,” a form of therapeutic art, to help manage fibromyalgia.

Colorado (U.S.) dispensary employee with fibromyalgia uses her knowledge of chronic pain to help others choose the best marijuana strains.

Yoga teacher shares “5 Things I’ve Learned About Chronic Illness Through Mindfulness.” 

U.K. entrepreneur with ME/CFS successfully manages two home-based businesses.

Texas author with fibromyalgia shares ways to cope with pain and fatigue of fibro.

Odds & ends …

You may qualify for handicap parking if you have fibromyalgia or ME/CFS, says About.com’s Adrienne Dellwo.

Part of effectively managing fibro is learning to effectively manage stress. The FibroDaze blog tells us how to choose the right relaxation technique based on our personality.

Could mold exposure be causing or aggravating your ME/CFS? Dr. Charles Lapp discusses diagnosing and managing mold exposure on ProHealth.com.

Action for M.E. survey reveals that many people with ME/CFS in the U.K. aren’t receiving the social care for which they qualify.

Planning to make any Amazon.com purchases? If so, consider shopping through Health Rising’s Amazon store. Just click on the link in this story and then shop as usual. Amazon will donate a percentage of your purchases to support Health Rising’s work. (If you’ve been following me for a while, then you know I’m a big fan of Cort Johnson and his website. He does an excellent job of reporting on the fibromyalgia and ME/CFS community and deserves our support.)

Lyrica’s creator talks about how drug discovery can be serendipitous.

Off topic …

One Good Thing by Jillee shares “clever ways to earn extra holiday cash.”

This smoothie recipe looks delicious, and it naturally lowers your blood pressure!

Make your home smell like the holidays with these natural stovetop simmers from A Beautiful Mess.

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