This week’s fibromyalgia and ME/CFS news (week of Nov. 16)

This week's fibromyalgia and ME/CFS news (week of Nov. 16, 2015) | FedUpwithFatigue.com

I’ve been on my new fibromyalgia doctor’s anti-inflammatory diet for about six weeks now, and I’m learning quite a bit about how diet affects my fibro symptoms. I now know that my digestive system doesn’t respond well to gluten, and I suspect that eating nuts and tomatoes may be increasing my pain levels. If I eat a meal “off plan,” I feel it in my body the next day. I’m more tired, more achy. I ate fairly clean before this diet, but I’ve been amazed by just how much food can affect how I feel. It definitely gives credence to the saying, “Food is medicine.”

Top stories …

Next week is Thanksgiving in the U.S. In preparation, About.com’s Adrienne Dellwo shares a few tips for getting through this year’s day of feast. 

How pharmaceutical companies use free continuing medical education classes to market their drugs to physicians.

Almost 50 percent of fibromyalgia sufferers also have small fiber polyneuropathy, a treatable condition that causes symptoms similar to fibro.

Dr. Dane Cook from University of Wisconsin Madison and the Solve ME/CFS Initiative will present a free webinar this Thursday, Nov. 19, at 1 p.m. ET, on “Post-Exertion Malaise: The Intersection of Biology and Behavior.” Register here. 

In case you haven’t read it yet, here’s a link to the story on ME/CFS that appeared in Oprah’s O magazine.

Research news …

Canadian Rheumatology Association research review finds “no sound evidence for clinicians to recommend that patients with rheumatic diseases take cannabinoid treatments,” but also admits more research is needed.

MitoQ trial for chronic fatigue syndrome, fibromyalgia and mitchondrial disorders begins,” reports Fibromyalgia News Today.

New Journal of Neuroscience study finds mindfulness meditation is better at relieving pain than placebo.

Pfizer studies find that pregabalin’s (Lyrica) side effects are the same, regardless of whether fibromyalgia patients have moderate or severe pain.

Rheumatoid arthritis sufferers with fibromyalgia have more functional declines than those without fibro.

Treatments …

Pain News Network columnist and fibromyalgia sufferer Arlene Grau reviews Neurovative Technologies’ Vibrant pain relief device. Did it work?

Dr. Jacob Teitelbaum gives his opinion on the best medications to control fibromyalgia pain.

Several new medical marijuana dispensaries open in Illinois (U.S.).

Florida chiropractor uses cryotherapy to treat fibromyalgia.

Author and fibromyalgia expert Sue Ingebretson discusses using aromatherapy to relieve fibro symptoms and how to choose the right diffuser.

PACE trial headlines keep coming …

Slate magazine writer and ME/CFS sufferer Julie Rehmeyer gives her take on the controversial ME/CFS PACE trial in her story, “Hope for chronic fatigue syndrome.”

Medical News Today publishes a summary article about the history/background of ME/CFS and what current research tells us about the condition.

An ME/CFS patient activist sounds off: “ME isn’t just ‘exercise phobia’ – it’s a physical illness.” 

Psychosomatic” should not be the default conclusion for those suffering from ME/CFS, says NewStatesman commentary.

Advocacy …

Help keep a longtime ME/CFS clinic in Sweden open by signing this petition.

Personal stories …

Fashion stylist Claire Fabb shares her battle with ME/CFS.

CBS San Francisco gives more coverage to Stanford researcher Ron Davis and his son, Whitney Dafoe, who has severe ME/CFS.

Czech tennis player with ME/CFS beats No. 3 seed at Canberra International competition.

Odds & Ends …

Health Rising looks at the online rankings of 20 well-known U.S. fibromyalgia and ME/CFS physicians. See how they measure up …

This article from Metro.co.uk on “18 things thing you’ll only know if you suffer with chronic fatigue syndrome” received mixed reviews from readers.

Irish fibromyalgia patient settles her disability lawsuit against Irish Life and Baxter Healthcare.

Canadian art exhibit “showcases healthcare obstacles for chronic pain sufferers”

Kudos …

Dr. Nancy Klimas receives prestigious Provost’s Research and Scholarship Award from Nova Southeastern University”

Off topic …

Listen to this organ in Croatia that uses the sea to make hauntingly beautiful music”

The holiday shopping season officially kicks off next week. If you do any of your shopping online, then you may want to check out ebates. Ebates pays cash back for online purchases made at certain retailers. Just register, and then go to ebates.com each time you’re ready to shop online. Search for your favorite retailer, and then use ebates’ link to access that retailer’s website. After you make a purchase, you’ll receive an email detailing how much cash back you earned. Every few months, ebates will cut you a check. 

Speaking of saving money, one of my favorite bloggers, Ruth Soukup from Living Well Spending Less, is offering a free holiday planner this year.

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