02.09.2018

Friday 5: Feb. 9, 2018 fibromyalgia, chronic fatigue and Lyme news

Feb. 9, 2018 #fibromyalgia, chronic fatigue & #Lyme news | Fed Up with Fatigue

1.

Health Rising: The Cortene way | New drug to be trialed in chronic fatigue syndrome (ME/CFS) soon – pt. I

From the article: “A small drug development group will soon be trialing an experimental drug not being used in other diseases in ME/CFS. Time will tell if it will work or not.”

2.

CFS Unravelled: Leah McCullough tells of her CFS fibromyalgia (Gulf War syndrome?) recovery (YouTube video, 28 minutes)

A recovery story! Yes, it’s possible! 

3.

Johns Hopkins: Severe, lingering symptoms seen in some patients after Lyme disease treatment

Those of us with chronic Lyme already knew this, but it’s nice to see it confirmed by a large research center like Johns Hopkins. 

4.

Pain News Network: FDA report calls kratom an opioid

Bad news! If you’re a kratom user, you might want to stock up now. It looks like the FDA is preparing to crack down on kratom.

5.

Pain News Network: High dose opioids targeted under new Medicare rules

From the article: “The Trump administration has proposed new rules that will make it harder for Medicare patients to obtain high doses of opioid pain medication. If adopted, critics say the regulations could force many high-dose pain patients to be abruptly tapered to lower doses, a risky procedure that could lead to severe pain and withdrawal symptoms, or even illegal drug use and suicide.”

And an extra…

Massachusetts Department of Public Health: Dr. Herbert Benson teaches you the basics of the relaxation response (YouTube video, 9 minutes)

An overactive nervous system is one of the hallmarks of fibromyalgia, chronic Lyme and similar conditions. To feel better, it’s important to calm the nervous system and get out of the fight/flight response. This is one way to do it!

This week on FedUpwithFatigue.com…

What to do when you get sick on top of already having a chronic illness

Cold & Flu Survival Guide | What to do when you get sick on top of already having a chronic illness like #fibromyalgia or #Lyme | Fed Up with Fatigue

Comments

  1. Anthony says:

    I had acdf done july 2016. C5-7. And diagnosed with fibro.

  2. Marsha Vomastic says:

    I have fibromyalgia and just found out that I need spinal surgery. Do you have a blog post on FM and surgery? Does anyone have experience with cervical disc fusion?

    Thanks!

    • Donna Gregory/FedUpwithFatigue.com says:

      No, I’m sorry but I don’t have a post on that topic.

    • Teresa. Robinson says:

      Yes I do have experience. I am dealing with Fibromyalgia for 27 years now. I had a Fusion done on the lowest part of my back S1 to F5. I am NOT going to lie it was the worse pain I have ever experienced. I was in a body cast for 6 months. Even after surgery it still took months to get though it. Please make sure they give you Water Therapy versus land because of the Fibromyalgia it is too rough and affects your joints and muscles versus water which takes the pressure off of your joints. Water therapy produces resistance which helps heal you without the pain. God bless you and I will say a prayer for you! Take care!

  3. Katie says:

    As to #4 regarding kratom…..there are no words to describe how I feel about the FDA trying to have the DEA schedule this plant…
    The government is going to find that this ” war on drugs” is going to cause more deaths by eliminating anything they can that gives pain relief to millions. Please stay out of our lives!
    I am a Republican but am becoming a Libertarian more and more everyday.
    (end of rant)!

    • Maureen M. says:

      Katie, I agree. While reading the article I was realizing that no matter what we who live in chronic pain need to help us..the gov’t has a plan to shut it all down! Kratom is not an opioid, as they claim. Hike I’ve read a bunch on Kratom over this past year, I haven’t tried it yet simply because I. can’t find where to buy it and how to begin trying it. I’m fearful to just pick a place online and buy it from them.
      Any suggestions? Maureen

      • Hi Maureen, I buy from a place called wickedtea.com. They have a quite a few varieties…the reds are the relaxing ones that help with pain. They have a number you can call or text or you can order directly from their site.
        Unfortunately, I am afraid the DEA is going to actually schedule kratom due to the pressure from Washington. I have signed petitions & called my representatives in congress….don’t know if this will help. I’ve also noticed that some links to Kratom information are being taken down…don’t know what this is all about.
        Katie

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