Pain News Network: Revised CDC opioid guideline gives doctors more flexibility
Note: The Centers for Disease Control and Prevention (U.S.) is seeking public comment on its revised opioid prescribing guideline through April 11. Please click the link at the end of the above article to submit comments. It’s extremely important for the chronic pain community to submit comments so we’re heard during this process.
From the article: “Although voluntary and only intended for primary care physicians treating chronic pain, the original guideline was widely misapplied as a rigid ‘standard of care’ by many states, insurers, providers and law enforcement, causing millions of patients to be taken off opioids or forcibly tapered to lower doses. As result, many went into withdrawal, became bedridden and disabled, committed suicide or were abandoned by their doctors. And while opioid prescribing declined, drug overdoses soared to record levels.”
Fibromyalgia made the list!
From the article: “…The National Institutes of Health (NIH) announced that the next iteration of NIH-funded ME/CFS research centers would be getting the same crummy funding as the last iteration. Instead of the 20 or so research centers that ME Action noted that National Institute of Neurological Diseases and Disorders (NINDS) Director Koroshetz acknowledged – prior to the coronavirus pandemic – that ME/CFS needs, the ME/CFS community would remain stuck with three small ones.”
This is an investigative piece about the FM/a fibromyalgia blood test and its creator Dr. Bruce Gillis. It raises questions about the accuracy of the test and also discusses a related vaccine study, which was promised to fibromyalgia patients diagnosed by the test. I think anyone who has had the FM/a test or is thinking about it should read this article.
I’ve also included links below to three articles that I’ve written here on Fed Up With Fatigue for those who want more background information on the test and trial.
This article gives an explanation of the test and how it works.
This article discusses the vaccine trial, which was promised to fibromyalgia patients who were diagnosed using the FM/a test. The future of that trial is murky.
This article covers the discovery of a biomarker that was found using funding from EpicGenetics, the company that developed the FM/a test. At the time, EpicGenetics indicated it was postponing the previously mentioned vaccine study because researchers didn’t want to reduce a natural immunity that fibromyalgia patients may have to COVID-19.
From the article: “Through the efforts of Fibromyalgia Care Society of America’s virtual coordinated care program, we are revolutionizing how our community is cared for. This one-of-a-kind program in the state of New Jersey will serve as the pilot model for the rest of the country,” said Mildred “Milly” Velez, founder and executive director of FCSA.
And an extra…
Kate the (Almost) Great: Alike – The best way to feel less alone and better manage your chronic illness journey
From the article: “Alike is a free app that helps you to find people who are, well, like you. You get to connect to patients with a similar background, which could be people with the exact same illnesses as you, people who have the same medical condition(s) and keep a similar diet, people who are on the same medication as you, and so much more.”
Pain Fix webinar…
Dr. Yoni Whitten is hosting a free webinar on Saturday, Feb. 26, at noon ET where he’ll share “Three Secrets to Become Pain Free without Doctors, Drugs or Surgery.” Register here.
(Note: I’ve never attended any of Dr. Whitten’s webinars, so I cannot vouch for whether his content is useful or not.)
Warrior of the Week…
This week’s fibromyalgia warrior of the week is Lorraine Douglas, a U.K. woman who created National Health Service-inspired paintings in recognition of doctors, nurses and other medical staff who have worked throughout the pandemic.
Read more about Lorraine here:
(The sections below contain affiliate links.)
Product of the week…
I included the results of Dr. Jacob Teitelbaum’s latest fibromyalgia/chronic fatigue study using red ginseng in last week’s news post (see #5). This morning, I remembered Amazon sometimes sells Dr. T’s products, and his red ginseng is available!
If any of you try it, let me know if it works!
Migraine device sale…
The Cefaly, a device clinically proven to reduce and prevent migraines, is on sale for 20% off through this Monday, Feb. 28! No promo code is needed.
Read more: What is Cefaly and how does it work?