Pain News Network: Widespread pain raises risk of dementia and stroke
From the article: “While the number of cases was small, researchers found an association between pain and cognitive decline. Participants with widespread pain were 43% more likely to have some type of dementia, 47% more likely to have Alzheimer’s disease, and 29% more likely to have a stroke compared to those without widespread pain.”
From the article: “There are entire online forums dedicated to calling out social media users for supposedly lying about the chronic illnesses they frequently post about. In some cases, victims of these forums claim they’ve been stalked by members in real life. The journalist Octavia Woodward, 23, who has spinal muscular atrophy which gradually limits movement, has been exploring this dark phenomenon for her new BBC documentary, ‘Sickness & Lies.’ Woodward has spoken to several people who suspected that a person close to them had fabricated their diagnosis for financial gain or emotional validation.”
CFS Unravelled: The most destructive myth about fibromyalgia, ME/CFS, POTS and related syndromes (YouTube video, 6 minutes)
Earlier this week, my colleague Dan Neuffer posted this video, which is sure to strike up some debate within the fibromyalgia and ME/CFS communities. After watching, I’d love for you guys to share your opinions on his video. I would just ask that everyone please be kind and respectful! It’s ok to disagree with Dan’s opinion, but that doesn’t mean you have to be disagreeable.
If you resonate with the video, you might want to check out more of Dan’s work. He offers a lot of free resources on his website including introductory videos to his online course ANS Rewire, fibromyalgia and ME/CFS recovery stories (some people used Dan’s ANS Rewire program as part of their recovery, and others took different paths) and a free download of his book, “Discover Hope.”
Scientific American: Inspired by chronic illness, she made award-winning art about the brain
From the article: “Crawford has myalgic encephalomyelitis, also called chronic fatigue syndrome. She says her illness made her ruminate on interoception, the perception of the body’s internal state. People with this condition, particularly those who are afflicted for a long time, report heightened awareness of their body’s inner workings – such as their heartbeat and temperature.”
Note: I posted another article about this in last week’s news post, but this one gives more detail, so I thought some of you might find it interesting. FYI: The article does have quite a few typos.
From the article: “The treatment will now be available as a smart-phone based therapy that can be accessed from the comfort of your own home on your own device. There are primarily two therapies that are available on the app. [The first is] cognitive behavioural therapy, a verbal therapy that allows users to combat their negative thought patterns. Acceptance and Commitment Therapy is also available and helps those suffering from chronic conditions.”
And an extra…
This article gives a nice overview of effective fibromyalgia treatments based on current research. If you’re someone who stays up to date on fibro research, then it’s unlikely you’ll find anything new here, but those who are recently diagnosed would definitely find this helpful as they begin to navigate available treatments.
This week on FedUpWithFatigue.com…
Earlier this week, I announced a major change at FedUpWithFatigue.com! Click here or on the image below to find out what’s happening!
I posted an update on my GoFundMe campaign this week! If everything progresses normally, I will likely be moving down to Virginia in mid-to-late September.
Dr. Jill Bolte Taylor is hosting a free three-day virtual event, “Balance Your Brain: Tools to Overcome Anxiety and Fear,” on Aug. 24-26.
From the registration page: “In this free virtual event with Harvard-trained brain scientist Dr. Jill Bolte Taylor, you can learn practical tools and simple techniques to help you harness the power of your brain to shift away from stress so you can move into a life of peace, joy, and freedom.”
Chronic pain webinar…
Dr. Yoni Whitten will host a free webinar, “3 Secrets to Become Pain-Free Without Doctors, Drugs, or Surgery,” on Saturday, Aug. 28 at 12 p.m. EDT.
The webinar will cover the following, according to the registration page:
- A clear path for permanently eliminating your chronic pain
- Powerful strategies to improve your posture (and why it’s key to fixing pain)
- The #1 factor in fixing pain and how to put it work for you
- How better movement and increased functionality directly translates to less pain
- The counterintuitive “weighting” strategy I use to create perfect posture
- Why your spinal posture is a major factor in your longevity
- How to breathe better and energize your body and more!
Gupta Program webinar series….
Registration is currently underway for the Gupta Program’s next 12-week webinar series. These weekly webinars complement the Gupta Program, a brain retraining program that’s proven to reduce symptoms associated with fibromyalgia, chronic fatigue syndrome and similar conditions.
Ashok Gupta, creator of the Gupta Program, discusses the purposes of the webinar series in this video. Watching the webinar series was one of my favorite parts of participating in the Gupta Program. Listening to Ashok teach is so incredibly calming, and he really inspires the belief that recovery from these conditions is possible!