Pain News Network: CDC seeking comment from pain ‘stakeholders’
From the article: “In a notice published last week in the Federal Register, the CDC said it wants to ‘obtain comment concerning perspectives on and experiences with pain and pain management, including but not limited to the benefits and harms of opioid use.’ Comments are being sought from patients with chronic or acute short-term pain, their family members, caretakers and healthcare providers – what the agency bureaucratically calls ‘stakeholders.’”
NewScientist.com: Could the coronavirus trigger post-viral fatigue syndromes?
From the article: “So is it possible that the coronavirus could trigger similar fatigue syndromes? There are hints from the related SARS virus that this may happen. After the SARS outbreak of 2002 to 2003, some people in Toronto, Canada, who were infected were recorded as experiencing fatigue, muscle weakness and sleep problems up to three years later.”
My colleague Cort Johnson also wrote a really good article on this same topic.
From the article: “The new study examined 90 patients with symptoms of chronic Lyme disease who resided in California or Mexico. Using an innovative test called the line immunoblot, patients were found to have exposure to a variety of tick-borne Borrelia species from the Lyme and relapsing fever families.”
This is likely one reason why standard Lyme testing is so inaccurate. The current testing used by most doctors’ offices only tests for Borrelia burgdorferi, not other strains.
Fibromyalgia News Today: Both pilates and water-based exercise ease pain in fibromyalgia patients, study finds
Note: If you can’t access the article due to Fibromyalgia News Today’s paywall, you can read the full study here.
From the article: “Results demonstrated that both pilates and aquatic sessions significantly improved disease-related quality of life and eased pain. Pilates also improved areas of overall quality of life, such as vitality, functional capacity, and reduced pain and both fear and avoidance of physical activities. In turn, aquatic sessions improved sleep quality and reduced catastrophic thoughts on pain.”
Outbreak News Today: Lyme disease biobank expands into San Diego
From the article: “Bay Area Lyme Foundation, a leading sponsor of Lyme disease research in the U.S., announces the opening of the San Diego collection site of the Bay Area Lyme Foundation’s Lyme Disease Biobank, which is the first program to provide researchers with blood and urine samples from people with early Lyme disease from multiple endemic regions across the country.”
And an extra…
From the article: “As a result of limbic system dysfunction, a person is more vulnerable to developing chronic conditions [such as fibromyalgia and chronic fatigue syndrome]. …There are many strategies a person can implement to improve their limbic system function. Additionally, several programs have been developed to retrain the limbic system. This article will discuss these strategies and programs.”
Free mimosa pudica…
Microbe Formulas is giving away bottles of mimosa pudica – just pay $9.95 shipping. If you’ve been interested in trying mimosa pudica as a parasite treatment, this is a wonderful opportunity to do so since a bottle of this supplement normally runs $45+.
ME/CFS patients needed…
Stanford University is looking for ME/CFS patients ages 18-60 to participate in a chronic fatigue syndrome study at the Stanford School of Medicine. No in-person visits will occur until COVID-19 has resolved, but portions of this study, including screening and consenting potential participants, can be done remotely online.
Eventually, when it’s safe to do so, volunteers will need to complete two study visits, which will involve a blood draw, a brain MRI scan and some questionnaires.
Volunteers will also be compensated $150 for their participation. Please fill out this eligibility survey if you are interested in participating.
If you have any questions, please contact Isabelle Hack, ME/CFS clinical research coordinator, at (650)-503-4668.