Friday 5: April 13, 2018 fibromyalgia, chronic fatigue and Lyme news

April 13, 2018 fibromyalgia, chronic fatigue & Lyme news | Fed Up with Fatigue


New York Times: Many people taking antidepressants discover they cannot quit

NYT did a great piece on the challenges of dealing with withdrawal symptoms when quitting Cymbalta and other antidepressants.


ME Association: Chronic fatigue syndrome possibly explained by lower levels of key thyroid hormones

From the article: “Published in Frontiers in Endocrinology, the study indicates that CFS, a condition with unknown causes, can be explained by lower thyroid hormones – but may be distinct from thyroidal disease. This finding can be seen as a first step to finding treatment for a debilitating illness for which there is no recognized treatment.”


GlobeNewsWire.com: Valneva reports positive phase I interim results for its Lyme vaccine candidate VLA15

From the article: “The company is committed to advance its Lyme vaccine candidate as quickly as possible into phase II, further to requisite dialogue with the authorities. Phase II is currently expected to commence in the second half of 2018.”


MindBodyGreen.com: Every question you’ve ever had about the keto diet – answered

Over the past few months, I’ve had several readers and members of my Facebook group indicate they’ve had a noticeable reduction in symptoms after following the keto diet. Has keto helped you? Share in the comments!


Prohealth: Sinus inflammation, fibromyalgia and ME/CFS

It’s that time of the year! Columnist Celeste Cooper discusses how to manage sinus issues when you have fibromyalgia or chronic fatigue.

And an extra…

Consumer Reports: Bait boxes are a safe way to keep ticks out of your yard

Technically, May is Lyme Disease Awareness Month, but due to climate change, ticks are are now a year-round problem. I had friends on Facebook who were posting pictures of ticks crawling around in the middle of winter this year. Since Lyme is spreading so rapidly now, it may be time to consider tick prevention for your yard.

Coming up…

Dr. Bill Rawls is hosting a webinar on “Lyme Disease Co-infections” on Wednesday, April 18, at 8 p.m. ET. Register here.

Fibromyalgia walks…

Next month, the Fibromyalgia Care Society of America is hosting an online awareness campaign and fundraiser called the iCaterpillar Walk, which includes three physical walks in Newark, New Jersey, New York City and Orlando. If you can’t attend a walk in person, you can still participate as a virtual walker. Click here for registration details.

Proceeds will support the opening of the society’s first Center of Excellence, which will provide comprehensive, holistic fibromyalgia care from competent, understanding medical professionals.

This week on FedUpwithFatigue.com…

The underlying cause of fibromyalgia may be small-fiber polyneuropathy in some patients


  1. Desiree Sheridan says

    Suffering terribly with Fibro. The qualification or supposed reasons fro Fibro make me a poster child. I am now disabled. Had near suicide attempt 5/27/18, Didn’t realize it was the Cymbalta. Went back on a low dose and stabilized somewhat. Feeling better not 100 %. I was on a high dose of Cymbalta. Trying to get off of noneffective Cymbalta and can not. Been trying to taper off for 3 months. Horrific depression. Looking for a Cymbalta attorney and can not find one. Anyone having luck as an individual seeking an attorney or a group class action?

    • Donna Gregory/FedUpwithFatigue.com says

      I’m not aware of any attorneys who are accepting Cymbalta cases right now. I would just try to contact some of your local personal injury attorneys and see if they might be interested in handling your case. I would also recommend joining the Cymbalta Hurts Worse group on Facebook. They have a protocol that people are using to get off of Cymbalta while minimizing withdrawal.

  2. I have tried taking LDN and for a short time I had some good results. I talked to my doctors about the side-effects and he said it is safe to take as long as you don’t overtake it.

  3. Denise says

    Anyone consider or try LDN (low dose naltrexone) for fibromyalgia. Upstate New York doctor has success with treatment for fibro, 80% better. Wants me to try. Got the meds ready to go. Claims autoimmune disorder which affects opioid receptors in body.

  4. Gene test now available at http://www.genebygene.com for mutiple copies of the tryptase Gene called Hereditary Alpha Tryptasemia in ME/CFS Fibro EDS IBS the cost is $169.00 the lab is part of the new NIH-NIAID test by Dr. Joshua Milner’s Team the lab is in Houston, Texas you can email they request the test they will email back forms to you your Doctor must be the one who te contacts them for instructions & ssends your Payment to them then they send the kit to be mailed back there for the DNA testing results

  5. sue mackey says

    I did the Keto Diet for over two years while working with a practitioner. While I lost a lot of weight, which I didn’t need to do, I think it exacerbated my fibromyalgia. I was a lot worse coming out of the diet than going in. About two months into it I started losing my hair. Google Keto or Paleo Diet and hair loss and you’ll see it listed. It could be because of the rapid weight loss. I have also had a very difficult time re-introducing foods back into my diet that were restricted on Keto such as fruits. All in all, I would not recommend a Keto Diet for fibro. Even though I’ve been off it for awhile my pain is worse and my hair loss continues.I wish I had never started it.

Speak Your Mind


This site uses Akismet to reduce spam. Learn how your comment data is processed.

Wordpress content guard plugin by JaspreetChahal.org