Archives for August 2019

08.30.2019

Aug. 30, 2019 Lyme and fibromyalgia news

1. Kate the (Almost) Great: What to do when a doctor isn’t listening to you I bet almost everyone with fibromyalgia or chronic Lyme have experienced this. I know I have many, many times! 2. LymeDisease.org: Lyme patient/physician coalition goes international More than 60 groups from six different countries have united to oppose the Infectious Diseases Society of America's proposed Lyme disease treatment guidelines. This article includes links to the guidelines and info on how to submit your own comments. 3. Fibromyalgia News Today: ASIC3 protein may be involved in … [Read more...]

08.27.2019

How I use medical marijuana for Lyme and fibromyalgia

A few weeks ago, I had a reader ask how I use medical marijuana as part of my treatment protocol for Lyme and fibromyalgia. I probably use medical marijuana a little differently than most people since I primarily use it for sleep and pain relief at bedtime. To explain, I've recorded a video of my current medical marijuana protocol. For those who prefer to read, the gist of the video is this: I generally don't use medical marijuana during the day because I need to be able to function for work. On really high pain days, however, I will sometimes vape marijuana and/or take a THC … [Read more...]

08.23.2019

Aug. 23, 2019 fibromyalgia and Lyme news

1. TheMighty.com: What you need to know about medical PTSD if you're chronically ill I'm not sure if I would label it as PTSD, but there definitely needs to be a term for what happens when the medical community invalidates a patient over and over again. This is a HUGE issue for so many of us - myself included! I tend to walk into most of my medical appointments armed with meticulous notes, printed research studies and a prepared speech, ready to do battle if necessary. It's sad that I feel that way... 2. Centers for Disease Control & Prevention: Updated CDC recommendation for … [Read more...]

08.21.2019

New fibromyalgia & Lyme research studies (August 2019)

You guys liked my first new research summary so much that I've decided to keep doing them every few months! To refresh your memory or for those who are new, the following is a listing of new fibromyalgia- and Lyme-related research studies recently added to ClinicalTrials.gov. Like before, you'll notice a heavy emphasis on lifestyle-related research for fibromyalgia including studies incorporating dance, music therapy and exercise (as always). And also like before, you'll notice there are very few research studies listed for Lyme disease. I guess Lyme is so benign that it doesn't … [Read more...]

08.16.2019

Aug. 16, 2019 fibromyalgia and Lyme news

1. LymeDisease.org: IDSA extends comment period and allows downloads After many complaints, the IDSA has made it easier to read and comment on the proposed IDSA guidelines for Lyme treatment. The deadline to submit feedback has been extended to Sept. 9. 2. HealthRising.org: Rewiring the brain to get out of pain [using] the Moskowitz approach Blogger Cort Johnson explores how one doctor is using neuroplasticity to help reduce or eliminate chronic pain in his patients. 3. Oxford Academic: James H. Oliver, Jr. | Ticks, Lyme disease and a Golden Gloves champion Another … [Read more...]

08.13.2019

Four new fibromyalgia drugs are under development

This article was originally published on Prohealth.com and is being reprinted here with permission from the editor. I’ve never had much luck with big pharma’s solutions for fibromyalgia, but I know plenty of fibro warriors whose lives are improved by medications like Lyrica, Cymbalta, Savella, gabapentin and others. We all wish for that magic pill, so it’s a big deal when pharmaceutical companies announce they’re testing out potential drugs for fibromyalgia. After all, we are way overdue for new pharmacological treatments. It’s been more than a decade since the U.S. Food & Drug … [Read more...]

08.09.2019

Aug. 9, 2019 fibromyalgia & Lyme news

1. Alternative Pain Treatment Directory: Censorship of health information by Google, Facebook, Amazon, government and more My colleague Cindy Perlin gives a nice overview of the recent online censorship of alternative health topics. Some of my cannabis and CBD content fell victim to Google's algorithm change a few months ago, effectively killing about one-quarter of my website traffic. So, yes, this is real ... it's not just some conspiracy theory! You can read more about Google's crackdown on natural health websites here. 2. Fibromyalgia News Today: Fibromyalgia may be … [Read more...]

08.02.2019

August 2, 2019 fibromyalgia & Lyme news

1. Lyme Disease Association: FDA clears new Lyme test The U.S. Food and Drug Administration (FDA) has approved four new tests for diagnosing Lyme disease. A link to the FDA's press release is included at the end of the article. 2. Pain News Network: ‘Opioid of the future’ postponed From the article: "In an SEC filing, Nektar Therapeutics said it received a letter from the FDA on July 23 saying the agency was postponing all advisory committee meetings for opioid analgesics, including one scheduled for August 21 to discuss Nektar’s new drug application for NKTR-181. The FDA was … [Read more...]

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