01.21.2016

Week of Jan. 18, 2016 fibromyalgia and ME/CFS news

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Brain fog has been rearing its ugly (and humorous) head for me lately. Last week, I spent an afternoon feeling like I was going to urinate all over myself. After hours of sitting with my thighs pressed together and running to the bathroom every 30 minutes, I finally realized what had happened: I’d forgotten to take one of my overactive bladder medicines that morning! I’d been wondering if that new medication was really helping. Guess I got my answer!

And then this morning, I was getting ready to leave the house for an appointment. While dressing, I’d looked down and realized I was wearing my purple tennis shoes. I made a mental note: “Make sure you change your shoes before you leave the house!” (I guess you can see where this is headed, right?) When I went downstairs, I again told myself, “You need to change your shoes.” Fast forward 30 minutes later and five miles down the road, and guess what? I was still wearing those purple shoes! They coordinated wonderfully with my turquoise shirt, gray coat and army green messenger bag. Yep, I definitely wasn’t the envy for my fashion choices today…  

This week's fibromyalgia and ME/CFS news (week of Jan. 18, 2016) | FedUpwithFatigue.com

Top stories …

National Pain Report tells us the three best medical marijuana strains for chronic pain relief.

Canadian researchers say gabapentin (Neurontin), pregabalin (Lyrica) and duloxetine (Cymbalta) aren’t very effective as a treatment for chronic pain and are way overprescribed.

Speaking of which … The Advisory Council on the Misuse of Drugs in the U.K. recommends pregabalin (Lyrica) and gabapentin (Neurontin) be rescheduled as Class C controlled substances amid abuse concerns.

Cort Johnson from Health Rising compiles a fantastic resource page for people with fibromyalgia and/or ME/CFS who are struggling with sleep. You’ll find links to research, treatments and other helpful resources. This one is definitely worth the click!

Looking for a change of scenery? Then you might want to consider moving to this Spanish city, which has become the first municipality to adopt a plan in support of people with ME/CFS, fibromyalgia and other central sensitivity syndromes.

Research & treatments …

Israeli study finds fibromyalgia symptoms are worse than other rheumatologic conditions.

There have been several news stories lately on using rituximab as a treatment for ME/CFS, but this commentary says the cancer drug may not be as promising as previously portrayed.

Electrical currents applied to the brain via HD-tDCS can reduce fibromyalgia pain, according to Harvard Medical School study. And if anyone in the European Union is interested in trying tDCS, here’s your opportunity!

Carpal tunnel syndrome is common in women with fibromyalgia.

Odds & ends …

Why Pain News Network guest columnist Staci Dangerfield is afraid to go to her appointment at the pain clinic. No chronic pain sufferer should be made to feel this way …

I found this extremely gentle yoga routine for ME/CFS (YouTube, 27 minutes) this week. It would work just as well for fibro, too.

Think WebMD.com is a trusted source for reliable health information? This commentary might change your mind…

Drugmakers hike prices on Lyrica and other pharmaceuticals, and then say it doesn’t matter because most people don’t pay retail.

From the blogosphere …

From Grace is Sufficient: “5 tips for prioritizing life” when you’re chronically ill

From the Painted Teacup: “The truth behind 5 common chronic illness myths”

From the National Association of Injured and Disabled Workers: “20 ways I ‘fake’ my chronic illness symptoms”

And another one from Grace is Sufficient: “9 kitchen must-haves for the chronically ill” What would be on your list? Comment below!

Personal stories …

Former Miss Universe Australia says she overcame ME/CFS as a teenager.

U.K. business executive says fibromyalgia is a “living hell.”

Off topic …

We all need to treat ourselves sometimes. This post from One Good Thing by Jillie on “how to have a spa day at home” will help you do just that!

It’s Girl Scout cookie season, but before you rip into that new box of Thin Mints, you might want to read this. (Sorry!)

And for those who are still working toward their New Year’s resolution to become more organized, here are “10 decluttering principles to help anyone clear the clutter.”

Each week, I compile the best fibromyalgia and ME/CFS news into one convenient post for subscribers. If you found this post helpful, please subscribe below. You can also visit our weekly news archives

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Comments

  1. I look forward to this post every week. You have a great blog, Donna. I love it.

    • Donna Gregory/FedUpwithFatigue.com says:

      Thanks so much, Sue! I’ve been a big fan of yours for quite some time, so your comment really means a lot!

  2. Has anybody been part of these trials in America or tried NEUROTROPIN in Japan/China?
    Fibromyalgia is a relatively common disorder, which occurs predominantly in women, that is characterized by widespread aching and stiffness in muscles. Although there have been numerous studies of fibromyalgia, its etiology has remained unclear, but it is generally believed that central pain processing abnormalities are involved. Neurotropin, a non-protein extract of inflamed cutaneous tissue from rabbits inoculated with vaccinia virus, has been used extensively in Japan for many years to treat a variety of chronic painful conditions, including fibromyalgia. This present protocol is a double blind, placebo-controlled, crossover study designed to examine the clinical efficacy of Neurotropin in treating women (neither pregnant nor lactating) suffering from fibromyalgia without evidence of any other cause of their complaint of pain. Patients must meet the American College of Rheumatology (ACR) diagnostic criteria for fibromyalgia and must agree to maintain a stable therapeutic regimen throughout the 25-week study.

    • Donna Gregory/FedUpwithFatigue.com says:

      Thanks for sharing this, Shar! I will check it out and maybe share it in a future post.

  3. Robyn Thorne says:

    Staci Dangerfield’s article brought me to tears. I am just to the point of this journey where I have a diagnosis and I have been hesitant and afraid to ask for pain medicines. I have discovered that a mild muscle relaxer helps with the pain but find myself skipping taking it everyday in order to stretch my prescription so I don’t have to get it filled too often, I don’t want to be questioned about overuse. It is shameful that those of us with invisible issues can’t get the same respect in treatment as those with visible illnesses.

    • Donna Gregory/FedUpwithFatigue.com says:

      Yes, her post definitely touched me. So sad for her and for the many others who end up feeling like her. I do not take narcotics for fibro myself, but we have enough challenges as it is w/o having others make us feel like we’re junkies.

  4. Mary Bruder says:

    Electric can opener! My right thumb has minimal diagnosis for arthritis, but maximal diagnosis for pain.

    • Donna Gregory/FedUpwithFatigue.com says:

      That’s a great tool! I have a jar opener thingie that I can’t live without myself! Thanks for sharing!

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