02.18.2016

Week of Feb. 15, 2016 fibromyalgia & ME/CFS news

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I believe that all of us with fibromyalgia and/or ME/CFS are on our own treatment journey. That’s so evident when you ask sufferers what’s helped with their symptoms. There is never a single answer. What works for one of us does not necessarily work for others. 

There are many in the fibromyalgia community (and their doctors) who have chosen the path of using opiates to manage pain. Currently, there’s an ongoing debate over when opiates should be prescribed and the issues of addiction and dependence. People on both sides of the issue are digging in their heels. Pain patients say they need these drugs just to get through the day. On the other side, there are those who say opiates are highly addictive and destroy lives, and we need to curb their use as much as possible. 

This week, while I was reading news stories for this weekly roundup, I came across an article written by fibromyalgia expert Dr. Ginevra Liptan that reminded me of the importance of finding a middle ground in these types of debates. Her commentary “Are opiates really that bad for fibromyalgia?”  shares a common sense approach for using opiates that’s practical, compassionate and addresses the needs of chronic pain patients. I wish more physicians practiced in this way. It doesn’t have to be an all or nothing situation. 

This week's fibromyalgia & ME/CFS news (week of Feb. 15, 2016) | Fed Up with Fatigue

Top stories…

This study has been all over the Internet news sites this week: “Tailored acupuncture might offer some fibromyalgia relief.” (Dona Mercedes Primary Health Center must have a great public relations department.)

Watch what you click or share in Facebook groups: “Facebook pain groups attacked by spammers”

This is the best news you’ll read all day: “Fibromyalgia and chocolate: What new research says about health benefits”

A sweet cure? Chicago woman says her fibromyalgia symptoms disappeared after eating cacao (not to be confused with cocoa) for two months. Now that’s a clinical trial that I’d love to sign up for …

From Grace is Sufficient: Meet “the evil stepsisters of chronic illness” (a little dark humor about the challenges of living with fibromyalgia)

Research & treatments…

From Fibromyalgia News Today: “Fibromyalgia pain may be linked to spinal cord dysfunction, researchers say”

From Alabama Newscenter, a feature story on one of my favorite fibro/ME/CFS researchers, Dr. Jarred Younger: “UAB researcher hoping to solve mysteries of fibromyalgia, help patients break free”

From National Pain Report: “CDC pressured to study medical marijuana as an opioid substitute”

From Fibromyalgia News Today: Research review finds mind/body therapies may be useful in treatment of fibromyalgia

Also from Fibromyalgia News Today: New test can distinguish between fibromyalgia and lupus

Curious about what supplements fellow fibro/ME/CFS sufferers are using for better sleep? Health Rising’s Cort Johnson gives us a list.

A juvenile fibromyalgia study is seeking participants in certain U.S. cities.

Odds & ends …

From Pain News Network: How to use simple breathing exercises to manage chronic pain

From PainPathways magazine: “The surprising benefits of keeping a pain journal”

Personal stories …

U.K. woman with chronic fatigue syndrome brings kindness to others by doling out Valentine’s gifts.

Author Jo Marchant shares an excerpt from her book, “Cure”: “It was like being buried alive – (the battle to recover from chronic fatigue syndrome)”

Competitive skier has pain, fatigue, sleep and gut issues, but doesn’t have fibro or ME/CFS. Find out what she was diagnosed with instead …

New Zealand fibromyalgia and ME/CFS sufferers share the “financial hardships of chronic illness.” 

Kansas woman with fibromyalgia has to leave home after becoming disabled due to black mold exposure. 

From the blogosphere…

A Life Less Physical: “What does fibromyalgia feel like?”

Getting Closer to Myself: “On building playgrounds and baking 1,000 cupcakes,” a post on how big pharma’s TV commercials perpetuate misperceptions about life with chronic illness.

Chronic Mom: “8 reasons fibromyalgia is the worst”

Damsel in a Dress: “20 things I’ve learned from being sick”

In case you missed it …

Earlier this week, I wrote about my journey of going gluten free, how it is reducing my fibromyalgia pain and some research studies that show giving up gluten may benefit some fibro sufferers.

Several small studies link increased symptoms of fibromyalgia and gluten. Read about these studies and my own experience of going gluten free. | Fed Up with Fatigue

Off topic…

“Get relationship advice from the longest-married couple in America” Married 83 years! Can you imagine?

Organizing junkies will really love these clever uses for magazine holders.

I love seeing what people in other countries eat. If you do too, then you might enjoy “10 international breakfasts that are healthier than yours”

Each week, I compile the best fibromyalgia and ME/CFS news into one convenient post for subscribers. If you found this post helpful, please subscribe below. For subscribers, I share even more great news and research on my Facebook page and Pinterest






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Comments

  1. Ruth Nadeau says:

    Tonight I was feeling a little overwhelmed with a gluten attack and fibro attack and my arthritis. I really liked the information that was contained in your website. I am going to review some of my diet and supplements as well. Thanks for your support. Good health to all of us who travel the journey and learn along the way….

    • Donna Gregory/FedUpwithFatigue.com says:

      Thank you for your kind words. I hope your symptoms improve quickly.

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