05.08.2015

This week’s headlines (Week of May 4, 2015)

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rp_thisweeksheadlinespicmonkey-e1430416483374.jpgWhew, there’s a ton of news this week, and I didn’t even include it all! Here’s the best of the week…

EmpowHER has a nice article with tips on how to celebrate Mother’s Day when your mom is chronically ill.

Tired of the lack of research into ME/CFS and fibro? Then conduct your own! That’s now possible with Mendus, a new website that enables patient-produced studies! According to Health Rising, “Researchers provide the guidance. Mendus provides the base of operations. You – the patient community – provides the ideas and the patients. You suggest a study. People sign up for it. You confer with a researcher about how to produce it.

More funding is desperately needed for ME/CFS research. Do your part to support future research by emailing the National Institutes of Health. Cort Johnson’s Health Rising website has done all the work for you – just cut and paste the form letter into your email program and hit send. It only takes a couple of minutes…

This Tuesday, May 12, is International FM and ME/CFS Awareness Day. U.S. residents can find a calendar of events here. There’s a listing for international readers here. (And, be sure to visit www.fedupwithfatigue.com on May 12 because I’ll be hosting several giveaways that day!)

The Whole Balance, a wellness coaching practice founded by fibro warrior Melody Aitken, is offering a free wellness coaching session and nutritional assessment to anyone with fibromyalgia in celebration of International FM Awareness Day. You must book your session by May 12.

Topical BioMedics, the creator of MyPainAway Fibro Cream, is hosting a free pain management webinar on Tuesday, May 12, from noon-1 p.m., on the topic, “What You Need to Know about Fibromyalgia.” More details are here.

The University of Alabama’s Neuroinflammation, Pain and Fatigue Laboratory is compiling a database of individuals who are interested in participating in future fibro and ME/CFS research. (You don’t have to live in Alabama to take part in the lab’s studies.) Take a survey to be added to the database.

The Gottfries Clinic in Sweden has released the results of a new study that shows vitamin B12 and folic acid “can improve to some extent the overall health status of patients with chronic conditions like myalgic encephalomyelitis (ME) and fibromyalgia,” reports FibromyalgiaNewsToday.com.

The National Fibromyalgia Association has redesigned its website.

Author and former law professor Toni Bernhard shares some excellent advice in her blog post, “14 Tips from 14 Years Being Sick.”

Read a beautifully written account of a young woman living with ME/CFS.

That’s all for this week, folks. More to come next week…

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