07.27.2015

This week’s headlines (week of July 27, 2015)

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Top stories…

Is Lyrica 2.0 coming soon to a pharmacy near you? Japanese pharmaceutical company launches new 1,000-patient study in the U.S. and Canada to test the effectiveness of mirogabalin, a drug that works similar to Lyrica. Early reports indicate mirogabalin could be “more potent, have fewer side effects and be longer-acting than Lyrica,” reports Health Rising.

No wonder those of us with fibromyalgia are so darn tired! Georgia researcher conducts sleep study and finds that “people with fibromyalgia are pulling an all-nighter every single night.”

We’ve all been in this situation: Blogger Toni Bernhard shares “4 Tips for Dealing with Unsolicited Health Advice.”

If you’ve been affected by the new federal laws governing opioid prescriptions, then you might want to read Vice.com’s thoughtful piece on “How the War on Drugs is Hurting Chronic Pain Patients.”

Research news …

Stanford University’s Brian Piening explains the Open Medicine Foundation’s Severely Ill-Big Data study for ME/CFS in 3 minutes!

Drink up!?! U.K. study finds that drinking alcohol in moderation reduces disability in people with chronic pain. (My question: Does drinking alcohol really reduce disability, or does the alcohol just reduce your ability to care if you’re disabled?)

And while you’re nursing that rum and Coke, you might as well have a smoke, too (just kidding): Mayo Clinic study shows those with fibromyalgia are more likely to be smokers.

And the good news just keeps coming: Canadian study finds those with fibromyalgia are more likely to be involved in serious motor vehicle crashes.

Shhhhh…it’s a secret: More than half of chronic pain patients don’t tell their doctors when they seek out alternative therapies, like acupuncture or chiropractic.

Are you anxious? Medical researchers may have just identified a new syndrome that links anxiety, pain, joint laxity, the immune system and mood.

Personal stories …

Shameless self-promotion: FedUpwithFatigue.com’s Donna Gregory shares her fibro story on CountingMySpoons.com.

Young woman uses yoga, meditation, diet and other lifestyle changes to recover from ME/CFS.

Treatment news …

This summer, Neurogenx will open its first two U.S. centers – in Hoover, Alabama, and Palm Desert, California – specializing in the treatment of neuropathy.  Neuropathy is a hard-to-treat condition that causes tingling, pain, burning and numbness in the hands and feet and is common in those with fibromyalgia.

Odds & ends …

In case you missed it last week: As part of the Solve ME/CFS Initiative 2015 webinar series, John Hopkins Professor Peter Rowe gave an informative presentation on Inducing Post-Exertional Malaise in ME/CFS: A Look at the Research Evidence.”

Take the Health Rising poll: Do you have progressive ME/CFS?

Vote now and vote often: Canada’s National ME/FM Action Network is competing to win $2,000 for research in the Karma Wellness Water contest. The 20 charities receiving the most votes will be entered into a random drawing, and 10 charities will be awarded a $2,000 prize. Vote daily through Aug. 31. (No registration is required to vote.) Receive a daily reminder to vote by joining the event on Facebook.

Off-topic…

The Washington Post explains why time seems to speed up when we get older.

This YouTube video on how to make your own Larabars combines two of my favorite things in life: food and saving money.

If you’ve got school-age kids, then you’re getting ready to shell out a sh-a-load of money on back-to-school gear. Save a few dollars by shopping during these tax-free weekends.

Looking for a new way to workout? Check out these fun playgrounds for seniors!






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