07.20.2015

This week’s headlines (week of July 20, 2015)

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rp_newsgraphic-1024x6201-1024x620-1024x6201-1024x6201-1024x620-1024x620.jpgTop stories…

Has your physician ever refused to run a particular diagnostic test that you wanted? Soon, you won’t need your physician’s lab order any longer! A new service coming to more than 8,000 Walgreens drugstore locations in the U.S. will allow you to run your own blood tests at an affordable cost.

About.com’s Adrienne Dellwo reports on the findings of an editorial review on central sensitivity syndromes, including fibromyalgia and ME/CFS. “It’s one you want to make sure all of your health-care providers have seen,” she says.

New treatments…

A Newport Beach, California, medical center is offering a new treatment for ME/CFS called Transvascular Autonomic Modulation (TVAM). During the minimally invasive procedure, nerve fibers are stimulated, helping to modulate the autonomic nervous system. (Note: After posting this, I had a reader send me this warning from the American Autonomic Society regarding TVAM: “The scientific rationale for this procedure is not well described, nor does there appear to be any clear evidence supporting the use of this technique in a diverse group of autonomic disorders.”)

Israeli-based OWC Pharmaceutical Research Corp. has filed U.S. patents for two new cannabis-based treatments for fibromyalgia and migraines.

Research news…

An online program helps those living with chronic pain better manage their conditions, a Washington State University study finds.

As if we didn’t have enough problems sleeping already … Italian study finds that fibromyalgia is common in patients with sleep apnea.

Proove Biosciences has found a genetic variant in the serotonin receptors of patients with fibromyalgia. The finding suggests medications that increase serotonin levels may improve symptoms in some fibro patients.

A new study shows hepatitis B patients have a higher incidence of fibromyalgia.

Fibro and ME/CFS in the news…

A South Carolina couple uses their Ford Mustang to raise awareness for fibromyalgia.

Fibromyalgia makes this list of the top most misdiagnosed conditions.

Personal stories…

Veteran science writer Brian Vastag pens a heartfelt letter to National Institutes of Health Director Francis Collins, sharing what it’s like to live with ME/CFS and calling for more research funding.

BBC Bristol presenter John Darvall shares the story of Naomi, a woman from Hanham (U.K.) who has been living with ME/CFS for the past 25 years. He later shares his thoughts on Naomi and her family on his blog and writes a follow-up post here. (He was “shocked” and “heartbroken” by the response Naomi’s interview received. Naomi’s story obviously touched him deeply.)

YouTube star and musician Emma Blackery shares her ME/CFS diagnosis with 900,000 of her closest friends.

Blogger Suzan Jackson shares “5 Things I’ve Learned from Living with Chronic Illness” on Mamalode.com.

So many of us can relate to blogger Andy Williams’ latest post, “Crying Quietly in the Shower.”

Off-topic

This video is for anyone who has ever struggled to meditate. (Warning: Don’t click this link if you’re offended by foul language.)

If you can’t stomach anything containing gluten, I have some good news for you: “Gluten pill may allow celiac disease sufferers to enjoy pizza, beer.”

Massachusetts state health officials say Lyme disease is an epidemic.

Researchers discover a strain of seaweed that tastes like bacon and is healthier than kale!

As a follow-up to last week’s news post, I’ve found some clean slow cooker recipes for readers who avoid “tins and packets.” And here are a few more.






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