08.11.2015

This week’s headlines (week of August 10, 2015)

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Top stories …

Eli Lilly & Co. has won round one of a legal battle against patients who allege the company hasn’t been forthcoming about withdrawal symptoms from Cymbalta, an antidepressant commonly prescribed to treat fibromyalgia.

Good news for those with ME/CFS: Hemispherx Biopharma and myTomorrows are partnering to offer an Early Access Program to supply rintatolimod (tradename Ampligen) for the treatment of ME/CFS to patients with an unmet medical need in Europe and Turkey.

Research news …

Quality of life is worse for people with ME/CFS than those with cancer, multiple sclerosis and other conditions, Danish study finds.

In case you missed it last week, I wrote a blog post on “Why D-Ribose May Become Your Next Favorite Supplement.” This sugar made naturally by the body and available in supplement form has been found in studies to increase energy levels by up to 61 percent in patients with fibromyalgia and ME/CFS.

Cognitive behavioral therapy helps reduce insomnia and sleep disturbances in those with fibromyalgia.

Gabapentin has been used off-label to treat fibromyalgia nerve pain for years, but researchers spend time and money to confirm its effectiveness anyway.

Persons with multiple sclerosis and comorbidities like fibro and IBS are likely to experience more pain and fatigue, say Canadian researchers.

Living with FM/ME …

The British Association for CFS/ME, a voluntary organization representing the clinicians and researchers involved in the specialist NHS services, has published a new 32-page therapy and symptom management guide for ME/CFS.

Wondering how to get started with exercise? Maybe you could try gentle stretching. Counting My Spoons shares three rules of stretching and a series of stretches to try each morning.

U.K. author Greg Crowhurst announces the release of “Severe ME: Notes for Carers,” a guide for caregivers of those with severe ME/very severe ME.

Dr. Charles Lapp, a leading U.S. specialist in FM/ME, gives his recommendations on the best supplements to help with fibro and ME/CFS.

Free stuff …

Nutritionist Niki Gratrix is hosting a free week-long “Abundant Energy Summit” focusing on alternative approaches to address chronic fatigue. “The summit reflects Niki’s eclectic approach to ME/CFS and similar disorders, which is focused on functional medicine and nutrition with a special emphasis on the gut and mind/body and energy enhancing techniques,” reports Health Rising.

A couple of months ago, I provided a link to Dr. Rodger Murphree’s free Tuesday night teleseminars for those with fibromyalgia. I’ve attended several of his teleseminars and have found them very helpful – so much so, that I will be working with Dr. Murphree over the next six months as one of his patients.  Click here to learn more about Dr. Murphree and his free Tuesday night calls. (For my international readers or those who can’t make the “live” teleseminars, Dr. Murphree’s calls are recorded each week and available for online streaming.)

Personal stories …

Have you ever thought about what you wish you could say to your pre-sick self? The National Fibromyalgia & Chronic Pain Association answers that question in this letter titled, “What I Wish I Had Known About FM.”

U.K. woman plans to walk 200 miles to raise awareness of fibromyalgia.

Odds & ends …

IBS is so common among those with fibromyalgia that I thought I’d share this funny from BuzzFeed: “17 Times Art Perfectly Captured What IBS Feels Like.”

Dr. Toni Bernhard shares “Top 10 Health Tips That Have Never Worked for Me.” I’m sure we’ve all tried some of these…

Marijuana may be legalized in Australia this month, reports Russia Today.

The CVS/Caremark prescription drug plan will no longer cover Cymbalta starting in 2016.

Off-topic …

The Food Babe just keeps ruining certain foods for me. This time, she tells us “Why Chewing Gum Destroys Your Health.”






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