09.22.2015

This week’s fibromyalgia and ME/CFS news (week of September 21, 2015)

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Week of Sept. 21, 2015 fibromyalgia and ME/CFS news

Top headlines …

“New draft guidelines by the [U.S.] Centers for Disease Control and Prevention (CDC) would – if adopted – sharply reduce the prescribing of opioids for both chronic and acute pain in the U.S.,” reports Pain News Network. (This story may be alarming for anyone who takes opioids for pain.)

Hemispherx Biopharma is now offering a Patient Assistance Program for the open-label AMP-511 study of Ampligen® in ME/CFS patients. The company recently announced Ampligen’s first cost increase in 17 years. The Patient Assistance Program will enable patients in the open-label study to continue to receive the drug through March 2016 at the same cost as when they entered the study. Hemispherx also recently published a study on which patients might be more responsive to Ampligen therapy.

A federal judge in California has transferred three lawsuits involving 69 patients who are suing Eli Lilly & Co. over Cymbalta’s withdrawal symptoms to Indiana, where the company is based.

Healthline.com has choosen its “Best Fibromyalgia iPhone and Android Apps of the Year.”

This week on HealthRising.com, Dan Neuffer explores the question, “Do People Really Recover from ME/CFS and Fibromyalgia?” Recovery stories have been popping up all over the Internet the past few months. Did these people really beat fibro/ME, or did they even have it in the first place?

Research news ….

Fibromyalgia patients are at an increased risk of coronary heart disease, says Taiwanese study.

Small study shows that KPAX002, a combination of methylphenidate hydrochloride [Ritalin] and mitochondrial support nutrients, is “worthy of additional investigation” as a potential treatment for ME/CFS. (A link to the full study is here.) The U.S. Patent and Trademark Office just recently issued a patent for KPAX002.

Miami (U.S.) study links fibromyalgia to prior gynecological surgeries, such as hysterectomy.

Activity pacing self-management (APSM) improves the performance of daily life activities among women with ME/CFS, according to new Belgium study.

Adolescents with juvenile fibromyalgia have greater pain, poorer physical function, increased anxiety/depression and require more medical visits than their healthier peers, says new Cincinnati (U.S.) study. (I think we all could have predicted this study’s outcome. Am I the only one who wonders why they waste research dollars on studies with obvious results?)

In the media …

Australian Women’s Weekly‘s August issue includes feature story on ME/CFS.

Vice.com (U.S.) addresses the complexities of fibromyalgia in “Female Pain: Living with an Illness that No One Believes In.”

Personal stories …

New York fibro warrior becomes environmental watchdog after her diagnosis … believes pollution caused her illness.

Helpful links …

Could your drugs be making your fibromyalgia worse? Dr. Rodger Murphree addressed this question during a July teleseminar. (Scroll down to the conference call recording from 7/28/15.) In this recording, he systematically goes through many of the drugs commonly prescribed for fibromyalgia and talks about if they might be aggravating symptoms. (Full disclosure: I’m a patient of Dr. Murphree’s.)

ArogaYoga.com answers “Does Yoga Help Fibromyalgia Pain?” There’s also a link to a very gentle, 20-minute yoga sequence (video) for chronic illness sufferers.

Curious about the Quell pain device? National Pain Report columnist J.W. Kain tries it out and gives us a review.

Since so many of us with fibro have digestive issues, I had to share Prevention.com’s “7 Things Your Poop Says About You.”

Upcoming event …

Dr. Alan R. Light, research professor of anesthesiology, neurobiology and anatomy at the University of Utah, will host a free online webinar on “New Developments in ME/CFS Research” on Thursday, Oct. 15. Registration information is here.

Interviews …

Prohealth.com features a written interview with fibromyalgia and chronic myofascial pain expert Devin Starlanyl. Devin’s books, “Fibromyalgia and Chronic Myofascial Pain: A Survival Manual” and “Healing through Trigger Point Therapy: A Guide to Fibromyalgia, Myofascial Pain and Dysfunction,” are well-loved and well-read by some in the fibro/ME community.

Dr. Charles Shepherd, medical adviser to the British ME Association, talks about the lack of treatment options for ME/CFS during Manx Radio interview.

Off-topic …

I think Audrey Hepburn is one of the most beautiful women ever, but apparently, she was wise, as well! Career Girl Daily compiled a few of Hepburn’s best bits of advice in “Important Life Lessons from Audrey Hepburn.”

Eating too much sugar is a big fibro trigger for me, but apparently aches and pains aren’t the only things I’m avoiding when I’m not pigging out on donuts and ice cream. Here are “7 Things that Happen When You Stop Eating Sugar.”






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