09.29.2015

This week’s fibromyalgia and ME/CFS news (week of Sept. 28, 2015)

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This week's fibromyalgia and ME/CFS news. Week of Sept. 28, 2015.

Top stories …

This could be a huge breakthrough for the fibromyalgia community: “Neuroscientists at Georgetown University Medical Center and Germany’s Technische Universität München say they’ve uncovered the brain malady responsible for tinnitus and for chronic pain,” reports News-Medical.net.

UK mom says HPV vaccine caused her daughter’s CFS, reports the Ilford Recorder.

Blogger Julie Ryan from CountingMySpoons.com explores why we doubt fibromyalgia and ME/CFS recovery stories.

An attorney gives a simplified explanation of why 60+ Cymbalta withdrawal lawsuits have been moved to Indiana federal court.

Lots of research news …

Ultrasound technology could be helpful in the treatment of fibromyalgia and other chronic pain conditions, says Washington (U.S.) researcher.

Health Rising’s Cort Johnson details an interesting case study in which a former physician with ME/CFS tracks his lactic acid levels after walking to his bathroom. The results are fascinating and can be found in “How walking to bathroom can be harder than running a marathon: A doctor’s ME/CFS case study.”

Brazil study finds no difference in lactic acid levels between fibromyalgia/migraine patients and healthy volunteers.

Joint Norway/German study gives clues on why some ME/CFS patients respond to Rituximab and others don’t.

Low red blood cell magnesium and insulin-like growth factor 1 levels linked to fibromyalgia, according to small Ohio study.

There’s more evidence that low vitamin D levels may be contributing to fibromyalgia pain.

Personal stories …

U.K. woman who was previously bed bound with fibromyalgia is training for 5K run (and a possible marathon one day).

U.K. teen advocates for more understanding of invisible diseases, such fibromyalgia and ME/CFS.

Helpful links …

Registered nurse Celeste Cooper gives “6 Reasons Why Trigger Point Injections Aren’t Helping Your Fibromyalgia.”

Many of us with fibromyalgia and/or ME/CFS can become supplement junkies, trying to find the right formula to ease our pain and fatigue. Dr. Jacob Teitelbaum explains why we don’t need to become a member of the “handful club” and which supplements are most helpful for fibro and ME/CFS.

If you have ME/CFS and issues with insomnia, then you may want to check out “The Best Sleep Aids for ME” from the blog Living With Chronic Fatigue Syndrome. (It might also be helpful for those with fibro.) In it, the writer discusses recommended sleep aid protocols from different ME/CFS experts, as well as what he’s tried and what’s actually worked for him.

Oregon (U.S.) researcher offers “recommendations for resistance training in patients with fibromyalgia” in new editorial.

In case you missed it …

If you’re taking Cymbalta for fibromyalgia, then you may want to click over to my new post, “Quitting Cymbalta? What You Need to Know Before You Take That Last Pill.” About half of patients who stop taking Cymbalta experience withdrawal symptoms, prompting several U.S. law firms to file a class-action suit against Cymbalta’s maker, Eli Lilly & Co. My post gives a rundown on what withdrawal symptoms are being reported and includes some helpful information for people who may be thinking about getting off of Cymbalta. It’s my hope that this post may help someone avoid going through painful withdrawals.

Quitting Cymbalta? What you need to know before you take that last pill

Odds & Ends …

DePaul University (U.S.) professor Leonard Jason makes a case for why myalgic encephalomyelitis is a better choice of name than CFS or SEID and addresses differences in criteria for diagnosis.

If you’re living in the U.S. and taking Cymbalta, then you (or your insurance company) may be paying way more than patients in other countries, according to a new International Federation of Health Plans report.

The National Fibromyalgia & Chronic Pain Association and International Myopain Society will offer live streaming of next month’s TAP Chronic Pain Conference for those who aren’t able to attend in person.

Prince Edward Island (Canada) residents aren’t getting full access to the provincial catastrophic drug program, leaving many fibro and other patients to either pay out of pocket or go without needed medications, according to The Guardian newspaper.

Off topic …

Cooler weather is moving into the Northern Hemisphere, and that means it’s pumpkin latte season! This DIY version is cheaper and healthier than Starbucks.

DustyOldThing.com posts some interesting, albeit not very appetizing, vintage recipes from the 1950s and 60s (with photos). Did you ever eat Shrimp Aspic, Monterey Souffle Salad or Wagon-Wheel Pie (with Spam)?

Each week, I compile the best fibromyalgia and ME/CFS news into one convenient post for subscribers. If you found this post helpful, please subscribe below. 






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Comments

  1. Very helpful post. Thank you so much for your support at the Fibro Friday link up and all you do for Fibromyalgia awareness.

  2. mischief says:

    I am a fibromyalgia patient from uk and find all this very interesting have suggested that my members in our group look at your site

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