11.25.2016

Friday 5: Nov. 25, 2016 fibromyalgia and ME/CFS news

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Before I jump into this week’s fibromyalgia and ME/CFS news, I need your help!

FedUpwithFatigue.com has been nominated for Healthline’s Annual Best Health Blog Contest!

I’m so honored to be a part of this year’s contest. The winners will be selected based on votes, and I’d really appreciate it if you’d take a minute to vote for me! To vote, click right here, scroll down a bit on the page, type “fed up with fatigue” into the search box and then cast your vote. You can vote once a day through Dec. 12. Thank you so much! Now on with the news…

Nov. 25, 2016 fibromyalgia and ME/CFS news | Curated weekly by FedUpwithFatigue.com

1.

HealthRising.org: The Cannabis Science fibromyalgia pain patch: Fact or fiction? 

It seems there’s more to the story behind the recent announcement that Cannabis Science is developing a cannabis pain patch for fibromyalgia. 

2.

Fibromyalgia News Today: Easy meal and snack ideas for low-energy days

3.

Prohealth.com: Productivity values that get in the way of our health

A lot of us with fibromyalgia and/or ME/CFS are perfectionists and high achievers, but those personality traits can be detrimental when we’re living with chronic illness. This article really spoke to me this week because I’m struggling with this issue, and maybe you are, too…

4.

Grace is Sufficient: 7 holiday survival tips from the top chronic illness warriors

This post is from 2014, but the tips are still worth the click! 

5.

Bateman Horne Center: Global report of progress with Lucinda Bateman, M.D.

Dr. Lucinda Bateman, founder of the Bateman Horne Center, gives us an update on the global progress made in ME/CFS research.

And an extra…

Pain News Network: Lady Gaga turns up the heat to fight chronic pain

This isn’t specific to fibromyalgia or ME/CFS, but still interesting to read how she manages her chronic pain. Who knew? 

This week on FedUpwithFatigue.com…

This year's Chronic Illness Bloggers Holiday Giveaway is ginormous! Enter to win 11 prize packs, each valued at $400-$600!

I've been using Quell for fibromyalgia pain for several months, and it's now my No. 1 tool for pain relief. It's the best thing I've found so far for fibromyalgia pain.

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Comments

  1. Trudy Schuett says:

    This is so weird I hardly know where to begin. But I had to ask somebody if this might be one of those uncommon symptoms of fibromyalgia.

    Here’s what happened: I live in farm country, and our house is close to the intersection of two canals. Every couple of years, they clear out weeds and and junk that may have fallen in, etc. They use really big digging equipment, like you’d see in a big road constuction project; it takes a day or a little longer to clear a mile or so of canal.

    I guess I must not have been home in the past when they got close to our house. One day last week I was, and the noise from this machine was indescribable!

    I knew it was there but they hadn’t started work as I got my morning tea and wandered around in the yard for a bit. Then after I got back inside, I sat down in the office to check my email and whatnot, but then the noise started. Here’s where it gets weird. I was so freaked out by the noise I was completely immobile. My phone rang and I couldn’t answer it. The only thing I could do was put my head down on the desk and cry. It felt like a physical attack. It lasted the better part of half an hour, before the machine moved away and the noise wasn’t as bad, but it took me all day to get over it. I felt like I’d run a marathon or something.

    This is usually a quiet place to be. Unfortunately, it’s harvest season here in Arizona and so we’ve got all kinds of activity outside, 24 hours a day. There are trucks and irrigation pumps pretty much all the time, and crop dusting planes overhead at night. Ever since that incident I seem really sensitive to noise of any kind, and I’m having trouble sleeping because every little thing now seems to wake me up.

    We’ve been gradually packing to move, (we hope to be moved by Christmas) so I guess I’m more tired than usual. I tried some valerian to help me sleep, but even though it’s been my standby thing for years, it now seems to hang on too long, and then the problem becomes how to stay awake and function in the daytime.

    So I wonder if anybody has ever had something like this happen before. More important: is there anything I can do about it?

    • Donna Gregory/FedUpwithFatigue.com says:

      It’s pretty common for people w/ fibro to be extremely sensitive to sounds, smells, visual clutter, etc. I think it has to do w/ our overactive nervous system – there’s just too much coming at us at one time. But your episode sounds really extreme – I’ve never heard of it incapacitating someone to that degree before. I’m sorry you had to go through that – it sounds terrifying. I would definitely research it online and see if you can find some answers, and also mention it to your doctor (don’t be surprised if he tries to prescribe anti-anxiety medicine b/c from my own experience, that’s the typical response when patients mention that kind of thing.).

      • Trudy Schuett says:

        Yes, it was bad, but at least I know it’s part of this thing that seems to have invaded my body ;>) Most of the time I can control it with herbs, meditation and an anti-inflammatory diet. I’m not as debilitated as some are! Even so, it’s still not as bad as rheumatoid arthritis, which I was originally diagnosed with in 1984.

        I do appreciate your reply – it was helpful! I’ll mention it to the doc when I finally get there. We’re moving 200 miles away (we hope in time for Xmas!) and I’ll be starting up with a whole new set of everybody. I’m going to be seeing a traditional osteopath at a medical school, and I hope to get some new insight!

    • I am sensitive to noise, too. I can relate to you very much.
      My cousin has fibromyalgia too, and her sensitivity to all loud noises is off the charts! I understand.

  2. I just voted. Good luck!

    Sue

  3. Yo your link to your quell article is broken, it’s linking to http// not http:// (missing the 🙂

    • Donna Gregory/FedUpwithFatigue.com says:

      Thanks for letting me know! I fixed it and it’s working now.

  4. Josephine Francis says:

    I went to the website to vote for you, but it would not take my vote.
    Do you know why?

    • Donna Gregory/FedUpwithFatigue.com says:

      I know others have told me they are having problems voting, too, and other bloggers are having the same issue. I’m sorry. I’ve emailed HealthLine to complain, but they have not responded back. I appreciate you trying to vote for me. Hugs to you!

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