05.10.2017

May 10, 2017 fibromyalgia and chronic fatigue news

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Quick note: I have a special International Fibromyalgia Awareness Day post publishing on Friday, May 12, so I’m sending out this week’s fibromyalgia/chronic fatigue news a couple of days early.

May 10, 2017 fibromyalgia and chronic fatigue news | Fed Up with Fatigue

1.

Fibromyalgia News Today: Pilot study reports beneficial effects of ambroxol for fibromyalgia pain

From the study: “…ambroxol was associated not only to decreased fibromyalgia pain but also to improvement in other bothersome fibromyalgia features such as sleep disturbances, stiffness, and dysautonomia symptoms.”

2.

The Health Digest: 8 ways your home is making you sick

#4 on the list at the link causes symptoms similar to fibromyalgia and chronic fatigue and could be an underlying cause for some people’s symptoms.

3.

Prohealth: How my “be kind to yourself” mantra helped me accept my chronic illness

Blogger Laura Chamberlain shares a simple strategy to help quell the negative self talk surrounding life with chronic illness. 

4.

Not Standing Still’s Disease: 11 health care mistakes you don’t know you’re making and how to avoid them

I bet a lot of us are doing some of these. I know I’m guilty! 

5.

HealthRising.org: Death Rider – A (hopeful) mold illness story

This is a longer article on mold illness and how it can mimic fibromyalgia and chronic fatigue. I’m in the process of having my home tested for mold. I’m praying for a negative result! 

From FedUpwithFatigue.com’s archives…

Since I’m publishing the news early this week, I thought I would feature an older post from my archives. I wrote this soon after starting my blog, so I never got the exposure it deserved. Ever wonder why you didn’t get results from Lyrica or Cymbalta? This is why…

The three drugs approved by the U.S. Food & Drug Administration to treat fibromyalgia - Lyrica, Cymbalta and Savella - aren't much better than sugar pills, according to research.

 

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Comments

  1. Im taking my self off of cymbalta. Feel like killing myself. Please for all of you who are suffering from fibro or taking cymbalta. Know the side effects and what to expect when going off of it. Have someone to confide in so you don’t kill yourself.

    • Donna Gregory/FedUpwithFatigue.com says:

      Are you on Facebook? I would suggest joining the Cymbalta Hurts Worse group. They have a protocol to help people get off of Cymbalta while minimizing the withdrawal symptoms. I am not a medical professional but from talking to others who have gone through this, they usually find it easier to go back on Cymbalta for a time and then try to wean off very, very slowly using the Cymbalta Hurts Worse protocol. People are generally successful w/ that protocol. You’ll obviously want to work w/ your doctor on this. What you’re going through is very serious. You mentioned suicide … I know of at least one incident where that occurred.

  2. Barry Burt says:

    I enjoy reading your blog. My wife has had fibro for 20 years and we have been together for 3. It has been quite a journey for us both. I am now privy to a while new world I wasnt previously aware of.
    Something I would like to see on your blog is a piece (or more likely a series) on psychological resiliency, coping mechanisms and acceptance techniques. And, also helpful would be advice and suggestions for spouses/partners of people living with fibro. I know I have had a difficult time sometimes and Im certain Im not the only one. Whatever helps to make things easier for those with fibro and those who love them.
    Thanks

    • Donna Gregory/FedUpwithFatigue.com says:

      Thank you for the suggestions. I’ve added them to my post ideas list. I know my fibro friend Julie Ryan over at Counting My Spoons has written on quite a few of the topics that you mentioned. You might want to also check out her blog at http://www.countingmyspoons.com. Gentle hugs to you and your wife.

  3. I wanted to let everyone out there who has a lot of inflammation to know about a product that is really helping me! the product I am taking is called PEA for short. it is an endogenous fatty acid amide which has been shown to have anti-inflammatory neuro protection.and anti-convulsant properties.Its a natural product which our bodies make, but with lots of inflammation we need more of it. I found this out from an article describing the use of PEA and its wonderful results from a doctor in Ca. She is a neurologist and treats a lot of people who have fibro and other similar illnesses. The use of PEA is described in Wikipedia and has been known about and used since 1975!! Its full name is Palmitoylethanolamide. I am on my third order of the product and I swear its the ONLY supplement that has really helped me. I really hope people will try it.

    • Donna Gregory/FedUpwithFatigue.com says:

      Thank you for sharing, Connie! I’ll be sure to check it out!

    • Hi Connie,
      Can you please tell me the doctors name in California. I would like to call her and see if I can try the PEA. So far nothing has worked for my pain In 4 years and I’m getting desperate. Thank you!

  4. Aidan says:

    Mold has absolutely nothing to do with Fibromyalgia all Mold are theories unproven theories by Quack Doctors selling useless Products maybe the truth will come out on Radiation Sickness found by Competent Radiobiologist from Hamilton, Ontario, Canada this Mold theory must drop from playing any role in illness it is total quackery

    • Donna Gregory/FedUpwithFatigue.com says:

      I respectfully disagree. Mold can and does make people sick.

    • Angela Schamp says:

      Mold may not have any ties to Fibromyalgia but mold can make people sick and can be deadly. I lost a dear friend to a lung condition caused by breathing in mold spores. Living in damp climates or near waterways can create an environment for toxic mold to grow.

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