03.09.2016

Week of March 7, 2016 fibromyalgia and ME/CFS news

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I am so happy that spring has finally arrived on the East Coast! For those of us in the northern hemisphere, hopefully the warm weather will help to ease some of our aches and pains and boost our spirits. We had a mild winter here in Delaware compared to others, but it feels like the cold has been rattling my bones for months. I’m so over it! I’ve had my office windows wide open the past couple of days, and this perfect, sunny weather is making me a bit stir crazy. I just might have to take my laptop and other supplies out on the front porch and work there a bit. Wishing you lots of soft, warm breezes and daffodils

This week's fibromyalgia and ME/CFS news (week of March 7, 2016) | A new ME/CFS diagnostic test is on the way; a THC patch is under development for fibromyalgia; actor Morgan Freeman discusses his fibromyalgia and much more!Top stories …

The National Institutes of Health now has a website dedicated to information about the upcoming Intramural Study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Patient enrollment begins this summer.

Time sensitive: The Solve ME/CFS Initiative is hosting its first 2016 webinar on Thursday, March 17, at 1 p.m. ET. Dr. Susan Levine will discuss “The Future of ME/CFS.” This event is free. Register here. 

From Pain News Network: “Sherri’s story: A final plea for help” The tragic story of a chronic pain sufferer who took her own life because her suffering was too great.

Making progress: Fibromyalgia News Today gives us a few more details on a test that can differentiate between fibromyalgia and lupus.

Research & treatments …

Combining opiates with an opiate blocker, like ultra low-dose naltrexone, may reduce fibromyalgia pain.

#MEAction Network publishes a nice summary of what we can expect from NIH’s intramural ME/CFS study.

Bel Marra Health: “Fibromyalgia pain relief using vibration exercise shows promise, regular exercise considered safe”

Fibromyalgia News Today: “Fibromyalgia pain may also result from neurogenic inflammation of peripheral nerves, review argues” 

HealthRising.com tells us about the exciting fibromyalgia and ME/CFS research studies taking place within Dr. Jarred Younger’s neuroinflammation lab at University of Alabama at Birmingham.

In case you missed it, here’s a replay of Dr. Younger’s YouTube chat from last week where he answered questions about his research.

Psychotherapy helps patients manage fibromyalgia, according to new research review.

Cannabis news …

Which states allow medical marijuana use for fibromyalgia? Leafly.com gives us a list…

More information on a new THC patch for fibromyalgia

Virginia legislators pass bill to legalize marijuana-based CBD oil.

And Utah’s bill to legalize medical marijuana dies in committee.

From the blogosphere:

Chronic Mom: “7 harmful myths about chronic pain”

February Stars: “3 supplements that can help to improve sleep in fibromyalgia sufferers”

Counting My Spoons: “How can you be positive when you live with chronic pain”

JBOT: “Trip planning with a variable health condition” (tips for planning and going on vacation)

The Girl with Five Lads: “Walk in my fibromyalgia shoes if you want to” (a fellow fibromite shares what day-to-day life is like with fibro)

A Balanced Belly: “Why chronic illness is not a competition”

Personal stories …

“Mom with fibromyalgia writes children’s book to explain chronic illness”

Michigan woman with fibromyalgia and ME/CFS opens gluten-free bakery

Odds & ends …

From Stat News: “Drugmakers now spend $5 billion a year on advertising. Here’s what that buys.” One interesting fact from the story: Pfizer spent $328 million on advertising for Lyrica in 2015, making it the second most advertised drug in the United States.

Tips for doing housework when you have fibromyalgia or ME/CFS. (For additional reading, I previously shared “20 helpful tips for cleaning and organizing when you’re chronically ill.”)

Prohealth.com: “Foods that ease the pain and fatigue of fibromyalgia”

Four habits that could be aggravating your fibromyalgia symptoms.

TheMighty.com: “18 people describe what chronic fatigue syndrome feels like” 

 

Off topic …

Slate.com: “The Netherlands hosted an over-the-top flower parade featuring floats inspired by Van Gogh” (These are pretty incredible!)

iHeartOrganizing.com: The best phone apps to help simplify your daily tasks

Bored with broccoli? Here are “6 ways to be more veggie adventurous” 

More fibromyalgia news …

If you’re interested in reading more fibromyalgia and ME/CFS news, then you might like these:

Week of Feb. 29, 2016 fibromyalgia and ME/CFS news

Week of Feb. 22, 2016 fibromyalgia and ME/CFS news

Week of Feb. 15, 2016 fibromyalgia and ME/CFS news

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Comments

  1. My state of SC will be one of the last to approve cannabis for pain, although I am surprised that they approve the oil for a disease. I’m so glad there is a kids story book about chronic pain/fibromyalgia. I was saying last year that I wish there was a story book that explained it to kids. It’s not complicated, and told on a level that kids can understand.

    Thank you for sharing at Chronic Friday Linkup! #chronicFridayLinkup

    • Donna Gregory/FedUpwithFatigue.com says:

      Thank you for hosting the linkup! I’ve shared it w/ other chronic illness bloggers. Hope it helps!

  2. I love these roundups, so many great resources in one place. Thanks for the mention!

    • Donna Gregory/FedUpwithFatigue.com says:

      Glad you like them! I’ve been sharing some of your posts on my facebook feed, too.

  3. Brilliant round-up as always. Thanks so much for the mention.

    • Donna Gregory/FedUpwithFatigue.com says:

      Thanks! So glad that you liked it! I’ve been sharing some of your posts on my facebook feed too.

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