03.17.2016

Week of March 14, 2016 fibromyalgia and ME/CFS news

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The other day I was looking at my blog traffic stats for the past few months, and they confirmed the obvious: You guys really like the posts focusing on treatments and tips to reduce fibromyalgia symptoms. And then I noticed something else that wasn’t as obvious to me: My weekly fibromyalgia news roundups get a lot less traffic than my treatment-related posts do. 

So I’ve decided to switch things up. Starting next week, I will be reducing the weekly news posts to twice a month. Making this move will free up some time so I can write more of the posts that you all find useful. And of course, as always, I’ll be sharing any extra content that doesn’t make it into the bimonthly news posts on my Facebook page and on Pinterest!

I hope you’ll like the change. 

This week's fibromyalgia and ME/CFS news (week of March 14, 2016) | CDC releases new opioid prescribing guidelines, and chronic pain patients aren't happy; tips for securing work when you have fibro/ME/CFS; what it's like to sleep with chronic illness; research news, personal stories and much more!

Top stories …

The U.S. Centers for Disease Control releases new opioid prescribing guidelines, and pain patients react negatively as predicted.

Now this is funny (and I bet every single one of us has our own version of this script): “Why am I awake? Sleeping with chronic illness” from fellow blogger Chronic Mom.

“Must see” chronic fatigue syndrome documentary “Forgotten Plague” has been released to DVD, iTunes, Google Play and Amazon Instant Video.

Now who thought of trying this in the first place? Using human placental extract to treat ME/CFS

Why those of us with chronic illness should consider making a NOT to do list.

A lot of us with fibromyalgia and ME/CFS aren’t able to hold a typical 9-5 job due to the severity of our symptoms. My friend Julie over at Counting My Spoons gives us some alternatives for “working with chronic illness.”

Research & treatments …

Fibromyalgia News Today: “Younger adult fibromyalgia patients at increased risk of stroke, according to study”

Tonix releases more data on Tonmya, a sublingual form of cyclobenzaprine (Flexeril) that’s undergoing trials as a potential fibromyalgia treatment.

“Bateman Horne Center collaborates on NIH-funded study to identify ME/CFS antibody biomarkers”

From HealthRising: Gluten sensitivity in ME/CFS sufferers leads to NIH-funded gut study.

How supplementing with vitamin B12 may make fibromyalgia symptoms more manageable

Personal stories …

NFL player Dominique Easley made the cover of this quarter’s PainPathways Magazine for his work in building awareness for fibromyalgia. Easley’s teen sister was diagnosed with fibromyalgia in 2011.

Team USA member John Nuyen gives us a first-person account of what it’s like to be a man living with fibromyalgia.

Odds & ends …

From Brainless Blogger: “5 reasons people give you advice about your illness.” (They’re really not trying to tick you off – at least most of them aren’t.)

Registration is open for the Third Annual U.K. CFS/M.E. Research Collaborative (CMRC) conference in Newcastle this September.

#MEAction will hold its first protest in Washington, D.C., on May 18.

In case you missed it…

Prohealth.com republished my post, “Playing the chronic illness blame game: Why you shouldn’t ignore that new symptom” 

Off topic (an ode to St. Patty’s Day this week)…

Mother Nature Network: “7 surprising facts about St. Patrick’s Day”

I’d love to hear from my Irish subscribers if this article is accurate: “How to celebrate St. Patrick’s Day like the Irish” 

In case you’re spending the day in front of the tube: “16 must-watch films set in Ireland in honor of St. Patrick’s Day” and a list of “10 great Irish films” 

More fibromyalgia news …

If you’re interested in reading more fibromyalgia and ME/CFS news, then you might like these:

Week of March 7, 2016 fibromyalgia and ME/CFS news

Week of Feb. 29, 2016 fibromyalgia and ME/CFS news

Week of Feb. 22, 2016 fibromyalgia and ME/CFS news

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Comments

  1. Even though you may be getting lower traffic from these posts, I’m glad you’re not doing away with them. I thoroughly enjoy them, and always click through to the fibro related news, research, and treatments. Thank you for being a great source of information!

    Thanks for sharing at Chronic Friday Linkup! This was pinned to the Chronic Friday Linkup board at https://www.pinterest.com/beingfibromom/chronic-friday-linkup/

    • Donna Gregory/FedUpwithFatigue.com says:

      Glad you like them. I will definitely continue doing them b/c I think it’s so important for us to keep up to date on what’s going on w/ the research and within the larger fibro community.

  2. I love the idea of making a Not To Do list. I really do think that it would help me to give myself permission to cross some things off my list. I already have a to do list where I can see how much I do actually do. It’s surprising how many little things we do and forget to give ourselves credit for.
    Thanks for the round up.
    Cath xx

    • Donna Gregory/FedUpwithFatigue.com says:

      I think it’s a great idea, too. I’ve been giving some thought lately to all of the things on my “to do” lists (yep, as a typical type A, I have multiple lists) and wondering are they really that important or are there better/easier ways to do them. Chronic illness changes our perspective.

  3. Hi there! I make videos on youtube to connect with others that have fibromyalgia and other “invisible” diseases. Love all the great info you share on here!

    • Donna Gregory/FedUpwithFatigue.com says:

      I checked out your YouTube channel and subscribed! Happy to meet another spoonie who is raising awareness.

  4. Thank you for including my post 🙂

    • Donna Gregory/FedUpwithFatigue.com says:

      You’re welcome! Thanks for putting out such great content!

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