07.14.2017

Friday 5: July 14, 2017 fibromyalgia, chronic fatigue and Lyme news

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I just wanted to take a quick minute to thank the many people who emailed and commented to me last week about my back injury. I’m happy to report that I am feeling better. I’m still in pain but it’s no where near as intense as it was. I saw a chiropractor a couple of times last week with only minimal improvement. I finally broke down and went to my nurse practitioner on Monday, who prescribed a few days of prednisone (yes, I know that stuff isn’t good but I was desperate for relief in any form!) and a muscle relaxer for the pain. The meds are helping quite a bit, and I’m hopeful that most of the pain will be gone by early next week. 

My nurse practitioner ordered an x-ray, and unfortunately I added a couple of new diagnoses to my ever-growing list. The x-ray showed I have narrowing of my spine (stenosis), scoliosis and am in the early stages of osteoarthritis. I need an MRI to determine if I have any issues with my discs, etc. 

For now, my plan is to finish out this course of prednisone and then make a decision whether to proceed with the MRI. From what I’ve read online, the treatments for stenosis and osteoarthritis mirror those of fibromyalgia: physical therapy, anti-inflammatories and exercise. Sometimes there are surgical options but obviously I’d like to avoid that if possible. 

If you’ve dealt with a similar back issue, I’d love to hear what helps you the most to manage it. Again, thank you guys so much for understanding the short break from posting content last week, and I hope you all are feeling as well as possible today. Gentle hugs! 

July 14, 2017 fibromyalgia, chronic fatigue and Lyme news | Fed Up with Fatigue

1.

Health Rising: An immune disease? Low dose naltrexone (LDN) fibromyalgia study suggests FM has inflammatory side

Research is finally beginning to confirm what some of us have long suspected: Fibromyalgia may be linked to immune system dysfunction.

2.

Skillfully Well & Painfully Aware: The three best diets for fibromyalgia, according to science

Which diet is best for reducing fibromyalgia symptoms? Katarina from Skillfully Well delves into the research. 

3.

Prohealth: Bee venom therapy proves to be useful for treating Lyme disease

Could you bear the initial pain if it meant long-term pain relief in the end? 

4.

U.S. News & World Report: Guided exercise may help chronic fatigue patients

A new study supports the use of guided exercise for chronic fatigue. 

5.

Insider Monkey: 11 best places to live with arthritis and fibromyalgia in the U.S. 

Been thinking about moving for symptom relief? Here are some possibilities! 

And an extra:

Cutter: New Cutter™ Lyme disease tick test provides quick, inexpensive and 99.0% accurate DNA test result

Just in time for the height of tick season, Cutter releases a new product to determine if a tick has Lyme disease. This would be a good addition for a home first aid kit. 

This week on FedUpwithFatigue.com…

How mindfulness can ease your chronic pain | Fed Up with Fatigue

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Comments

  1. StevefromMA says:

    Hi Donna,

    Just heard with little notice, not sure how to post this. I will be on Ch. 5 news on Thursday at 5 EDT talking about my experience with fibromyalgia in a way that will hopefully get medical types and regular people to understand. It’s preceded by a few minutes of two separate interviews by blood test/cure (hopefully) creator M.D. and the MGH immunologist who will administer it way down the road. I haven’t seen anything. They are hopeful it will get to ABC National News. I was told it will be available on demand at WCVB.com Thurs and I may get a more direct link for it.

    • Donna Gregory/FedUpwithFatigue.com says:

      That’s fabulous news, Steve! The TV stations normally post all their interviews on their websites so please, please, please send me a link…you can either comment here or email it to me. If you get my emails, just hit reply to one of them! I’m excited to see it!

  2. Elizabeth says:

    Help with Cymbala (sp ?) withdrawal, please.¡

    • Donna Gregory/FedUpwithFatigue.com says:

      I would suggest joining the Cymbalta Hurts Worse group on Facebook. They have a protocol that some have been using to get off of Cymbalta.

  3. Maureen says:

    HI Donna, I’m happy to hear that the prednisone is helping and you are on your recovery road now! Yay!
    I have some old prednisone from an old lung issue and while I noticed it helped my back pain also…it kept me up all night nad I couldn’t stop doing things around the house 24/7! Lol
    I did get a lot accomplished, but my chronic back/spine pain came rushing back when I stopped it. 😕
    Be well and thank you for coming back so fast! Rest up!

    • Donna Gregory/FedUpwithFatigue.com says:

      I suspect the same thing is going to happen to me, too. I’m on my last 2 days of pred, and the pain is increasing b/c I’m not taking as many pills during the day. I’m probably going to be calling my doctor about the MRI on Monday. 🙁

  4. I have been sick since the early 80’s. I have cervical spinal stenosis from C4 to C6. I have been told surgery is not an option. I use a Dr. Ho (TENS machine) to loosen up muscles that get very tight from the strain. I also sleep on cervical pillows (which I replace usually between 1 and 3 months, because the support wears out). I do stretches for neck and shoulders. When I can afford it, I go for a massage (Thai Yoga Massage seems to be the best so far). These things help a bit. Accupuncture (Chinese) and Chiropractic help some what, but the expense is prohibitive.

    I find it funny (odd, not haha) the more I learn, the more it seems people with Fibromyalgia/ME have so many other things wrong, as well. It seems to take a long time to figure out what else is wrong. Where to begin managing symptoms? Argghhh!

    Doctors don’t understand, and because they don’t, they offer little help other than drugs.

    • Donna Gregory/FedUpwithFatigue.com says:

      Thank you for the suggestions! Yeah, it’s rare to find someone w/ just fibro. It seems like we collect diagnoses. 🙁

  5. Terry Van Hooser says:

    I have Intractable Pain from a botched back surgery, Fibromyalgia, PTSD, Chronic Migraine, Severe Depression, Panic Attacks, and Chronic Lyme Disease. My DAILY, FULLY MEDICATED pain level stayed at a 7 constantly. I see a Pain Management Specialist and I have been on 100 mcg. of Fentanyl and 80 mg. of Oxycodone (plus a plethera of other meds) for 8 years. I have never even asked to have my meds raised. I live in Arkansas, so very recently the DEA and the State of Arkansas has forced all Doctors to stop writing all of our pain scripts for our regular amounts and we are to be “weaned off” our OPIOID meds until we are down to the equivalent of 250 mg. of Morphine. What good will THAT amount of pain meds do when I constantly stayed at a 7 fully medicated on 100 mcg. of Fentanyl and 80 mg. of Oxycodone per day plus Tizanadine, Lidocaine patches, etc., etc.? I’ve already been lowered to 75 mcg. of Fentanyl and 50 mg. of Oxycodone and my pain levels are up to and 8.5. I stay in bed unless I HAVE to get up and go to the bathroom! When I asked my doctor what we’re supposed to do for the chronic pain, she shrugged her shoulders and suggested Tylenol or Advil. Can you believe it? If THAT crap had worked to begin with, I wouldn’t have needed the Opioids, now would I???? And to top it off, Arkansas voted to approve Medical Marijuana. The other side of the sword is though….if I get my Medical Marijuana card…I have to give up my 2nd Amendment Rights for the rest of my life. How fair is that? Should I just forego the card and just buy off the streets? Should I forget it all and just go ahead and commit suicide, since that seems to be what the DEA & the State of Arkansas wants us to do anyway? We aren’t heroin users who overdosed, but that’s who blew up the statistics so that we, as CHRONIC PAIN med users, have to pay the price for. This isn’t fair for any of us, and I would plead for all people in Chronic Pain to contact their Congressional Representatives and Senators to REPEAL this stupid, unfair law before all of us with chronic pain end up dead!

    • Donna Gregory/FedUpwithFatigue.com says:

      It’s immoral how our government is treating chronic pain patients. I continue to read horror stories, like yours, pretty much every day. I feel for you and what you’re going through.

  6. Sue Skidmore says:

    I went for physical therapy for my spinal stenosis. I made sure the therapist knew I had fibromyalgia. I went two times a week for six weeks. This really helped me and I try to keep up with the exercises at home.

  7. Jackie says:

    My husband has narrowing of the spine and I believe a bone spur on his spine. He goes to the chiropractor once a month and I do reflexology on his feet 5-6 days a week. It works really well if you can find someone who does it.

    • Donna Gregory/FedUpwithFatigue.com says:

      Thank you for the suggestions, Jackie.

      • I would suggest you see a Neurologist Pain Management Doctor. They are the best!! All the test you had done would have been done in there office so Doctor could look as test is happening.
        I have had three back fusion surgeries, also have narrowing of spine. Lupus very active, Fibro. Pulmonary Fibrosis. I have been with a Nuro Pain Doctor for over ten years. Last year I finally received surgery to put a Boston Scientific Spinal Stimulator for Pain. It was the best thing I have ever done for myself. I would say it takes care of 90% of pain. You can go to Boston Scientific to learn all about it. I wish you all the best.
        Kimberly

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