12.17.2015

Fibromyalgia and ME/CFS news (week of Dec. 14, 2015)

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I’d like to welcome all of FedUpwithFatigue.com’s new members! I had a sizable jump in subscribers earlier this week after the National Fibromyalgia Association shared my post, “20 Helpful Tips for Cleaning & Organizing when You’re Chronically Ill,” on Facebook. I’m so grateful that you read my work and found it helpful enough to subscribe! 

As a subscriber, you’ll receive these news posts each week, where you’ll find the latest fibromyalgia/ME/CFS headlines about research, treatment, advocacy, useful tips/advice, personal stories and much more! I see these news posts as a service to the fibromyalgia and ME/CFS communities, saving you time from having to find this info on your own. 

This week’s news post has links to lots of meaty stories, including several new fibro treatments under development. Hope you find it interesting! 

This week's fibromyalgia and ME/CFS news (week of Dec. 14, 2015) | FedUpwithFatigue.com

Top stories …

This could be a big development for fibro sufferers: Study finds combo of famciclovir (tradename: Famvir, an antiviral drug commonly used to treat herpes) and celecoxib (tradename: Celebrex, commonly used for arthritis) effectively treats fibromyalgia.

Great news: U.S. Centers for Disease Control & Prevention restores $5.4 million in funding for ME/CFS research.

Dr. Oz does a segment on “self-diagnosing” fibromyalgia. I’m sure Dr. Oz means well, but this really didn’t help our cause …

Drug addicts are using gabapentin, a common fibro treatment, to get high.

Florida (U.S.) fibromyalgia sufferer sentenced to three years in prison after robbing three banks in 30 minutes. Says Lyrica affected her moods.

Here’s a fun craft to do with all those empty pill bottles! (In all seriousness, you can donate them. Click link and scroll down near the bottom.)

It’s time to speak out! The (U.S.) Centers for Disease Control and Prevention is accepting public comments again on its controversial draft guidelines for prescribing opioids for chronic pain.

Porn stars live with invisible disabilities and deal with discrimination, too. (Warning: This link includes foul language and sexual content.)

Research and treatments …

Here’s more information on Tonmya, a low-dose sublingual form of Flexeril that’s undergoing clinical trials as a new treatment for fibromyalgia.

Another patient survey shows marijuana is effective in treating fibro pain.

Fast Company does a feature story on Quell, a new over-the-counter wearable device that purports to relieve chronic pain and has been used successfully by some fibro sufferers.

I’m sure most of us know all about this: Study finds “fibromyalgia symptoms can include breast pain.”  Duh.

I don’t even know how I feel about this one: AVACEN Medical has developed a device that warms the blood in the palm of the hand, and that heated blood supposedly reduces fibro pain. Huh? (Here’s a link to the actual study.)

The Colorado Springs Gazette publishes a feature story on watsu, an aquatic therapy that might be helpful for fibromyalgia.

More bad news for Pfizer: Lyrica is not effective for cancer-induced bone pain.

In case you missed it …

Prohealth.com published my story on “20 Helpful Tips for Cleaning & Organizing when You’re Chronically Ill.”

We’ve got a great group of members over at the What’s Working for Fibromyalgia facebook group! The focus is on sharing what has worked to help relieve our symptoms. We’ve had some great discussions so far and would love for you to join us! Just click on the link or the graphic below.

You're invited to join "What Works for Fibromyalgia," a new facebook group focused on treatments and strategies to reduce fibromyalgia symptoms.

Odds & ends …

ME/CFS’ new name (which hardly anyone is using) makes Digital Journal’s list of top science stories for 2015.

Health coach and founder of the CFS Health Centre in Australia explains why we need to stop trying so hard to get better.

Could what you watch on TV be aggravating your fibro/ME/CFS symptoms? About.com’s Adrienne Dellwo explores how our entertainment could be stressing us out.

Off topic …

Need some holiday cash? Check out these “29 Ways to Earn Extra Cash Fast” by LivingWellSpendingLess.com.

The hunt is on, and the clock is ticking: “Where to Find Stocking Stuffers that Won’t Break the Bank.” 

Save time and energy by making  7 freezer slow cooker meals in one hour!

A dream come true for Harry Potter fansChristmas dinner is served inside the Great Hall at Hogwarts!

Each week, I compile the best fibromyalgia and ME/CFS news into one convenient post for subscribers. If you found this post helpful, please subscribe below. You can also visit our weekly news archives

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