10.06.2015

This week’s fibromyalgia and ME/CFS news (week of Oct. 5, 2015)

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This week's fibromyalgia and ME/CFS news. Week of Oct. 5, 2015.

Top news …

Judge orders Hobby Lobby to stop discriminating against transgender employee with fibromyalgia. The craft store chain refused to let a longtime employee use the women’s restroom after she transitioned.

The crackdown continues: Over-the-counter codeine-based pain relievers may soon require a prescription in Australia.

Free event! The (U.S.) Centers for Disease Control & Prevention has invited Dr. Charles Lapp from the Hunter-Hopkins Center and Dr. Bruce Campbell, founder of the CFIDS & Fibromyalgia Self-Help Program, to discuss “Managing ME/CFS/SEID: Learning to Pace” during a one-hour conference call on Thursday, Oct. 8, at 4 p.m. ET. Click here for call-in details.

Utah State University student wins third place in national slam poetry competition for her poem, “Take Cymbalta.” Here’s a YouTube video of winner Jordon Roberts performing her poem. Enjoy!

Stanford University ME/CFS researcher and his severely-ill son are featured in the Washington Post: “With His Son Terribly Ill, a Top Scientist takes on Chronic Fatigue Syndrome.”

The Solve ME/CFS Initiative wants to share the stories of ME/CFS sufferers as part of its new “Humans of ME/CFS” campaign. Click here for submission details.

The cost of fibromyalgia drug Lyrica has increased 51 percent over the past three years, reports BloombergBusiness.com. And FiercePharma.com reveals how “Drug Price Hikes [are] a Tried-and-True Strategy for Who’s Who of Big Pharma.”

Pain News Network columnist Emily Ullrich discusses how the risks of taking non-opioid medications, like Lyrica and Neurontin, are often minimized by doctors and others.

Research news …

Tonix Pharmaceuticals will present three abstracts on the use of sublingual Cyclobenzaprine as a fibromyalgia treatment during the 2015 American College of Rheumatology/Association of Rheumatology Health Professionals Annual Meeting in November.

Canadian study finds medical cannabis is safe for chronic pain sufferers who are experienced marijuana users.

Feedback on the new ICD10 fibromyalgia code …

Last week, fibromyalgia finally got its own line item in the ICD10 medical coding system. National Pain Report’s Dr. Ginerva Liptan proclaimed the code means “the health care industry finally recognizes fibromyalgia.”

Blogger Rosemary Lee asks, “Can the Fibromyalgia Code Fix Stupid?

And yours truly from FedUpwithFatigue.com says there’s nothing “new” about this code. “Sometimes a code is just a code.”

Why the "new" ICD10 fibromyalgia diagnosis code doesn't really matter

Sad news …

Dr. Austin Darragh, one of Ireland’s leading ME/CFS experts, has passed away at age 88. He co-authored the International Consensus Criteria on ME (2011) and the International Consensus Primer on ME (2012).

Dr. A. Martin Lerner, a longtime U.S. ME/CFS specialist, passed away earlier this week after battling cancer. He was 86 years old. Dr. Lerner held five patents for the diagnosis and treatment of ME/CFS.

Fibro and ME/CFS in the media …

HuffPost blogger promotes “Forgotten Plague,” a “must-see documentary” on ME/CFS.

Writer Athena Hobson answers the naysayers in this short, conversational piece entitled, “Chronic Fatigue Syndrome: What Is It Really Like?

U.K. woman talks about her life before and after ME/CFS, reported by the Swindon Advertiser.

Illinois’ (U.S.) medical marijuana users are mostly older females with fibromyalgia or cancer, reports the Northwest Herald.

Helpful links …

Author Dr. Jacob Teitelbaum gives some tips on how to begin exercising if you have fibromyalgia or ME/CFS.

The Fibromyalgia Athlete shares “Five Ways to Eat Well on a Micro Budget.”

Harvard Medical School physician says tai chi could be “medication in motion” for those with fibro.

Looking for a doctor who treats fibromyalgia or ME/CFS? Dr. Bruce Campbell tells us how to find one. (There’s also a section on locating support groups.)

Teen writer G. Stewart on “How to Deal with Being a Student with Fibromyalgia.”

Vote …

Canada’s National ME/FM Action Network is once again competing in the Aviva Community Fund competition and has a chance to win up to $100,000 for ME/FM research. But they need your votes! Public voting is open from Oct. 6-23.

Off-topic …

I’m carrying on the fall-theme this week with “20 Perfect Pumpkin Recipes for Fall.”

Are you constantly forgetting to take your meds? These RX Timer Caps will help get you back on schedule. (This is not an affiliate link. I’m just passing this along because I think it’s a neat invention and might be helpful for some people.)

Yep, I know Christmas is still more than two months away, but I couldn’t help myself. These Charlie Brown Christmas postage stamps are just too cute! (Again, not an affiliate link. Just sharing because they’re so sweet!)

Each week, I compile the best fibromyalgia and ME/CFS news into one convenient post for subscribers. If you found this post helpful, please subscribe below. 






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