02.11.2016

Week of Feb. 8, 2016 fibromyalgia and ME/CFS news

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I haven’t felt fibro foggy over the past few weeks, but evidently I’m wrong

Earlier this week when I got in the shower, I washed my hair, shaved my legs and washed my face. As I was toweling off, it occurred to me that I couldn’t remember if I’d actually washed my body or not! I had to hop back in the shower to make sure I completed the job! 

Then yesterday, the mail arrived, and a letter I’d sent off last week came back undelivered. Apparently, I’d forgotten to put a stamp on it and thought the magical post office fairies would deliver it to its destination. In 40+ years on this Earth, I can’t remember ever forgetting to put postage on a letter. (But maybe I’m just forgetting that, too…

Have you had any funny fibro fog moments this week? Share in the comments!

This week's fibromyalgia & ME/CFS news (week of Feb. 8, 2016) | Fed Up with Fatigue

Top stories …

Those with ME/CFS are six times more likely to commit suicide than their healthy peers, according to The Lancet.

“Valentine’s gift ideas for a loved one with chronic illness” – and here’s my own Valentine’s gift guide for fibro and ME/CFS

These nuns grow medical marijuana…(FYI: They aren’t Catholic…)

Some of these are hilarious: “If your fibromyalgia could text you, it might look like this”

This isn’t specifically fibro/ME/CFS related, but still thought some of you might find it interesting: “The top 50 [U.S.] hospitals that gouge patients the most”

Research & treatments …

From Pain News Network: “Chronic pain and weather study under way”

From HealthRising.com: A review of the small nerve fiber problems in fibromyalgia

Fibro sufferer says the guaifenesin protocol has given her hope

More from HealthRising.com: “The NIH Clinical Center Study for Chronic Fatigue Syndrome (ME/CFS): the Good, the Bad and the Just Plain Weird”

Oregon study finds link between severity of fibromyalgia symptoms and increased pelvic floor/urinary issues.

From the ME Association: “Clamour grows for independent inquiry into the PACE Trial”

Spanish study suggests psychologically stressful events may be a primary trigger for the onset of fibromyalgia.

From the blogosphere …

A Life Less Physical: “Your fibromyalgia toolkit”  “A list of 10 resources that you can pass on to anyone and everyone to educate and describe and share your experiences as a fibromyalgia sufferer. It’s ideal for your new boss, a new friend, your partner or a new sufferer.”

Grace is Sufficient: “9 tips to help clear brain fog” (Maybe I need to implement some of these, huh?)

Chronic Mom: “8 things other people have taught me about my chronic illness”

Being Matt: “7 ways to thrive with chronic fatigue syndrome and fibromyalgia.” 

Counting My Spoons: “What those with chronic illness wish healthy people understood”

Cannabis news …

From Civilized: A physician’s explanation for how cannabis manages pain

Puerto Rico fibromyalgia sufferers will soon have access to medical cannabis.

Alabama (U.S.) advocates rally for access to medical marijuana.

Personal stories …

The Independent (Ireland): “I feel betrayed by the State after paying tax all my life.” Irish man waits more than 18 months to see a rheumatologist for fibromyalgia treatment. (And I thought the U.S. healthcare system was bad …)

U.K. ME/CFS sufferer changes careers and now makes award-winning cakes. (He does beautiful work…)

A daughter’s love: 17-year old U.K. teen who has mom with fibromyalgia will skydive to raise funds and awareness for the condition.

Prohealth.com “Police harass bedbound ME/CFS patient who started petition for care facility”

U.K. fibro sufferer is searching for her missing owl after severe storm.

Canadian woman with fibromyalgia skates with the Kamloops Blazers ice hockey team.

Bad news …

We’ve lost another one: Temple University ME/CFS researcher passes away at age 90.

Cymbalta blamed for double murder in Illinois.

Off topic …

‘Tis the season: “Fun facts about Valentine’s Day candy.” (Warning: food porn)

From Buzzfeed: “43 life-changing books you need to read.” 

Feeling the winter blues? Here are “8 ways to naturally beat seasonal affective disorder.”  And guess what? There’s chocolate involved…

Each week, I compile the best fibromyalgia and ME/CFS news into one convenient post for subscribers. If you found this post helpful, please subscribe below. For subscribers, I share even more great news and research on my Facebook page and on Pinterest






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Comments

  1. S. Young says:

    Well, I am a 4th year survivor of Fibro and connective tissue disease in Northern Canada. After reading all these articles I have to admit it must be better to live in the states then here. At least you have doctors researching and trying to help you. I was finally diagnosed after pushing, getting frustrated, going through of 3 years of the same tests spaced 6 months apart (just in case) not sure why. They always changed their results back and forths from carpal tunnel to it was my ulner nerve trapped in my elbows not listening to the fact the pain was starting to travel and it was in my wrists to start then my elbows to my neck where I have three disc herniated but “not bad enough for surgery” just enough to put me in dire pain every day then to my knees and back and shingles pain and after three years and lots of specialist I have fibro and connective tissue disease. But, not much to help you sorry all we have is Cymbalta and if you don’t take that there is nothing we can do. I have read all about the court cases and the warnings but what can I do to get out of pain? I have tried every opioid on the market no success and I mean high levels, dangerous so one specialist told me, then Lyrica and Celebrex that I took for 3 years on high levels no help…now they say go to a psychologist ($150.00-$175.00/hr 4hr minimum) so you can talk through the pain. No disability, no job( they don’t want me back until I’m “cured”) so how exactly can I talk through pain when I can’t afford to? Meds are very expensive even though we have a drug plan…doctors up here just don’t get that you can only handle so much pain before you break…yes we’re women but…I have had three children, two cancer preventative surgeries back to back in a span of a week then..put into full menopause and I hurt head to toe!?! What am I to do? I hate the fact that I can’t do much, I am one to never sit still for long…now if I move I want to cry…I have a 3 level house 16 stairs to go to the bathroom or bed or anything! I just don’t get how people survive this….I am starting Cymbalta in a weeks time so let’s see how “sane” I am after that starts to kick in! If I could turn back time I think that maybe I wouldn’t have had those surgeries…maybe just maybe I’d be a bit better off….

  2. I am 56 years old . My Fibro has been diagnosed for years and of course I was orders Cymbalta but can’t seem to get off( as noted in your blog). But I have had significant help with energy and other things like fibro fog using Juice plus products. I have never been so happy to be able to keep my grand children for a 10 hour day with no nap! I have always needed a nap. There are 3 grands under 3 yo. I this better nutrition is key and this helps me so much. I have never wanted to sell anything before but the science and help by this product is so helpful. Do I have bad days? Yes but not as bad as before

    • Donna Gregory/FedUpwithFatigue.com says:

      Hi Beth,
      I’ve had other people tell me about the benefits of Juice Plus. One of these days I may just have to try it. 🙂 Thanks for sharing!

  3. Rosemarie says:

    This was a few years ago,(I’ve been dealing with this for 12 years now). I was driving back from the mall after dropping my son off for work, I live 12 miles away, and have made this trip many, many times. Well, I got lost for 40 minutes, I had to pull over to try, and concentrate to figure out where I was, I finally made it home, but now I only drive when necessary. Things like this happen on a daily basis, and no one seems to understand

    • Donna Gregory/FedUpwithFatigue.com says:

      I’ve had that happen before – not for as long of a time, fortunately – but it definitely scared me.

  4. Love these roundup posts that you do. I had a brain fog moment today when I wondered what the heck was in my pocket. It was my phone but my brain thought the device I was watching at that moment (the iPad) was my mobile so I got super confused. That probably doesn’t make much sense lol but you aren’t alone with the silly brain fog moments 🙂

    • Donna Gregory/FedUpwithFatigue.com says:

      I had another crazy one the other day where I was checking my mail at the post office, and I started panicking b/c I couldn’t find my keys. They were in the post office box lock…Ugh.

  5. My 22 year son cane to help me out for a few months. When asked by some of my friends how he liked Florida. He answered. Oh Florida is great but I’m exhausted trying to remember for two people. Lol kids you got to love them.

  6. Jo Bayne says:

    My fibro fog moment to remember was this: I go home late and stripped all my clothes off and dropped them in the hamper. As I Prayersas going to sleep, something made me check the hamper; I’d dropped my clothes into the toilet near the hamper. I’m still shaking my head.

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