02.25.2016

Week of Feb. 22, 2016 fibromyalgia and ME/CFS news

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I received some great news this week! You’ll soon be seeing more of me online because I’ve been hired as National Pain Report‘s new fibromyalgia editor. I’m so excited to become a weekly contributor for NPR because I’ll be able to raise awareness for our community while writing about the latest research, treatments and other areas of interest to fibromyalgia sufferers. My NPR stories will be posted here, so you won’t miss a thing!

Another highlight of my week was interviewing Dr. Jarred Younger who is probably best known for his research on using low-dose naltrexone as a treatment for fibromyalgia. (In early studies, 65 percent of patients using LDN reported significant improvements in fibromyalgia pain, fatigue and sleep.) I always love talking with Dr. Younger because he gives me hope. The research he’s doing has the potential to answer the questions of how fibromyalgia operates and what are the best ways to treat it. I’ll have a new LDN-related story out soon and will make sure to post it here because I know a lot of my readers are interested in it as a potential treatment.

In the meantime, Dr. Younger is hosting his first YouTube Q & A next week. Details on that are below. (And if you’d like to learn more about LDN for fibromyalgia, check out this handy resources page.)

This week's fibromyalgia & ME/CFS news (week of Feb. 22, 2016) | Fed Up with Fatigue

Top stories …

It’s not often that I say this, but well done, Mr. President: Obama rejects limits on opioid prescribing. “If we go to the doctors right now and say ‘Don’t overprescribe’ without providing some mechanisms for people in these communities to deal with the pain that they have or the issues that they have, then we’re not going to solve the problem,” he says.

Dr. Jarred Younger, best known for his research on using low-dose naltrexone for fibromyalgia, will host a live question-and-answer session on YouTube on Thursday, March 3 at 3 p.m. CT. Submit your questions early at jarredyoungerlab [at] gmail.com.

From HuffPost: “Why is marijuana banned? The real reasons are worse than you think”

Combining pregabalin (Lyrica) and paroxetine (Paxil) increases drug tolerability and reduces depressive symptoms associated with fibromyalgia. Another story on the same study: “Fibromyalgia study finds Paroxetine [Paxil] best of newer antidepressants to combine with drug treatment”

Heroin users who died from overdoses were also abusing pregabalin (Lyrica) and gabapentin (Neuronton), finds U.K. multi-agency panel.

City employee in Savannah, Georgia, says she was fired after she developed fibromyalgia and asked for special accommodations at work.

Virginia physician loses license after medical board found he overprescribed narcotics to patient with fibromyalgia.

Research & treatments …

Fibromyalgia News Today: Fibromyalgia aggravates spondyloarthritis symptoms

About.com: A good primer on microglia cells and how they may play a role in fibromyalgia and ME/CFS

Prohealth.com: “Diagnosed with chronic fatigue syndrome or fibromyalgia? It could be Lyme disease”

I bet lots of us, myself included, will disagree with this finding: “Fibromyalgia symptoms in women not affected by weather conditions like temperature, precipitation or sunshine”

The Independent: “Homeopathy effective for 0 out of 68 illnesses, study finds”

Cannabis news …

Australian parliament approves bill to legalize the cultivation of cannabis

Pennsylvania legislators inch closer to approving medical marijuana bill. Fibromyalgia expected to be one of the approved conditions.

The blogosphere…

From February Stars: “8 things I wish I had known when I was first diagnosed with fibromyalgia”

From SpoonSeeker.com: “101 misconceptions about ME”

From Tony Bernhard: “Should I or shouldn’t I? Seven recurring dilemmas faced by the chronically ill”

From Grace is Sufficient: “Sometimes I choose the cost” We all know that certain things aggravate our symptoms, but sometimes we do them anyway because we don’t want our lives to be totally defined by chronic illness.

Pain News Network columnist Crystal Lindell gives us a sarcastically humorous commentary on what it’s like to have sex when you live with chronic pain. Sex? What’s that?

Personal stories …

My Kitchen Rules (U.K. TV show) contestant says she battled fibromyalgia for 12 years and recovered using probiotics.

Competitive surfing helps New Zealand woman manage ME/CFS.

From The Catholic Leader: “Brisbane seminarian fighting chronic fatigue syndrome returns to the seminary after four years”

U.K. grandmother with fibromyalgia sets sights on first Virgin London Marathon

Contemporary dance performance inspired by the stories of those with chronic fatigue syndrome

Odds & ends …

Tips for preparing for fibromyalgia and ME/CFS flares.

From Retraction Watch: “Court dismisses lawsuit by XMRV-chronic fatigue syndrome researcher”

Off topic …

From The Penny Hoarder: “100 places that will give you free stuff on your birthday”

From Woman’s Day: An easy iPhone hack that could save your life

From BuzzFeed: “Van Gogh’s bedroom has been re-created and you can sleep in it”

More fibromyalgia news …

If you’re interested in reading more fibromyalgia and ME/CFS news, then you might like these:

Week of Feb. 15, 2016 fibromyalgia and ME/CFS news

Week of Feb. 8, 2016 fibromyalgia and ME/CFS news

Week of Feb. 1, 2016 fibromyalgia and ME/CFS news

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Comments

  1. Congratulations on your new job! I love your informative posts and am so excited you will be able to have a bigger platform to raise fibromyalgia awareness. We have been misunderstood for so long!

  2. Lisa M says:

    That’s really exciting news!! Congratulations and good luck!!!

  3. Jill Vokey says:

    Congratulations Donna on your new endeavor! I went to see my rheumatologist the other day because my right knee has been bothering me. She took some fluid out with a big needle and she is also testing me for Lyme Disease so now I just wait for the results.

    • Donna Gregory/FedUpwithFatigue.com says:

      Hi Jill, it’s a good thing to be tested for Lyme. Just know that the tests typically used by most physicians are accurate only around 50% of the time. More advanced testing is usually recommended. A lot of people in the Lyme community suggest IgeneX testing. It seems to be the most accurate at this point. http://www.igenex.com

  4. janeasinner says:

    I am so happy for you and us! I love the Pain News Report. Now I’ll get to see and read even more of your great writings and posts!
    Thanks for all you do, Donna! {{gentle hugs}}

  5. Congratulations on the job! I look forward to reading your posts. Great roundup as always and thank you for the mention 🙂

    • Donna Gregory/FedUpwithFatigue.com says:

      You’re welcome! Thanks for all the great content that you put out!

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