Friday Five: Sept. 23, 2016 fibromyalgia and ME/CFS news

1. Stat: How bad science misled millions with chronic fatigue syndrome There's a new analysis of the controversial ME/CFS PACE trial. As it turns out, the data doesn't support the previous results indicating cognitive behavioral therapy and exercise as the best treatments for ME/CFS. If you'd like to skip directly to the analysis, you can find it here. 2. BBC News: Fibromyalgia to be recognized as long-term condition Great news for the fibro community! The Patient and Client Council in Northern Ireland has officially acknowledged fibromyalgia is a long-term condition. It's another … [Read more...]


Potential fibromyalgia treatment is put on hold

This story on the Tonmya fibromyalgia trial originally appeared on NationalPainReport.com and is being republished here with permission from the editor.  The fibromyalgia community received some bad news earlier this month when Tonix Pharmaceuticals Holding Corp. announced TNX-102 SL (trade name: Tonmya), a low-dose, sublingual form of cyclobenzaprine (Flexeril), did not achieve the primary goal of pain relief in its latest clinical trial. The company will no longer seek approval from the U.S. Food and Drug Administration (FDA) for TNX-102 SL as a treatment for fibromyalgia. TNX-102 SL … [Read more...]


Friday 5: Sept. 16, 2016 fibromyalgia and ME/CFS news + another giveaway

1. National Pain Report: A simple eye test could be helpful in diagnosing fibromyalgia 2. National Pain Report: An innovative U.K. research study confirms what many of us already know: Rain = more pain 3. Living with Chronic Fatigue Syndrome: Using heparin as an ME/CFS treatment 4. Washington Post: Chronic fatigue syndrome may be a human version of hibernation 5. CTV News: A Canadian review finds ME/CFS "is not a legitimate disease." And an extra ... Organizing for Traumatic Illness: Tips for making and prioritizing a to-do list when you're chronically ill This week on … [Read more...]


How chronic illness is forcing me to embrace self care

Disclosure: This is a sponsored post for Self Care Catalysts' Self Care Mvmt. I have been compensated through the Chronic Illness Bloggers network. All opinions are my own, and I was in no way influenced by the company. This post may contain affiliate links.  I'm really bad at self care - so much so that I think my super-charged type A personality is probably one of the main reasons I'm chronically sick now. I drove myself too hard, for too long, without considering the consequences. In my former life, I was one of those all work, all the time, kind of people. But life has a way of … [Read more...]


“The Truth about Chronic Pain Treatments” review + book giveaway

Disclosure: I was given a free book in exchange for this review. All opinions are my own and were in no way influenced by the author. This post may contain affiliate links.   When I was first diagnosed with fibromyalgia, I felt completely overwhelmed when I googled "fibromyalgia treatment." There's more than 4 million results!!! Like most, I initially depended on big-name sources like WebMD, the Mayo Clinic and the National Institutes for Health for information on the best treatments for fibromyalgia. These sites were great for the basics, but as I got further into my treatment, it … [Read more...]


Friday 5: Sept. 9, 2016 fibromyalgia and ME/CFS news + giveaway!!!!

1. Reuters: Bad news for the fibromyalgia community! One of three new fibro drugs under development is no more. Tonix Pharmaceuticals has pulled the plug on Tonmya as a treatment for fibromyalgia.  2. HealthRising: The core problem in chronic fatigue syndrome identified? Naviaux’s metabolomics study breaks fresh ground 3. Prohealth: 10 tips to simplify, lower the cost and optimize CFS and fibromyalgia treatment 4. If you're over 40 and use ibuprofen regularly, you might want to read this! 5. Fibromyalgia News Today: How pets can help fibromyalgia patients And an extra ... Since … [Read more...]


How our stuff might be making us sicker

This post on "How our stuff might be making us sicker" originally published on NationalPainReport.com and is being reprinted here with permission from the editor.  How our stuff might be making us sicker ... Lately I’ve been wondering if our material possessions could play a role in our fibromyalgia symptoms. My ruminating started a few months ago when the KonMari craze was at its peak. My YouTube feed was flooded with stay-at-home moms holding their ice cream scoops and lacy camisoles and asking, “Does this spark joy?” Seeing t-shirts folded into little rectangular packages and then … [Read more...]


Friday 5: September 2, 2016 fibromyalgia and ME/CFS news

1. National Pain Report: The U.S. Drug Enforcement Administration plans to illegalize kratom, an Asian herb that some fibromyalgia patients use for pain relief. Here's a petition to sign if you're interested in stopping the DEA's efforts. 2. Law360: Eli Lilly urges ninth circuit court not to revive Cymbalta suit I'm including this because I know a lot of you are interested in the Cymbalta lawsuits. Unfortunately, the only source I could find is a subscription site. Law360 does offer a free trial membership. None of the other media seem to be covering these Cymbalta … [Read more...]


Proove Fibromyalgia Profile could improve diagnosis, treatment

This article on the Proove Fibromyalgia Profile was first published on NationalPainReport.com. It is being reprinted here with permission from the editor.  The new Proove Fibromyalgia Profile ... Proove Biosciences, a California-based firm specializing in pain medicine, has developed a new tool to help physicians better diagnose and treat fibromyalgia. “The Proove Fibromyalgia Profile is a first-of-its-kind decision-improvement tool that harnesses individualized information to aid in the identification of genetic factors that may contribute to differing clinical pathways behind a … [Read more...]


Organic Aromas diffuser review

Disclosure: I was given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this Organic Aromas diffuser review are my own, and I was in no way influenced by the company. I've always loved burning candles and using other home fragrance products. It just makes my home feel, well, more homey. But lately, I've been reading about how these artificial scents can be hazardous to our health. Since those of us with fibromyalgia and ME/CFS are notoriously sensitive to just about everything, I'm forcing myself to … [Read more...]

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