Friday 5: July 29, 2016 fibromyalgia and ME/CFS news

Tonix Pharmaceuticals has started a second phase III trial to test the effectiveness of Tonmya, a sublingual form of cyclobenzaprine (Flexeril) that's been developed to improve the sleep of those with fibromyalgia. Researchers from University of Alabama at Birmingham and Johns Hopkins University School of Medicine discover ME/CFS symptoms can be triggered by straining muscles and nerves. Musician Kris Kristofferson was diagnosed with fibromyalgia and later Alzheimer's disease. Turns out, he had Lyme disease! With treatment, now he's back performing on stage. This is a real-life account … [Read more...]


What the research really says about using opioids for fibromyalgia

This story on using opioids for fibromyalgia first published on NationalPainReport.com. It is being reprinted here with permission from the editor.  Using opioids for fibromyalgia My fibromyalgia and primary-care doctors have always been united when it comes to one thing: Opioids do not relieve fibromyalgia pain! Early on, I believed them and didn’t question their treatment plans. I figured they must have formed their opinions based on actual clinical trials. Turns out, I was wrong. The reality is there have been no sizable, randomized, double-blind, placebo-controlled studies to … [Read more...]


Friday 5: July 22, 2016 fibromyalgia and ME/CFS news

I'm trying something different today! I've been missing the weekly fibromyalgia and ME/CFS news posts. Since I started to publish them semimonthly, it feels like I'm not giving you the most up-to-date fibromyalgia/ME/CFS news in a timely manner. So, I'm going to try something called Friday 5 for a few weeks and see if this works better! Each Friday, I'll send you 5 interesting tidbits from the fibromyalgia and ME/CFS communities. This way, you'll always get the latest news, but you won't be overwhelmed with a LONG ... LONG ... LONG post of links. Let me know how you like it! This … [Read more...]


Futura Genetics review

Disclosure: I received a Futura Genetics DNA test as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this Futura Genetics review are my own, and I was in no way influenced by the company. Futura Genetics review ... Would you want to know if you were genetically predisposed to having certain life-altering conditions? I know not everyone feels this way, but I definitely would! For me, the more information I know about potential health issues, the better. It helps me to make better decisions regarding my health. So … [Read more...]


Why SAM-e is one of my favorite fibromyalgia supplements

This article on using SAM-e for fibromyalgia originally published on NationalPainReport.com. It is being reprinted here with permission from the editor.  Disclaimer: This article is for informational purposes only. It is not intended as a substitute for medical advice or treatment. Always seek the counsel of your medical provider before starting or stopping any treatment. (This post contains affiliate links.) Without a doubt, SAM-e is the greatest gift that my fibromyalgia doctor has given me. Over the last nine months, it’s become one of my go-to supplements for managing daily … [Read more...]


Why are fibro researchers wasting time and money on the obvious?

This commentary was first published on NationalPainReport.com. It is being republished here with permission from the editor.  Since I’ve been reporting on fibromyalgia, I’ve had the opportunity to interview some awesome researchers. Even though it feels like a cure (or even an effective treatment) for fibromyalgia is far away, there are some incredibly committed, talented researchers out there who are working so hard to help us. I think some of them want the answers just as much as we do, and their perseverance and dedication is paying off. Nearly every month there’s another study … [Read more...]


Low-dose naltrexone: An effective treatment for ME/CFS?

The following article on low-dose naltrexone for ME/CFS was first published on Prohealth.com. It is being reprinted here with permission from the editor.  Unlike fibromyalgia, there are no FDA-approved treatments for ME/CFS, leaving few options for relieving symptoms. But in recent years, a growing number of patients have started using a little-known drug called low-dose naltrexone (LDN) as an off-label treatment, and now an Alabama-based researcher is planning the first trial to find out if LDN actually reduces the symptoms of ME/CFS. The FDA approved naltrexone to treat addiction to … [Read more...]


June 27, 2016 fibromyalgia and ME/CFS news

The longer I live with chronic illness, the less faith I have in our medical system. Last week, I received lab results from my first round of blood work ordered by my new Lyme doctors. Their findings? My immune system is compromised, according to at least two of the immune function tests they ordered. In addition to Lyme, my body is fighting several other tick-borne co-infections. Epstein Barr virus also made an appearance, although my doctors say it's not currently active. It's no wonder I've been exhausted and in pain for years. My body has to be weary from fighting all those … [Read more...]


5 unusual things to improve your sleep

This article on "5 Unusual Things to Improve Sleep" first published on NationalPainReport.com. It is being republished here with permission from the editor.  (This post contains affiliate links.) Nonrestorative sleep is one of the primary symptoms of fibromyalgia. But words like “nonrestorative” and “unrefreshing” don’t adequately describe fibromyalgia sleep. Instead, I like to reference one of my hubby’s favorite TV shows when I try to explain to healthy people what I feel like when I wake up in the morning. I call it “The Walking Dead” kind of tired. If you’ve ever watched the … [Read more...]


The Fay Farm Serenity CBD Lotion Review

I received free product in exchange for this The Fay Farm Serenity CBD Lotion review. I received no financial compensation. All opinions are my own. The Fay Farm Serenity CBD Lotion review A couple of months ago, my friend Julie over at Counting My Spoons introduced me to The Fay Farm's Healing CBD Hemp Lotion, and it quickly became my go-to body moisturizer. (You can read my Healing CBD Hemp Lotion review here.) It's ultra moisturizing, smells great and contains natural ingredients. The CBD helps my fibromyalgia pain. I thought it couldn't get better. I was wrong. There is a new love … [Read more...]

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